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Come Out, Come Out And Show Yourself


pedro

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pedro Explorer

Hi I was looking at the main page and I see more than 100 people logged on as guest. :ph34r:

Please don't be affraid. :unsure:

I've only been here for almost two months, the help, and support that found here is enormous. ;) Everyone is very humble and ready to help. From an advice to a prayer we are here for you. We all know what struggles and concerns one can have at the beginning.

Here you will make friends that will last forever.

So I encourage you to come out, here we all are like the three musketeers. "One for all, and all for one"

Take care. :lol::lol::lol:

Pedro


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confused Community Regular

I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

pedro Explorer
I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

Paula to funny :lol::lol::lol:

confused Community Regular
Paula to funny :lol::lol::lol:

Now you know why i dont take meds, i get goofy off of tyenol lol

paula

pedro Explorer
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

Paula

Good for you. We have enough with gluten. I told the doctor I am not taking anymore the librax, I like my hyperactivity.

Lisa Mentor

Okay Pedro, how did you find us? You start ;)

happygirl Collaborator

Pedro, well said :)

I think we all "lurked" for some point...I know I did!!!!! Even after I joined, it took me awhile to get going.

Happy that you have joined us...and hope that others will as a result of this post.


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pedro Explorer

Okay

I found this site on a day that I was sooooooo tired and so sick and without any hope of solving any of my digestive issues. I was ready to belive it was all in my head. I google for support groups and this came out. It was destiny. You guys open my vision you gave me hope, I found thru one the postings about EnteroLabs, and the rest is history. Thru your experiences I've been able to share my story and educate inform many people about Celiac and gluten allergies.

You all are a blessing!!!!!!!!!!

I did plenty of lurking here. :ph34r::ph34r:

The first post is the hardest. the rest comes very easy, because you feel at home immediately here.

Pedro

little d Enthusiast

HI

Yes I was a lurker too and I was looking to a join something I applied to some other site but never got a response back and as soon as I put my info in I got the response back, Thanks to who is in charge of the sign up. I also have learned alot on here, alot more is making sense.

Donna

Canadian Karen Community Regular
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

LOL! Times like that, you need to alter your screen name to "Dazed and Confused"!!!! :lol:

chocolatelover Contributor

I don't even remember how I found this site...I just know that it's been such a blessing to me. I lurked for a long time, and then when I finally got up the nerve, it seemed like every time I posted I killed the topic! :blink: I still spend a fair amount of time lurking, but I really try to share my experiences, thoughts and recipes, etc. Anything to make it easier for others who are new or struggling or confused. It's been such a lifesaver to be able to hop on here whenever I want and pretty much be able to find whatever I need here. I've said it before and will say it again--I've learned soooooo much more from the people here than from almost every doctor I've been to.

It can also be a great soursce of entertainment at 2:00 in the morning when I can't sleep! :lol:

Guess I'd consider myself a double lurker, too. :ph34r::ph34r:

CL

loco-ladi Contributor

I was handed a list of foods my cousin could no longer eat, she didnt know why.

My doctor didnt offer any answers he sent me away with more pills that didn't fix anything.

I took "the list" to the local dietician who did a bit more research, I think she may have actually looked at it, she said that "most" of the things on my "list" contained gluten, but she didnt know if that meant anything.....

I did a search for "gluten" and ended up here after a bit, lurked for a while.... signed up..... lurked more...learned more...... researched more.....

Confronted my Dr numerous times, came away with more pills that didnt work......

Finally said screw the dr's and diagnosed myself.

2 months later feeling better, not 100% but a dang site better getting better daily even tho I dont always notice the daily changes.

Abbygail Newbie

The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Guest KG in FL
The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Why is lurking so bad?

Lisa Mentor
Why is lurking so bad?

Lurking is not so bad, it's just a kind invitation to join us. :)

wowzer Community Regular

I didn't lurk on here too long. I first found the site after looking up itchy rashes. I thought maybe I had DH. Then I had a biopsy that came back spongiotic dermatitis. I found the natural cure for it was a gluten free diet and it led me here.

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    • Shining My Light
      Thank you @trents! This is all sound advice. In 2022 I did have a biopsy done with the EGD: SPECIMEN: (A) DUODENUM, BIOPSY (B) GASTRIC BIOPSY(C) GASTRIC POLYP, BIOPSY(D) ESOPHAGUS BIOPSY (E) ESOPHAGUS BIOPSY This would have been when the candida was found.  If I understand right it’s the duodenum they take a biopsy of. Nothing was mentioned about Villous atrophy however they were not looking for that particularly.    Something that stumps me is the correlation between symptoms and damage. One seems to equal the other. I have yet to see damage with “silent celiac”. Not saying it doesn’t exist.  Also super curious on other symptoms that would improve based on a gluten free diet. Obviously silent celiac wouldn’t have an improvement in GI symptoms but that is all I have read any data for. No one saying things like my anxiety went away or my headaches and joint pain are gone.    I see why it would be a “gluten challenge” since eating 4-6 slices of bread daily is a challenge to do. 😳 I would replace that with cake 🍰😉 
    • xxnonamexx
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    • trents
      All that is exactly why you should have an endoscopy with a biopsy of the small bowel lining done. It's a very simple procedure and in the US they put you under for it so there is no discomfort. You don't even have to do a cleanout like you do for a colonoscopy.  It might also be wise to wait a few months and get the tTG-IGA checked again if nothing else. If it elevated now due to some temporary infectious process, it should not remain elevated. But a biopsy would distinguish between IBD and celiac disease. And remember, the diagnosing of diseases is often not a black and white, cut and dry process. You often have to weigh all the evidence and just go with what is most likely the cause. When tTG-IGA is elevated, the most likely cause is celiac disease. And the gold standard test for diagnosing celiac disease is still the endoscopy with biopsy. But if you decide to go for further testing for celiac disease of any kind, you must not first embark on the gluten free diet.
    • knitty kitty
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    • Shining My Light
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