0
bzmomof3

Sleep Issues & Wheat Intolerance In Infant

Rate this topic

Recommended Posts

Hi I'm new to this forum. TIA for your help. Sorry for the length of this post.

I have an 11 month boy who I've determined has an intolerance to dairy and wheat. Here's some background info...

*Exculsively breastfed

*Extreme collicky for the first 3-4 months. Cried almost 24 hrs a day.

*Primary symptom -- the INABILITY TO FALL ASLEEP. Has never slept well day or night from the beginning. At the worst aprox 8 mo old he was waking every 1-2 hrs all night and I would be lucky if I could get one 1hr nap in during the day. No matter what we do rock, walk, drive in the car he will not go to sleep.

*Other symptoms would be general fussiness, some gas, restlessness, hard time relaxing.

*We would use Gripe Water (made from fennel seed) to help him when we was at his worst. This seemed to help him most of the time. When it would kick in he would melt.

*I have been off obvious dairy pretty much from the beginning. At about 8 mo I also went off hidden dairy. At this time we saw some improvement which gave us hope at that time.

*At about 9 1/2 mo old I went off all wheat. Almost immediately DS drastically started improving. He is not at 100% by any means but is sleeping much better than he has ever in his life.

*I introduced solids at around 7 mo. He was pretty much not interested at all. Eating maybe 1-2 Tbsp of food 1-2 times/day. Within a very short time after I went off wheat he started eating tons of solids. It's like he's starving. I'm still breastfeeding with no intentions of weaning.

*DS has been in the 10 - 15% percentile in weight and height all along. To his pediatrician this is not concerning at all. To me I am concerned because his 2 sisters where in the 75% and 100%+ range all the time. Overall DS is healthy, developing well and got his 1st cold when he was 9 mo.

*My health has improved and I feel better not having wheat & dairy. I've actually dropped 5 lbs since I omitted wheat. Woohoo. Our family if vegetarian.

*There is no obvious known allergies in our family. But the more I'm learning I'm suspecting there may be some that we've never really understood before. I guess what I'm saying is we've never been tested for allergies.

MY QUESTIONS!!!

1. Is there anyone out there with wheat intolerance / celiac who has had major sleep issues with there babies?

2. Would you recommend getting DS tested for celiac?

3. With his primary symptom of not sleeping well would this indicate to you allergy or intolerance or celiac?

4. Are there any links or testimonies of sleep related food intolerances?

Thanks again for your help. This has been one of the most difficult years in my life. I am so thankful for others who are willing to share there knowledge with others.

-Brenda

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I really feel for you. It is so hard when you can't sleep well. My son was recently diagnosed with Celiac disease at 3.5 years old. He was a horrible sleeper!!! For the first two years of his life he woke up every two hours to nurse/drink. (He was breastfed for 9 months.) At least 2-3 times per week he would wake up at about 1 am and stay awake for hours. Even now he usually wakes up once per night. He also had no interest in solid food...and he's still a very picky eater. I tried to eliminate dairy when I was breast feeding as well, but I never really got any results. My son was also very gassy and spit up until I put him on soy formula (which also happened to be gluten free) at 10 months of age. If I were you I would do the celiac and full allergy panel. That's what we did with my son. After more than two years of trying to guess what he was allergic to, let me tell you: it's so worth it to know for sure. In my son's case he is not even allergic to milk, and in fact he has no allergies, but he does have celiac disease. The catch is that your son has to be consuming gluten regularly for an extended amount of time (1+ months) for the blood work to have decent results, and the blood test is said to be unreliable in children.

Does your child have any other symptoms such as distended tummy, diarrhea or constipation or appetite issues?

I really hope you can figure out what is causing your child's problems. :)

Share this post


Link to post
Share on other sites

My one child who had what the doctor called, "major sleep issues" had no sleep problems at all as long as he got to sleep on top of somebody. It didn't matter if he had been asleep 10 minutes, or 20, or 4 hours--as soon as we laid him down, he would wake up and scream his head off. Neither of my other 2 ever did anything remotely like that!

He did have problems keeping his temperature up as a newborn--he was the only big baby in the neonatal unit! We figured that had to have something to do with his need for human warmth, so we tried bundling him up, but he really hated that.

When he was 6 weeks old, he slept through the night. But I had to return to work when he was 9 weeks old, and he wouldn't take a bottle, so there went the sleeping-through-the-night! When he was a year old, we put him in bed with his older brother, and that worked great. And around about then, he stopped needing to sleep on top of people.

He probably has some kind of wheat issue; we haven't figured everything out yet, though. He also had a major problem with vaccines.

Share this post


Link to post
Share on other sites
Does your child have any other symptoms such as distended tummy, diarrhea or constipation or appetite issues?

Yes Jenny your son's sleep habits sound just like my son's. He wakes up in the night and is awake for hours!!!! We've tried everything to try to get him back to sleep.

I've just started reading about the above symptoms. I know he's never had diarrhea. Constipation? maybe on a rare occasion. Definately appetite issues in that some days he eats tons of solids and sometimes he just wants to nurse lots. Hard to tell at this point since I don't know how much breastmilk he's getting and then with frequent growth spurts who knows...

I'm not sure what a distended tummy would look like. Yes he's got a little round tummy but most kids tummy's seem to stick out don't they?

I've alot to learn. Thanks for your help and input.

Share this post


Link to post
Share on other sites

Fiddle faddle,

I got a smile out of reading how you solved your son's problem of needing to sleep on top of someone. Put 'em in with his brother! Brilliant! That's what siblings are for right? they must have been adorable together.

What's your spacing? I plan on contributing to the OP, but definitely my son had to touch a person to sleep as well. I never thought of putting him in with his brother.It would have been perfect payback because his older brother had stuck to us like glue for 2 years. I'm glad everyone is sleeping now.

That reminds me, Back to Brenda's kids! HEIDI

Share this post


Link to post
Share on other sites
Ads by Google:


brenda, my boys are 6 and 8 now, but YES, we had basically all the same symptoms.

My older - he was the most insomniac baby I ever saw. He came roaring into the world with raging , inconsolable colic and went 2 months without a nap unless he was being physcially carried. And I dont mean being pushed in a stroller, I mean carried, ON my body, until my knees felt like they were being ground to dust.

He had major BF-ing problems, FTT, and I was told to stop BF-ing him but that only made me want to succeed more so I managed to keep him Bf'd . Having recently completed an Ironman triathlon I can freely say, BF-ing that baby was tougher. Much. I did healfheartedly try an elimination diet, but at the time my DH was not yet DX'd so we didn't know from celiac.

My younger son, similarly insomniac. Also needed to be on a body to rest. He had eczema at 2 months old and I tried an elimination diet for that, but being a vegetarian, and being sleep deprived, overwhelmed with a new baby + a 2 year old, I never really got rid of all the hidden dairy. And I tried eliminating everything else EXCEPT gluten. Why not gluten? Well --- it was just too unthinkable, too hard. At the time they were saying BF babies could resist celiac. I was doing enough of my part (so i thought) just by BF-ing, did I have to give up every SINGLE thing I enjoyed?

Now that I think about it, if I had only given up gluten then, it's possible their entire toddlerhoods would be different. I won't go into it here and now, but motherhood has run me ragged, worked me to the bone with special needs, isolation , and illnesses and now the diet. Maybe I wouldn't be so burned out and lacking in reserves right now if we'd tried the gluten-free thing earlier.

Not to dump my baggage on you. Just to answer your question #1, my kids BOTH had major sleep issues and BOTH seem to be shaping up to be celiacs. (If you ask Enterolab they'd say no further proof is necessary but I'm not totally sure..).

So if you could learn from my story, perhaps a month of gluten-free could show you guys a lot. He is still exclusively BF? Wow, that is a lot on you. (I hope you get a mackin' mother's day prezzie!!) My son also had no intrest in foods til "late" - 9 months in our case. Ironically, his first food that he didn't refuse was his dad's gluten-free bread, which he loved! He used to like to pinch off pieces with his fingers. We had to call the doc and make sure it was OK for him.

How long have you been wheat free? Have you been gluten-free yet? Glad you are feeling good. HTH

Heidi

Share this post


Link to post
Share on other sites

For the record, I am NOT anti-vaccine.

However (there's always a "but!"):

My son's eczema started with a HORRENDOUS rash within 24 hours of his vaccines, and the dermatologist took one look and said, "this is definitely a drug reaction, what did you give him?" (Nothing but the vaccine, and he was 100% breastfed! In fact, I didn't introduce solids til 10 months because of the dang eczema.)

I did try going off both casein and dairy, just in case, with no change in his eczema (which was blistering and oozing all over his body). It did get quite a bit better as he got older, but only disappeared when I went off gluten and the kids became "gluten-lite" (because I refused to cook 2 different sets of meals). I'm convinced that he does have a gluten issue, but hubby disagrees.

I think gluten issues and our immune systems are all tied up with the vaccines and meds. Not necessarily caused by them--I do think there is a genetic predisposition. But definitely affected by them.

I would suggest that you hold off on as many vaccines as you think is reasonable, and only let them give ONE AT A TIME. There is NO long-term research on what the number of vaccines they suggest can do to an infant's immune system, or brain, or anything. (26 by 18 months?? 3 or 4 combined vaccines in each leg on the same visit? Are they CRAZY???? :ph34r: )

I know, they keep insisting that vaccines are perfectly safe--but, I repeat, THERE IS NO RESEARCH THAT PROVES THIS. And there's a heckuva lot of anecdotal evidence that they may not be perfectly safe, and I've seen an awful lot of posts here about vaccine reactions, so I would suspect that those of us with celiac and those of us with children with gluten issues have a much greater chance of having a bad reaction to vaccines, especially when they are given many at a time.

You might want to read http://www.chem.cmu.edu/wakefield/pro.html, This doctor wasn't even looking for vaccines--he was just doing exploratory endoscopies of autistic kids with IBS symptoms (translation: celiac symptoms) and found the MMR in the lining of their guts YEARS after it should have been gone.

Obviously, we don't want to see things like polio again. But we need to educate ourselves about what is really being injected into our babies.

I know too many moms who say their children were great sleepers until their 4month shots, or their 6 month shots, or their 15-month shots, and then their children were never the same.

Ironically, my daughter's reaction to the polio vaccine was to sleep for 36 hours straight. I didn't realize at the time that it was a serious reaction, and neither did the nurse on call, so it never got reported to the CDC, but it should have been.

Share this post


Link to post
Share on other sites
Yes Jenny your son's sleep habits sound just like my son's. He wakes up in the night and is awake for hours!!!! We've tried everything to try to get him back to sleep.

I've just started reading about the above symptoms. I know he's never had diarrhea. Constipation? maybe on a rare occasion. Definately appetite issues in that some days he eats tons of solids and sometimes he just wants to nurse lots. Hard to tell at this point since I don't know how much breastmilk he's getting and then with frequent growth spurts who knows...

I'm not sure what a distended tummy would look like. Yes he's got a little round tummy but most kids tummy's seem to stick out don't they?

I've alot to learn. Thanks for your help and input.

My son's tummy looked like he was pregnant, and was very round and firm. It's hard to tell because breast fed babies are usually so chunky! :lol: If I were you I would go off gluten yourself completely. There was a post about gluten possibly being able to enter a mother's breast milk! I would also avoid gluten foods for your son as well. If he does not improve then I would get him allergy tested and tested for celiac disease. Remember you must be consuming significant amounts of gluten to get a positive result. Normally I would say to get tested before going of gluten, but your son must be miserable and you must be going out of your mind! I remember those days...I hope things get better for your family.

Share this post


Link to post
Share on other sites
brenda, my boys are 6 and 8 now, but YES, we had basically all the same symptoms.

My older - he was the most insomniac baby I ever saw. He came roaring into the world with raging , inconsolable colic and went 2 months without a nap unless he was being physcially carried. And I dont mean being pushed in a stroller, I mean carried, ON my body, until my knees felt like they were being ground to dust.

Heidi and Brenda, do you have slings? Or Over-the-Shoulder-Baby-Holders? Those totally saved us. We put the baby on in the morning, and only took him out for play and diaper changes! As long as he was in the sling, he was totally happy! When he was in the car seat or stroller, he screamed.

Everyone told us we'd spoil him, and that we should let him scream it out, but they didn't have to live with him. We carried him constantly for a year, and then whenever he wanted to be carried (which was often)for another year , and he is now the easiest 8-year-old I know. He was also really, really good with his little sister (2 1/2 years younger), and was never ever jealous. He would carry her, hold her, sing to her, all the stuff we did for him. He still does, in fact.

Share this post


Link to post
Share on other sites

Thanks everyone for your encouragement.

I have been gluten free with the exception of oats for about 5 weeks. I have seen HUGE improvement in DS. He has never had wheat with the exception of one time. (small amt of homemade wheat bread). This week DS has taken 2-3 hr naps everyday and he is only getting up once at night during a 12 hr time frame. And the remarkable thing is I nurse him and he goes right back to sleep. None of this awake for hours stuff. Woo hoo :)

I can relate to you PacerNYC with not suspecting gluten. I had suspected dairy and I've been off dairy for quite some time but had someone told me 6 months ago to go off wheat I probably would have laughed in there face. And the amazing thing to me is how what I eat affects how my son sleeps. Who would have guessed that?

Thanks for the heads up on vaccines. I had been pondering refusing his vaccines for awhile until his sleeping had settled down. I can't correlate his sleep with vaccines since he was messed up from birth.

QUESTION? Is celiac and gluten intolerance and wheat sensitivities all the same thing? Or do people just use those terms interchangably as referring to someone who is sensitive to wheat and gluten in varying degrees?

Share this post


Link to post
Share on other sites


Ads by Google:


Thanks everyone for your encouragement.

I

QUESTION? Is celiac and gluten intolerance and wheat sensitivities all the same thing? Or do people just use those terms interchangably as referring to someone who is sensitive to wheat and gluten in varying degrees?

~Well celiac and gluten sensitivity are sometimes confused. I guess you coudl say "celiac" is the end result or manifestation of gluten sensitivity (aka intolerance), I believe the clinical def of celiac refers to villous atrophy. Most of us here on this parent's forum hope to prevent the villous atrophy from happening by catching it early.

~Gluten and wheat are different. Gluten is a protein found in wheat, but unfortunately for all of us here, gluten is also found in oats, malt, and barley, and some other grains.

Glad you are having good results. Fiddle, I had just about every form of baby carrier ever invented. I had a Maya sling, a Kelty backpack, a Baby Bjorn, I even had this Canadian thing which was like a soft backpack that could be used for younger babies (the baby faces the opposite way from the parent and rides lower than a regular frame backpack).

luckily...that phase is over anyway. Heidi

Share this post


Link to post
Share on other sites
I can't correlate his sleep with vaccines since he was messed up from birth.

QUESTION? Is celiac and gluten intolerance and wheat sensitivities all the same thing? Or do people just use those terms interchangably as referring to someone who is sensitive to wheat and gluten in varying degrees?

My older two WERE given vaccines--3 of them-- the day they were born. It was standard practice in the hospital, and I only knew about it because I insisted on not letting them take the baby back to the nursery area, so they had to do it in front of me.

(Well, they did try the standard, "We'll take the baby, you get some rest," and I got no rest because my baby was screaming loud enough to to wake the whole floor, and when I staggered back to the nursery to find out why he was crying, I found him alone in his crib. The nurses refused to hold him; they said he'd been fed and changed, so there was "nothing wrong with him screaming." So I insisted on his being with me, which immediately stopped the screaming.)

Back then, I had no idea of the risks involved with vaccines, and I had not been told in advance that it was standard practice to vaccinate a baby at 4 hours old. Besides, after 26 hours of induced labor three weeks before my due date, I didn't realize I had the option to say, "No, stop, I want to do some research on this first."

By the time my third came along, though, I had learned a few things, and I was able to stop them from vaccinating her the day she was born.

Share this post


Link to post
Share on other sites
~Well celiac and gluten sensitivity are sometimes confused. I guess you coudl say "celiac" is the end result or manifestation of gluten sensitivity (aka intolerance), I believe the clinical def of celiac refers to villous atrophy. Most of us here on this parent's forum hope to prevent the villous atrophy from happening by catching it early.

~Gluten and wheat are different. Gluten is a protein found in wheat, but unfortunately for all of us here, gluten is also found in oats, malt, and barley, and some other grains.

Glad you are having good results. Fiddle, I had just about every form of baby carrier ever invented. I had a Maya sling, a Kelty backpack, a Baby Bjorn, I even had this Canadian thing which was like a soft backpack that could be used for younger babies (the baby faces the opposite way from the parent and rides lower than a regular frame backpack).

luckily...that phase is over anyway. Heidi

So is anything with malt flavoring in it off limits too?? I wasn't aware of malt being a "no no" I'm still learning????????????

Share this post


Link to post
Share on other sites

Yep. Anything with malt flavoring is off limits, which pretty much eliminates most cereals. Fruity and cocoa pebbles, Dora stars and various specialty cereals are gluten free.

Share this post


Link to post
Share on other sites

It is sucha kick in the head when you go through a long list of ingredients on a product, and you're almost safe...nothing obvious on there......and then you see.......malt. augh!

Share this post


Link to post
Share on other sites

The one thing I do miss from the gluten days is malt-flavored Ovaltine. I used to give it to me kids, too, and tell them that it was chocolate milk (because it has no caffeine, so it didn't keep them up). And they loved it. Sigh....We need someone to invent a Rice Malt Ovaltine!!!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   11 Members, 1 Anonymous, 475 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com

    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
    For their review, the team searched Medline, PubMed, and EMBASE for the keywords ‘celiac disease,’ ‘celiac,’ ‘tissue transglutaminase antibody,’ ‘anti-endomysium antibody,’ ‘endomysial antibody,’ and ‘prevalence’ for studies published from January 1991 through March 2016. 
    The team cross-referenced each article with the words ‘Asia,’ ‘Europe,’ ‘Africa,’ ‘South America,’ ‘North America,’ and ‘Australia.’ They defined celiac diagnosis based on European Society of Pediatric Gastroenterology, Hepatology, and Nutrition guidelines. The team used 96 articles of 3,843 articles in their final analysis.
    Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals. That means that numerous people with celiac disease potentially remain undiagnosed.
    Rates of celiac disease were 0.4% in South America, 0.5% in Africa and North America, 0.6% in Asia, and 0.8% in Europe and Oceania; the prevalence was 0.6% in female vs 0.4% males. Celiac disease was significantly more common in children than adults.
    This systematic review and meta-analysis showed celiac disease to be reported worldwide. Blood test data shows celiac disease rate of 1.4%, while biopsy data shows 0.7%. The prevalence of celiac disease varies with sex, age, and location. 
    This review demonstrates a need for more comprehensive population-based studies of celiac disease in numerous countries.  The 1.4% rate indicates that there are 91.2 million people worldwide with celiac disease, and 3.9 million are in the U.S.A.
    Source:
    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.

    Jefferson Adams
    Celiac.com 06/16/2018 - Summer is the time for chips and salsa. This fresh salsa recipe relies on cabbage, yes, cabbage, as a secret ingredient. The cabbage brings a delicious flavor and helps the salsa hold together nicely for scooping with your favorite chips. The result is a fresh, tasty salsa that goes great with guacamole.
    Ingredients:
    3 cups ripe fresh tomatoes, diced 1 cup shredded green cabbage ½ cup diced yellow onion ¼ cup chopped fresh cilantro 1 jalapeno, seeded 1 Serrano pepper, seeded 2 tablespoons lemon juice 2 tablespoons red wine vinegar 2 garlic cloves, minced salt to taste black pepper, to taste Directions:
    Purée all ingredients together in a blender.
    Cover and refrigerate for at least 1 hour. 
    Adjust seasoning with salt and pepper, as desired. 
    Serve is a bowl with tortilla chips and guacamole.

    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
    So how, you may ask, is all this related to gluten? As a starting point, one report from the medical literature identifies a patient who developed aphasia after admission for severe diarrhea. By the time celiac disease was diagnosed, he had completely lost his faculty of speech. However, his speech and normal bowel function gradually returned after beginning a gluten free diet (8). This finding was so controversial at the time of publication (1988) that the authors chose to remain anonymous. Nonetheless, it is a valuable clue that suggests gluten as a factor in compromised speech production. At about the same time (late 1980’s) reports of connections between untreated celiac disease and seizures/epilepsy were emerging in the medical literature (9).
    With the advent of the Internet a whole new field of anecdotal information was emerging, connecting a variety of neurological symptoms to celiac disease. While many medical practitioners and researchers were casting aspersions on these assertions, a select few chose to explore such claims using scientific research designs and methods. While connections between stuttering and gluten consumption seem to have been overlooked by the medical research community, there is a rich literature on the Internet that cries out for more structured investigation of this connection. Conversely, perhaps a publication bias of the peer review process excludes work that explores this connection.
    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

  • Forum Statistics

    • Total Topics
      110,253
    • Total Posts
      949,748
  • Member Statistics

    • Total Members
      77,500
    • Most Online
      3,093

    Newest Member
    JoyGF121
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have Ulcerative Colitis, it flares after my celiac to gluten also, and dairy exposures, along with soy, spices, and if I over do it on stuff like onion/garlic. It also in my case hates fructose/glucose, rare but some people have that also as a trigger.

      I like you enjoyed a "not so restrictive" diet on my Rx for the disease, I could have spices, garlic, onion, mexican food, without flares....but since  not being able to afford the $600+ a month Rx I found alternative treatments. These will help benefit yours also as the method of coating and soothing the intestinal walls is the same do read here on what I found worked. Also go on a bland diet, avoid legumes, grains if you can, I found nut meal porridge (high in calories and fats) to be great, starches, carbs, sugars, flared mine (you might be backwards and find with rice porridge but not nuts, we are all a bit different). You can find all kinds of recipes for it. Roasted meats/crock pot meats made super soft and easy to digest like a shredded slow cooker roast/chicken. Baked avocado with eggs inside, Scrambled eggs, I found made extra moist with a bit of almond milk/coconut milk whipped in before cooking and using a microwave omelette maker to prevent the "hard edges". I stew in greens into these like canned spinach to get my greens and have spoons of  nut butters for desserts like almond butter (avoid peanut butter it is a legume). Avocado is also quite gentle on the guts for most people and chock full of healthy fats and calories.

      Greens need to be cooked to mush so the tough fibers do not irritate your gut....hate to say it but you should be able to "swish" the food in your mouth before you swallow so eating will take a bit longer.
      AS you heal you will be able to eat a bit more like grain free breads, soups, stews, roast, sheet pan meals, stir fry, egg dishes, etc.

      If you having issue with diarrhea try a higher potassium diet or taking some, it helps dry out your stools. I found using 2tbsp of coconut flour in my eggs to make them set up added fiber and potassium. I have various grain free flat breads on this base also,

      Keep a food diary and find your triggers going to a base super simple diet,
      https://www.wikihow.com/Keep-a-Food-Diary


      Taking BCAAs or bit of protein powder/protein bars between meals can help with preventing weight loss, I just Julian bakery bars, or protein powders like Jarrow Pumpkin, and my own blends....you can probably get by with blends like I used to from Nutra-key V-pro and MRM Veggie Elite.
    • Hi Bree, You need to avoid wheat, rye, and barley, including malt.  It is best to avoid oats and dairy for a few months at the start of the gluten-free diet.  Personally I would avoid soy also. The best thing though is to just stop eating processed foods for a few months at least.  And don't eat in restaurants and also cook your own meals.  A simpler diet is best for healing.  Plus if you are getting sick from a food ingredient it is simple to figure out.  Eating processed foods (like gluten-free pizza) etc you could take in 100 more ingredients in a day.  That means you have to figure out which of those 100 ingredients is making you sick.  Not an easy task.  So I suggest you simplify your diet and learn the easy/fast  way.  Eating out at restaurants will slow your healing/learning down. It is better to take some food with you if you are going out.  Nuts, fruit, hard boiled eggs are easy to carry around.
    • Please don't waste your money on Enterolab.  They have never submitted any proof for peer review verification.  They are glad to take your cash though. I am not familiar with the MC diet.  But many celiacs avoid additional foods beyond just gluten.  I don't eat dairy, soy, nightshades, carrots, celery, oats.  Probably a few I am forgetting.  Many others here avoid other foods too.  There is still plenty to eat though.  Meats and veggies, nuts, eggs etc.  There is almond milk and coconut milk in the stores.  What is helpful on starting the gluten-free diet is to avoid all processed foods and stick with whole foods.  Do all your own cooking and don't eat at restaurants for 6 months.  In celiac, even a small crumb can kick off the immune system reaction.  So we have to avoid cross-contamination of foods.  So no shared condiments jars like mayo, peanut butter, etc.  There is a very short list of ingredients on whole foods. Simplifying your diet is a good thing.  The fewer foods you eat the easier it is to identify a problem food.  Sometimes an elimination diet is helpful to find problem foods. We have a member ennis-tx who has ulcerative colitis.  Ennis eats a keto/paleo/gluten-free/df diet.  Maybe his experience would be helpful to you.  He also has lots of recipes because he is a chef. I'll try and point him to this thread.
    • Those food sensitivity tests on Enterolab are not accepted by actual Celiac doctors.  This sites probably gets a percentage of everyone they send to get the bogus tests.     And I am going to guess that 11 days will not be enough to heal the colitis.  Why not try a restrictive diet for a month or two and see if it helps?  I am surprised that your doctor knew enough to biopsy you for microscopic colitis but didn't advise any diet changes.  Did he say how bad or wide spread it was? 
    • There you go.  The gluten-free diet has helped you.  You might not need,that official diagnosis.   After all, the bottom line is achieving good health.   P.S.  Those Romans went everywhere!  I think now, northern  India (where they grown wheat and not rice) has an even higher rate of celiac disease than Europe.  
  • Blog Entries

  • Upcoming Events