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TrillumHunter

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Yesterday I woke up feeling awful--achy, stiff and bloated. I was back in the bathroom all am. Kind of just how it used to be everyday. :( I swear I didn't knowingly ingest gluten. When I said that to my husband this morning he told me, "Yeah, but your face doesn't lie." I am so swollen and puffy! I am wondering about two things. I made some Bob's Red Mill gluten-free cornbread and some small ricotta cheesecakes. The cornbread was truly awful but only because it was sweet and cakey. The cheesecakes were from scratch so I KNOW there was no gluten but lots of dairy obviously. Could dairy be doing this? I NEVER want to feel this way again. Good grief, how did I cope everyday? I am drinking lots of water and trying to stay moving. No more bread analogs for me. I think I'll stick to naturally gluten free stuff for a while. (like many of you recommended :blink: )

Thanks for reading my little pity party. Expect lots of cyberhugs from me if you post about getting glutened. (praying that doesn't happen to any of us!)

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Yikes. I'm sorry you feel so awful. I don't know what to say, because it seems that every person with celiac disease is unique - different random things seem to cause this gluten reaction in some people. Maybe you have a casein sensitivity? Casein is a milk protein I believe... some celiacs can't handle it and it causes a gluten-like reaction. I don't know.

I react as though I have eaten gluten after I drink red wine and I am still not entirely sure why.

I hope you start feeling better soon... I wish I had more advice for you!

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Hi

I am sorry you have to endoure this.

I've red in this forum some people having reaction with the Bob's Red Mill.

I agree with Annie-is-gluten-free everyone reacts different. For example when I accidently ingest any gluten within 5-8 minutes after I start to vomit non-stop until everything is out. Then I start to feel better, but very weak.

I am casein sensitive, therfore I am staying away of any dairy products for at least one year, that was the recommendation from EnteroLabs.

I hope you feel better and recover very soon. Drink lots of water to flush the toxin out.

Second hand gluten is it stincky!!!!!!!!

Best regards to you.


Have not I commanded you? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the LORD thy God is with you every where you go.

Jos 1:9

I can do all things thru Christ which strengtheneth me.

Phi 4:13

Blood Test: Negative 03/2006

Biopsy Negative 04/2006

Stopped gluten-free diet 04/2006

EnteroLabs: Positive 04/2007

Fecal Antigliadin IgA "Positive"

Fecal Antitissue Transglutaminase IgA "Positive"

Quantitative Microscopic Fecal Fat Score "Positive"

Fecal anti-casein (cow

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I am casein sensitive, therfore I am staying away of any dairy products for at least one year, that was the recommendation from EnteroLabs.

I've always heard that, once casein sensitive, always casein sensitive. It is like gluten that way. Are you sure Enterolab told you this? Nothing on the web site or in the information I received with my test results indicated that I could try it again later.

I'm not saying you are wrong -- I would just like to confirm it. When I questioned my soy & yeast results, since I hadn't noticed a reaction before & wondered if I could just skip them until healing takes place, they told me that my intolerances were permanent. If I omitted these items, yes, my antibodies would go down. But if I started eating them again, my antibodies would come back.

What I've heard from other sources is that if your problem is lactose you can try it again after 6 months to a year. That is because one's villi have theoretically healed & thus may be able to absorb lactose again.


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

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Hi this was the recommendations from EnteroLabs

Fecal anti-casein (cow


Have not I commanded you? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the LORD thy God is with you every where you go.

Jos 1:9

I can do all things thru Christ which strengtheneth me.

Phi 4:13

Blood Test: Negative 03/2006

Biopsy Negative 04/2006

Stopped gluten-free diet 04/2006

EnteroLabs: Positive 04/2007

Fecal Antigliadin IgA "Positive"

Fecal Antitissue Transglutaminase IgA "Positive"

Quantitative Microscopic Fecal Fat Score "Positive"

Fecal anti-casein (cow

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Pedro

Wow! I can safely say that I do not react the same way as you when i ingest gluten knowingly or not. My reactions always very from one thing to the next except maybe store bought brownies from my local 7-11 store usually reaction within 2 hours with that usually very gassy stomoch and a blow out in the AM early sometimes and Brownies are my absolute favorite sweets of all time, So I am having a heard time with that. If I do get gluten using regular items to make my spegetti usually burns going down or it could be the tomato sauce and paste that I use, I strongly believe that i have a food allergy to Tomatos, I simply can not have fresh tomatos or I do what you do when you get gluten, not immediatly but soon after along with very gassy that is gets trapped in and I hurt everywhere fells like in 10 months preggers. I have tomotey items like katch-up tomato, suace, tomato paste usually I just get gassy, but I do get very sick with the real thing. I aslo get very gassy with avacodos, so I have read that tomatos and avacodos are just some of the items listed for Latex allergies, but I'm ok with bannas and kiwi (well that I know of)

Donna


Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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Pedro

Wow! I can safely say that I do not react the same way as you when i ingest gluten knowingly or not. My reactions always very from one thing to the next except maybe store bought brownies from my local 7-11 store usually reaction within 2 hours with that usually very gassy stomoch and a blow out in the AM early sometimes and Brownies are my absolute favorite sweets of all time, So I am having a heard time with that. If I do get gluten using regular items to make my spegetti usually burns going down or it could be the tomato sauce and paste that I use, I strongly believe that i have a food allergy to Tomatos, I simply can not have fresh tomatos or I do what you do when you get gluten, not immediatly but soon after along with very gassy that is gets trapped in and I hurt everywhere fells like in 10 months preggers. I have tomotey items like katch-up tomato, suace, tomato paste usually I just get gassy, but I do get very sick with the real thing. I aslo get very gassy with avacodos, so I have read that tomatos and avacodos are just some of the items listed for Latex allergies, but I'm ok with bannas and kiwi (well that I know of)

Donna

Hey Donna, that's funny that you mention having trouble with tomatoes... come to think of it I have heard a lot about celiacs and even people with simple wheat intolerance having a lot of issues with tomatoes. Sounds like you should stop eating them! Sucks, eh? Stupid food intolerances.

I know of an AMAZING recipe for gluten-free brownies. Trust me... my step-sister likes them even more than regular brownies and she is basically a chocolate coinnoisseur. I don't have the recipe with me (I'm at work) but I can message it to you if you are interested! Seriously.... you'll never go back to glutenous brownies.

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hi, i cheated the other day it was mexican night and im sick of corn tortilla's so i had one of my hubbies flour wraps, yum it was good but it burnt going down and i had hearburn till the next afternoon, not to mention that my feet and hads get swollen and itchy, oh man does that suck. everybody gets different things after eating gluten. good luck!!


Nadine

mom of 4 great kids - 2 diagnosed with autism and 2 typical kids (thank goodness)

all this started after my hysterectomy in March of 2006

G.F. since Feb 2007

Soy free since April 2007

Blood work was negatvie (after 2 weeks of being on the gluten-free diet)

entrolab results:

Antigliadin 9 (normal <10)

HLA-DQB1 Allele 1 - 0302

HLA-DQB2 Allele 2 - 0502

HLA-DQ 3,1 (subtype 8,5)

carrying one celiac gene and one gluten intolerant gene

nurse at entrolab figures i caught this early and dont eat gluten anymore

life is like a box of chocolates;sometimes you get stuck with the yukky coconut fillet one

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However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

Please tell me that I interpreted the results okay and I can re-introduce dairy in a year or so.

Please, Please.

I don't think that's what it means. It says if your test was NEGATIVE and the food is suspect, you should remove it from your diet for 1 year. Your test was clearly positive. :(

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Pedro

Wow! I can safely say that I do not react the same way as you when i ingest gluten knowingly or not. My reactions always very from one thing to the next except maybe store bought brownies from my local 7-11 store usually reaction within 2 hours with that usually very gassy stomoch and a blow out in the AM early sometimes and Brownies are my absolute favorite sweets of all time, So I am having a heard time with that. If I do get gluten using regular items to make my spegetti usually burns going down or it could be the tomato sauce and paste that I use, I strongly believe that i have a food allergy to Tomatos, I simply can not have fresh tomatos or I do what you do when you get gluten, not immediatly but soon after along with very gassy that is gets trapped in and I hurt everywhere fells like in 10 months preggers. I have tomotey items like katch-up tomato, suace, tomato paste usually I just get gassy, but I do get very sick with the real thing. I aslo get very gassy with avacodos, so I have read that tomatos and avacodos are just some of the items listed for Latex allergies, but I'm ok with bannas and kiwi (well that I know of)

Donna

I cannot have tomato products either. Oranges will bother me too. Anything really that is high in acid.

Gail


Gluten Free since Jan. 06

Gluten intolerant. DQ 0301 DQ 0602

Lactose intolerant.

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Oh men :o , you burst my bubble. This diet sucks!!!!!!!!!!!

Between the gluten and the dairy the pain the itching AHHHHHHHHHHHHHHHHHHHH

That felt better.

Thanks for the good or bad news!!!!!

Best regards to everyone.

well back to the drawing board!!!!!!! :rolleyes:


Have not I commanded you? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the LORD thy God is with you every where you go.

Jos 1:9

I can do all things thru Christ which strengtheneth me.

Phi 4:13

Blood Test: Negative 03/2006

Biopsy Negative 04/2006

Stopped gluten-free diet 04/2006

EnteroLabs: Positive 04/2007

Fecal Antigliadin IgA "Positive"

Fecal Antitissue Transglutaminase IgA "Positive"

Quantitative Microscopic Fecal Fat Score "Positive"

Fecal anti-casein (cow

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Oh men :o , you burst my bubble. This diet sucks!!!!!!!!!!!

Sorry, lol...that's me, the bearer of bad news, lol. :P

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Oh you are the best :lol::lol::lol:

I am still laughing :lol::lol::lol:


Have not I commanded you? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the LORD thy God is with you every where you go.

Jos 1:9

I can do all things thru Christ which strengtheneth me.

Phi 4:13

Blood Test: Negative 03/2006

Biopsy Negative 04/2006

Stopped gluten-free diet 04/2006

EnteroLabs: Positive 04/2007

Fecal Antigliadin IgA "Positive"

Fecal Antitissue Transglutaminase IgA "Positive"

Quantitative Microscopic Fecal Fat Score "Positive"

Fecal anti-casein (cow

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Brownies, where :rolleyes: Must have brownies :rolleyes:

YES! I would love to have a gluten-free brwonie mix. reciept that is.

Oh sorry I love them too much I can't splee correctly that lack of brownies is affecting my brain! did i say correctly?

Oh trust me I don't or at least don't eat tomatos at all knowingly any way if they are in my meals at a restraunt I prombtly take them out an look for the seeds as well, and I do ask for no tomatoes in my meals sometimes they understand other times they don't.

My mom has always made fun of me for not liking tomatoes in the first place, she has asked me if my problem could be gall bladder issues, she had gall bladder surgery when I was real little or was it before I was born can't remember I was'nt there. My grandma had hers removed when i was 19yrs old. But I don't have the symptoms I look at the web for it.

later,

Donna

Brownies any one


Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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LittleD... if your life can not be lived without the brownies and enjoy the "cake" brownies the mix from "cause your special" fooled my hubby :rolleyes:


Just my .00000002 cents worth

If I knew what I was doing years ago I would have half a clue today!

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