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Glutenfreefamily

When Someone Has Very Possible Symptoms Of Celiac/gluten Intolerance...

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I have a habit of when I feel like I have seen the light that I love to help others to feel good also. Well honestly no one seems to want to know about it :rolleyes: With kids I mention it always but with adults sometimes I hesitate to mention it since they dont want to change their foods no matter how much I hear about their physical ailments. Two have seemed very interested in it till they found out there is no magic pill and it requires a diet lifestyle change.

I know its hard to take at first but i just wish someone could have told me about it 10 years ago. I get really frustrated when its with kids, As a parent myself I try to do everything I can for them for their health. I'm getting sick of getting blown off though <_< my husband tells me I shouldn't bother with it. I just have a hard time doing that knowing their suffering. I have always had the mother personality and want to take care of others and help them.

Do you share with others? How have they responded?

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I always tell people. Even if its just someone saying 'y'know, I feel real bloated today' I pop up with, 'have you ever figured you might be gluten intolerant? Lotta people are...'

I mention it every time I get chance. Little and often seems to percolate gently into peoples brains... more often than not, people will reject a new concept the first time they hear it no matter what its about, and about 95% of the time, you let them sit and think about it they'll start to come around to it on their own when they've had time to think about it rationally. Its the way I have to do things with my wife- tell her something, then back off for a day or so and let her think about it, and then bring it up again.


I'm really just here about my wife. Its all her fault!

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Yup, I always share with others too. If they do not want to think about what I tell them, then that is up to them. It has been proven now that gluten intolerance is not rare and the only way people will find out is by us explaining it to them. Doctors certainly are not "in the program" as of yet. Just tell them you are working along beside their guardian angel! :)


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I usually focus on how I myself feel better and my symptoms have improved. Like "I used to be bloated all the time too, but luckily it has gone away since I discovered that I was reacting to gluten" or something like that. Then if people are interested they ask questions and if they're not, I don't pursue it further.

Pauliina

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I usually focus on how I myself feel better and my symptoms have improved. Like "I used to be bloated all the time too, but luckily it has gone away since I discovered that I was reacting to gluten" or something like that. Then if people are interested they ask questions and if they're not, I don't pursue it further.

Pauliina

Good-one Pauliina (lol) reverses sigology :)

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In my excitement about feeling better, I have mentioned it to a few people. The thing I am learning is that people aren't very receptive about it. Once they find out what is involved, their health isn't worth it. It saddens me, because it is family and I know they have it. I guess that I will continue to live my life and let them live theirs. My question is, when they complain about how they feel, should I care or tell them it is their choice and I don't want to hear it? Probably harsh, but when people don't help themselves, it frustrates me.

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Thanks Everyone :) I met someone who was skinny as a rail, said she couldnt put on weight, had brain fog, arthritic joints and was always nauseous with upset stomach. She said she didnt know what to do about it. I mentioned to her about the gluten free diet and that might take care of it. I always mention this site to since they might want to investigate on their own but she said she was too weak at first to make food then she said it is probably expensive. So I figured I left the little mark there and hopefully she will investigate it one day. I always mention it to parents of kids with adhd, autism, or behavior problems. My sister shared it with her school district about a casein free gluten free diet since none of the other social workers knew it might help the kids including my sister.

binky- I dont know what to tell you either, Im dealing with the same thing. I dont know whether to blow them off or listen to them over and over again.

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I haven't read all the postings for this, as I have to go to work in a minute. But I feel we have to share the information about gluten.

I have just been reminded in an article I have read, that 1 in 100 can have coealiac, and 1 in 10 can be gluten sensitive (Intolerant). I feel we need to let people know. I passed this article to three other people in total at work yesterday and it had a list of symptoms, and all three people said "hang on a minute I've got most of those!"

So I will tell them and leave it to them to make up their own minds about what they would like to do about it.

Cathy

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I haven't read all the postings for this, as I have to go to work in a minute. But I feel we have to share the information about gluten.

I have just been reminded in an article I have read, that 1 in 100 can have coealiac, and 1 in 10 can be gluten sensitive (Intolerant). I feel we need to let people know. I passed this article to three other people in total at work yesterday and it had a list of symptoms, and all three people said "hang on a minute I've got most of those!"

So I will tell them and leave it to them to make up their own minds about what they would like to do about it.

Cathy

Thanks Cathy

I am going to share too, I just feel like the celiac poster child sometimes :)

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