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Ursa Major

Daughter's Wedding

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Glad everything worked out and no one got sick.

See you tomorrow. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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As promised, here is a picture of me in my wedding outfit as my avatar.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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U,

I'm so glad it all worked out fine--and even the weather cooperated!

You look beautiful in your outfit :)

Get some rest now--it's been a trying few weeks for you.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Dear Ursa,

You look so pretty in your dress! I am also relieved to hear everything went well! It is wonderful that the wedding went smoothly. The weather seemed to match the occaision! You certainly have earned that trip to Germany! When is it?

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Very nice outfit Ursa. Glad the wedding is over and your life can get back to somewhat normal.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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YAY! You made it! Outfit looks great, and also COMFY!

Get some well-dserved rest, you really need it....

hugs!


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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YAY! You made it! Outfit looks great, and also COMFY!

Get some well-dserved rest, you really need it....

hugs!

Yes, that was the first fancy outfit I didn't feel like a freak in! Even though the others looked nice, this was comfortable and practical as well as fancy enough. I didn't hate wearing it, usually I hate fancy clothing.

If only my husband would understand that I am exhausted, mentally and physically. I just couldn't bring myself to go to church today, I was exposed to crowds for two days, having to worry about acting appropriately, smiling, giving a long speech, dressing up, having to worry about food, getting too much attention............ it all gets to me. I was all 'crowded out'! :blink:

But I had to listen to a sermon this afternoon about how it is important for me to go to church even when I am not feeling my best. Apparently I am entirely too carnal and need to become more Christlike. Of course, he is perfect and doesn't need changing at all. :rolleyes:

Anyway, here I am not allowed to just relax and take it easy for a while. Three and a half weeks until I go to Germany, yay! There I am allowed to just be myself, there are so many Aspies in my family, to them I am perfectly normal.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Yes, that was the first fancy outfit I didn't feel like a freak in! Even though the others looked nice, this was comfortable and practical as well as fancy enough. I didn't hate wearing it, usually I hate fancy clothing.

If only my husband would understand that I am exhausted, mentally and physically. I just couldn't bring myself to go to church today, I was exposed to crowds for two days, having to worry about acting appropriately, smiling, giving a long speech, dressing up, having to worry about food, getting too much attention............ it all gets to me. I was all 'crowded out'! :blink:

But I had to listen to a sermon this afternoon about how it is important for me to go to church even when I am not feeling my best. Apparently I am entirely too carnal and need to become more Christlike. Of course, he is perfect and doesn't need changing at all. :rolleyes:

Anyway, here I am not allowed to just relax and take it easy for a while. Three and a half weeks until I go to Germany, yay! There I am allowed to just be myself, there are so many Aspies in my family, to them I am perfectly normal.

Dear Ursa,

Your husband appears to be under the impression he is better than you. Going to church does not make someone a good person. You can show up every Sunday, but if you are a jerk the rest of the week, what is the point? Sunday Christians are really annoying. They think they do no wrong. Maybe people can be fooled, but not God! ;) Just look forward to that trip to Germany!

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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I remember very vividly the times that my EX husband would sit me down and lecture me about most every decision that I made. It is not fun and it does not help one's self esteem. I hope that you are either in counseling or thinking about it. I know that you feel that you have his control issues under control (or at least it seems that is how you feel) but I think that it is important to think about getting some help for yourself. I was 53 when I told my husband to leave. I was very ill. The doctor did not think that I would be able to work full time. I had been a stay at home mom for 18 years and therefore did not have any kind of money set aside for retirement and no real prospects for full time employment. BUT I knew that my mental health was equally as important as my physical health. I went into full time counseling and finally was diagnosed with celiac disease. My life changes were not a quick fix. The divorce was hard. Having three children, two of whom were still in high school, and not not knowing what was physically wrong with me was really difficult. Plus I needed money to support them. My EX gave me $500 a month for support. He refused to give me alimony. My husband insisted that I was a hypocondriah (no clue as to how to spell that word). BUT I did turn my life around. I was finally diagnosed in 2002, one year after the divorce was final. I had already started to heal mentally and in 2002, I began to heal physically too. I am not saying that leaving him is the answer for you BUT I am saying that YOU need to HEAL emotionally. You have lots of stuff besides celiac disease to make your life difficult but you still need to heal emotionally. Both of you have issues to deal with. He has control issues and probably anger issues to deal with. Nothing will change in your life until you are willing to take control of your life and that begins by getting yourself some emotional support. This site is a great place to start but we are not able to provide you with the kind of guidance and counseling that will get you on the road to healing. I don't mean to be preachy. I certainly do not have all the answers nor do I pretend to have them. I just know that living with someone who lectures you, who controls you, is not good for you. You need to make the decision to start healing. May God bless you with courage and confidence to take back your life.


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Dear Sparkles,

I am stuck living with my parents, and they mentally abuse me all the time. It starts to tear you down. You cannot heal when people assume you are just a hypochondriac, and ignore your dietary needs. No one understands how impossible a situation it is. You have been there. Ursa is there. I am there. It is good to learn others have overcome this.

I can get hope from that. All of that negativity makes you ill mentally and physically. I was forced to go to counseling and psychotherapy by my parents. It was a waste of time and money. When you are physically ill, and no one believes you, and they just tell you that you are nuts, everything seems so hopeless. Your experience shows that there is a light at the end of the tunnel. Thank you for sharing.

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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