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Jo.R

This Is My Life

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When I first found out I had celiac disease I was a mess, when I finally got a grip I lived on the internet (this disease had to truly be difficult for those who were dx before the internet). I read books on the disease, and basically submerged myself in everything to do with it. It was always on my mind. Celiac disease was who I was. But I have started to move past that. I'm educated about what I have, I'm learning to cook (I had fried chicken, country gravy and yellow cake this week), I now "do gluten-free" without thinking about it. I don't think much about it during the day. I have become a person with a life again. I just happens to have celiac disease, and it's not that big of a deal.

Thank-you to all of you who put yourselves out there to help the newbies get past the hard part.


Stomach problems began November of 2005

Gall bladder removed April 2006

Positive Blood test October 2006

Refused endoscope

Gluten-free since January 21, 2007

Positive reaction to diet

The Lord gave, and the Lord has taken away; Blessed be the name of the Lord. Job 1:21b

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When I first found out I had celiac disease I was a mess, when I finally got a grip I lived on the internet (this disease had to truly be difficult for those who were dx before the internet). I read books on the disease, and basically submerged myself in everything to do with it. It was always on my mind. Celiac disease was who I was. But I have started to move past that. I'm educated about what I have, I'm learning to cook (I had fried chicken, country gravy and yellow cake this week), I now "do gluten-free" without thinking about it. I don't think much about it during the day. I have become a person with a life again. I just happens to have celiac disease, and it's not that big of a deal.

Thank-you to all of you who put yourselves out there to help the newbies get past the hard part.

I know this is different because it was a choice that I made long ago, but I had the same experience with being a vegetarian. My whole identity was wrapped around it when I was young, but as I got older, it was so effortless that I stopped thinking about it. Maybe someday I will be like that with the gluten-free diet, but right now it really occupies my thoughts quite a bit.

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I can relate to this. Prior to being diagnosed lmy ife went on, knowing something was not right, but upon diagnosis my whole life totally revolved around gluten and the diet. I had to put my life on hold until I could sort out what needed to be done.

Now just over a year I am back living, have been for a while. I don't think about the disease, nor do I overly think about food. It is second nature to me now, I just know what I can and can't eat (I read a few labels, but not many). I have lost the stress that was there orginally and am totally at ease with my diet.

Rarely, but it happens, I sometimes stress out and want to eat something illegal. But I dig my heels in and ignore those thoughts. I seem to be hell bent on destroying my diet after I have inadvertently ingested gluten. Strange that, maybe misery likes company, or else I am feeling so miserable what would feeling a bit more miserable matter.

Cathy

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When I first found out I had celiac disease I was a mess, when I finally got a grip I lived on the internet (this disease had to truly be difficult for those who were dx before the internet). I read books on the disease, and basically submerged myself in everything to do with it. It was always on my mind. Celiac disease was who I was. But I have started to move past that. I'm educated about what I have, I'm learning to cook (I had fried chicken, country gravy and yellow cake this week), I now "do gluten-free" without thinking about it. I don't think much about it during the day. I have become a person with a life again. I just happens to have celiac disease, and it's not that big of a deal.

Thank-you to all of you who put yourselves out there to help the newbies get past the hard part.

I so agree with you. The first two months i wanted to read everything, i had to read every post on this forum and others, i was always looking stuff up, Ibet 6-7 hours of my day was looking stuff up or reading about it. I am still reading and thinking about it alot but not nearly what i was. I cant wait to get the cooking down pat, and to make fried chicken and country gravy(u can pass me the recipes lol).

I think if it was only me with the diesease, then i could handle it better, but it is so hard with an teenager, it seems i want to get him on the right track more then me, i dont want him to suffer like i did for so many years.

But like we were talking last night, he said he couldnt think of anyone else that he would rather go threw this journety with besides me. Who i wanted to add, is finally starting to realize the whole gluten and cc issues.

paula


gluten, casein and soy free

on low carb/low sugar diet

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Glad to hear you've gotten past the hard part! I think I have too...and my health is so, so amazingly better now.

If it weren't for this board, and my many months of lurking, often in tears, I hate to think what kind of awful shape I'd be in today.

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I am glad for you. I also agree with you. At the beginning is very hard, but as time goes by life gets easier living with celiac disease.

Best regards to you.


Have not I commanded you? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the LORD thy God is with you every where you go.

Jos 1:9

I can do all things thru Christ which strengtheneth me.

Phi 4:13

Blood Test: Negative 03/2006

Biopsy Negative 04/2006

Stopped gluten-free diet 04/2006

EnteroLabs: Positive 04/2007

Fecal Antigliadin IgA "Positive"

Fecal Antitissue Transglutaminase IgA "Positive"

Quantitative Microscopic Fecal Fat Score "Positive"

Fecal anti-casein (cow

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I'm so happy that you have have accepted this disease and moved on with your life. Celiac disease should not define you or anyone else. My son is the one with Celiac disease and I also plan on getting tested. I am getting really used to cooking gluten free, avoiding cross-contamination, and so on. However I am still obsessed with his disease. I spend tons of time on this message board, I think about it a lot, I read about it quite a bit, and I am totally obsessed with food shopping and cooking. I spend tons of money on food, and visit many stores both online and actual stores. I spend hours each week surfing the web for recipes. I call a few companies each week to find out about products. I hope to be where you are soon. I think that it's a process. The first day my son was diagnosed I thought that his diagnosis was the end of good food. I gave away garbage bags full of food and went to Wild Oats and bought everything with the label gluten free or wheat free. The next day I found you wonderful people and began to get a real picture about what the diet and gluten free life is really like. The third day cross contamination dawned on me. A week later I tried gluten free baking recipes. A couple more weeks later I started converting gluten-containing recipes to gluten free recipes. Today I am emailing my friend a recipe for gluten-free brownies so that she can convert them to gluten brownies! :lol: Sorry for rambling. My point is that it is a journey with many small steps and stages throughout the way.


Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.

Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

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I have no real input. I just wanted to say that it really picks me up to read stories like these, particularly as someone who hasn't reached the plateau yet. I still wake up some days wanting to break with the diet or needing to remind myself that "food is not for pleasure anymore". These stories give me some hope, even if the circumstances aren't always shared.


Dx wheat allergy, possible Celiac disease. 

Dx Cyclic Vomiting Syndrome with wheat as a trigger. 

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