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griffmom

Brand New To The Celiac Way Of Life

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Good morning all :-)

I imagine my story is pretty common these days. Hubby has been plagued with headaches

since he can remember. He literally had one without fail every day of his life. It was

just a matter of how bad. He also had the skin issues, especially in the winter. We

had been to our family practice doc numerous times trying to get relief and kept

trying different things. Well he was so miserable he decided to try a chiropractor

and when they did his weight, he was horrified.

He came home that day and said, "That's it, I'm going on a diet". He did the research

and started the South Beach diet. By the end of week one/ beginning of week two he

said," I have not had a headache once today or yesterday!!" This was MONUMENTAL!!

He cheated one day and got a burrito for lunch and within 30-45 minutes he had a splitting

headache and no energy. He started researching the South Beach website and found

out about Celiac disease and how many people have found out they are either allergic

or sensitive to gluten as a result of going off the processed foods and flour.

He's been living gluten free for the better part of a month now and has lost 20 pounds so far.

He looks great and feels so much better. We still have some items in the house that the

kids eat but I'm trying to adopt new ways of meal preparations and have become a

"label addict" I've found making the effort to prepare him healthy good-tasting meals

and researching different foods is the best way I can tell him," I love you." I want him

to be as happy in this life as possible and if that means learning a new way to cook,

eat.... LIVE.. than I'm ready to learn...........

Does anyone have good practical advice for books or other resources they found helpful

starting out? I've been really pleased with the gluten free section at our local Meijer

and we've gone to a whole foods store and Trader Joes as well. We're in Indiana and

healthy eating is still something that takes concerted effort but I'm happy for what I

have found so far. I'm contemplating just having a gluten free home but that's going

to require a much higher food budget!! I just keep telling myself that in the long run,

it's probably going to benefit all of us. My biggest thing is not having too many "stinker"

meals that we would rather fast than eat!!!

Thanks for any advice/support you can offer me

Griffmom in Indy

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Welcome and congrats! I love The Gluten Free Gourmet cookbook. I've made most of the cakes in there and they've all turned out great. The gluten free diet can be more expensive at first mainly because people try to replace all their old gluten foods with gluten-free ones. With a bit of thinking outside the box, you can reduce these costs. Like using corn tortillas for PB&J wraps rather than sandwich bread. Or eating a baked potato with toppings for lunch instead of a sandwich. I do very little shopping at a gluten free store and buy mostly "mainstream" brand products so I wouldn't say my food costs have increased much at all. For things like rice flour, I go to the Asian food section and buy it in bulk for cheap (4lbs for $2).


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Guest j_mommy

If you want to read up on the subject.....

Living Gluten Free for dummies by Dana Korn. It's humerous and has lots of good info and some great recipes.

Celiac Disease: A Hidden Epidemic by Dr. Peter Green is also great.

I bought both together on Amazon for about $30 as a pair.

Good luck! :D

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Good morning all :-)

I imagine my story is pretty common these days. Hubby has been plagued with headaches

since he can remember. He literally had one without fail every day of his life. It was

just a matter of how bad. He also had the skin issues, especially in the winter. We

had been to our family practice doc numerous times trying to get relief and kept

trying different things. Well he was so miserable he decided to try a chiropractor

and when they did his weight, he was horrified.

He came home that day and said, "That's it, I'm going on a diet". He did the research

and started the South Beach diet. By the end of week one/ beginning of week two he

said," I have not had a headache once today or yesterday!!" This was MONUMENTAL!!

He cheated one day and got a burrito for lunch and within 30-45 minutes he had a splitting

headache and no energy. He started researching the South Beach website and found

out about Celiac disease and how many people have found out they are either allergic

or sensitive to gluten as a result of going off the processed foods and flour.

He's been living gluten free for the better part of a month now and has lost 20 pounds so far.

He looks great and feels so much better. We still have some items in the house that the

kids eat but I'm trying to adopt new ways of meal preparations and have become a

"label addict" I've found making the effort to prepare him healthy good-tasting meals

and researching different foods is the best way I can tell him," I love you." I want him

to be as happy in this life as possible and if that means learning a new way to cook,

eat.... LIVE.. than I'm ready to learn...........

Does anyone have good practical advice for books or other resources they found helpful

starting out? I've been really pleased with the gluten free section at our local Meijer

and we've gone to a whole foods store and Trader Joes as well. We're in Indiana and

healthy eating is still something that takes concerted effort but I'm happy for what I

have found so far. I'm contemplating just having a gluten free home but that's going

to require a much higher food budget!! I just keep telling myself that in the long run,

it's probably going to benefit all of us. My biggest thing is not having too many "stinker"

meals that we would rather fast than eat!!!

Thanks for any advice/support you can offer me

Griffmom in Indy

Dear Griffmom,

It is nice to see a fellow Hoosier on here! :) I have a present for you! It is to welcome you to the forum!

I have a list that should really help. This is overwhelming. I went through this with myself eight months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margarine*

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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NoGluGirl: That is a GREAT list! And, those are fantastic ideas. I've been gluten-free almost two years, and I haven't used some of those ideas! Going to start immediately.

Also, all Hunts tomato products are gluten-free.

Softsoap antibacterial soap is gluten-free.

Watch out for Worcestershire sauce, soy sauce, things like that. Those are sources of "hidden" gluten. My dietician said that those are two biggies to watch.

The Clan Thompson software seems to be better than the Gluten Guard . . . . they used to follow up on items more often than the other. Don't know about it now. Also, they were really willing to work with you if there were items you wanted researched and listed in their next quarterly update. Don't know if you have a PDA, but they now support both Palm and (can't think of the word!) operating systems.

Don't know if this helps, but thought I'd let you know.

NoGluGirl: You ROCK!


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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NoGluGirl: That is a GREAT list! And, those are fantastic ideas. I've been gluten-free almost two years, and I haven't used some of those ideas! Going to start immediately.

Also, all Hunts tomato products are gluten-free.

Softsoap antibacterial soap is gluten-free.

Watch out for Worcestershire sauce, soy sauce, things like that. Those are sources of "hidden" gluten. My dietician said that those are two biggies to watch.

The Clan Thompson software seems to be better than the Gluten Guard . . . . they used to follow up on items more often than the other. Don't know about it now. Also, they were really willing to work with you if there were items you wanted researched and listed in their next quarterly update. Don't know if you have a PDA, but they now support both Palm and (can't think of the word!) operating systems.

Don't know if this helps, but thought I'd let you know.

NoGluGirl: You ROCK!

Dear tiredofdoctors,

You are so welcome for the information! There really are some great things we can have! I just made the best Tollhouse cookies! Chocolate Chip are my favorites! They are so good right out of the oven! I had not had any since I went gluten-free back in August of last year.

I was not able to access the Clan Thompson list the last time I tried. I know one thing, I will not drink Coke.

It goes by Codex. Even 0.02 percent ppm is too much gluten! I get violently ill from it.

There is great news about soy sauce and worchestershire sauce. Lea & Perrins has gluten-free everything in the U.S. In Canada and other countries, their products are not safe, though. LaChoy Soy Sauce and Wal-Mart's GV brand are safe. Chinese food is my life blood. I have not eaten it since going gluten-free. I plan on making some this week! Crab and shrimp rangoon, and spring rolls! Also, Chinese food often requires cooking sherry. Wal-Mart carries Holland House Cooking Sherry. It is labeled gluten-free.

Sincerely,

NoGluGirl

P.S. Thank you for the compliments!


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Dear tiredofdoctors,

You are so welcome for the information! There really are some great things we can have! I just made the best Tollhouse cookies! Chocolate Chip are my favorites! They are so good right out of the oven! I had not had any since I went gluten-free back in August of last year.

I was not able to access the Clan Thompson list the last time I tried. I know one thing, I will not drink Coke.

It goes by Codex. Even 0.02 percent ppm is too much gluten! I get violently ill from it.

There is great news about soy sauce and worchestershire sauce. Lea & Perrins has gluten-free everything in the U.S. In Canada and other countries, their products are not safe, though. LaChoy Soy Sauce and Wal-Mart's GV brand are safe. Chinese food is my life blood. I have not eaten it since going gluten-free. I plan on making some this week! Crab and shrimp rangoon, and spring rolls! Also, Chinese food often requires cooking sherry. Wal-Mart carries Holland House Cooking Sherry. It is labeled gluten-free.

Sincerely,

NoGluGirl

P.S. Thank you for the compliments!

Does Coke have gluten?

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Does Coke have gluten?

Dear barbara123,

I think I drank it before and I was alright. It is just that I have heard negative things about Codex. I am nervous about any gluten. They said on the site I went to called Gluten Free in SD that they keep their amount of gluten below 0.02 ppm, but I am not sure I should drink it now. Would anyone like to add to this?

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Dear barbara123,

I think I drank it before and I was alright. It is just that I have heard negative things about Codex. I am nervous about any gluten. They said on the site I went to called Gluten Free in SD that they keep their amount of gluten below 0.02 ppm, but I am not sure I should drink it now. Would anyone like to add to this?

Sincerely,

NoGluGirl

Thank you, i was out camping with my husband for three days, drank coke, thought i was being good. Woke up this morning feeling bad, tired, achy, headache, and fog head. I can't remember anything, afraid to go anywhere, afraid will be sick in public.

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Thank you, i was out camping with my husband for three days, drank coke, thought i was being good. Woke up this morning feeling bad, tired, achy, headache, and fog head. I can't remember anything, afraid to go anywhere, afraid will be sick in public.

Dear barbara123,

I have drank it in the past, and am extremely sensitive. I did not get sick from it, though. However, after reading that they go by Codex standards, I decided not to drink it as a precaution. I am not sure if it is okay now. Of course, I have heard others say they drank it with no trouble. There are other things in the Coke that you might be reacting to. It is difficult to say, since I am not certain about this, as I had said before.

I react violently as well. I start to break out in a sweat, shake all over, sometimes my hands go numb, I get really nauseated, have the sudden urge for a bowel movement, and if I do not get a promethazine down fast enough, I begin having dry heaves that are so painful, they make it feel like my insides are imploding. I am not sure if Codex standards are unreliable here, but I know they are in Europe. I guy on here told about that. I think I will ask around and see if there has been a consensus reached.

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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He came home that day and said, "That's it, I'm going on a diet". He did the research

and started the South Beach diet. By the end of week one/ beginning of week two he

said," I have not had a headache once today or yesterday!!"

Interesting. This was my experience when I went on the Atkins Diet a few years ago - it never occurred to me that the issue was gluten, not carbs even though I occasionally "cheated" and had sushi with sushi rice, with no ill effects.


2007 - dx'd with Graves' Disease

Suspected DH (no biopsy)

Tested negative for celiac (after gluten free two months)

2012 - Gluten free again after suggestion it might help my thyroid symptoms. Many strange one-off symptoms cleared up. Brain fog gone.

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If you want to read up on the subject.....

Living Gluten Free for dummies by Dana Korn. It's humerous and has lots of good info and some great recipes.

Celiac Disease: A Hidden Epidemic by Dr. Peter Green is also great.

I bought both together on Amazon for about $30 as a pair.

Good luck! :D

You are so right! I have recently read both of those books and the Gluten Free for Dummies is super. I really enjoyed the read and would recommend it to anyone starting out on this "adventure"... Great advice!


gluten free since 7-07 with positive dietary response

Enterolab results positive for gluten sensitivity

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