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Misdiagnosis

Jyvett

By Jyvett
in Dermatitis Herpetiformis

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Jyvett Newbie
Jyvett
Posted

Hi! I have just had blood work done to check for Celiac disease. I have not received my results yet but have a lot of the symptoms. My question is concerning my sister who also has a host of these symptoms and what has been diagnosed as chronic hives. They have not found any cause for these outbreaks and none of the meds they have tried seem to be effective for them other then steroids. Is it possible that what she has is DH? I have not read anything anywhere on it being mistaken for hives but the pictures I have seen look like what she gets. Thanks!

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Happycat Rookie
Happycat
Posted

Hi, I am also suffering from chronic hives right now. I have had them about 10 weeks. I've been to 2 internists and 2 allergists. If your sister's doctor said it's hives then she probably has hives. Has your sister been to allergist? They can work with the antihistamines to get the right combo of drugs for her. They did for me, well to keep me comfortable most of the time. I still have my times during the day or night when I get a little itchy!! Sometimes my lips swell, not fun!!

I also have autoimmune thyroid disease and the doctor(s) told me that 30-35% of people with this also get chronic hives. They also told me more often than not you never find the cause(90-95% of the time).

Enjoy your weekend! :P

Lisa

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3boyzmom Newbie
3boyzmom
Posted

Here are some articles regarding urticaria (hives) and celiac disease:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I have also encountered several people who have had this experiece as well... antecdotal evidence.

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Jyvett Newbie
Jyvett
  • Author
Posted

Hi! Thanks so much for your reply. I have forwarded the links to my sister. Sure hope she can find something that can work for her as well as you have. At least maybe you will be an incentive for her to get into an allergist and try differant :D meds. Thanks again!

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