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So here's the deal. I was out on a random first date, it was a strange whirlwind around around Kansas City. About 2am we stopped at a convenience store and my date got a Twix (you know what that means, :D ) I had told her about my gluten-free diet (infact we were going to eat at Waldos Pizza but got side tracked :rolleyes: ) Anyway, back on track, I asked to open the package for her--a cleaver move on my part--which gave me the opportunity to read the label. I'm convinced that my date must have drugged me or I went temporarily blind but I read the ingredients and somehow FAILED to read the words "wheat flour" in the ingredients. I then went ahead and ate my half of the Twix. We went the rest of the night, the next day and the 7 hr drive home to Iowa the following day and I had no problems. I was surprised that Twix were alright to eat. A few days later I got a sweet tooth over my lunch hour so I bought a Twix and ate the whole thing. Again I had no reaction. Then Friday night I got another and took the first bite and decided to re-read the label (because that's what we celiacs do, right?) Then I finally read it and spit the first bite out the window before swallowing. I rinsed my mouth out and spit and spit and spit. I couldn't believe it. Needless to say I did not react to this incident either.

So what gives? I was confirmed celiac sprue with a biopsy and positive blood tests. Yet I did not react (at least as far as I can tell) to eating a Twix on two seperate occasions, which obviously contains wheat flour.

Any coments? (aside from telling me how stupid I was for eat a freakin Twix bar in the first place!)

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Well, maybe 3 strikes and you're glutened out? Realistically, you know your body had some reaction, whether it was apparent or silent.

What's a Waldo's Pizza, gluten free?

Does your date think you're now making up celiac disease as you're eating wheat?


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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well at least you admit it was dumb to eat the Twix

Some people may not have a reaction at all, or one that is noticable. You are still doing damage even though you may not know it or feel it. Kind of like laying out in the hot sun for hours at a time with no sun screen on, you may not burn if you have that type of skin but you could be putting yourself at risk for skin cancer down the road. If you understand where I am coming from, you may not have done something horrible right now but if you start to slip and cheat it will start to happen more often and then you will do some bad damage. I know from experience, I too fell off the wagon in the begining and I learned the hard way. Just don't want to see that happen to someone else.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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Any coments? (aside from telling me how stupid I was for eat a freakin Twix bar in the first place!)

Hey, it happens. My second week on the diet, I went to PF Changs, had a gluten-free meal, avoided the wheat-based soy sauce, etc. etc. etc.

When the waitress brought the check, she brought us fortune cookies. I went on auto-pilot and took a bite of mine after reading the fortune. I couldn't believe I was so spaced out that I ate a COOKIE!

Anyway, I did have a GI reaction to the cookie, but even if you're not getting GI sick, you might still have something else going on from the Twix.

God, I'm going to miss Twix...

-Shannon


gluten-free May 17, 2007; casein-light since June 2007

Dx'ed gluten/casein intolerant by Enterolab. Family doc dx'ed "gluten sensitive" after dietary response. DQ 6 & DQ 7

8 year old daughter dx'ed gluten/casein intolerant & malabsorption by Enterolab and has been GFCL since June 12, 2007. Excellent response to diet, including growth! Tummyaches & irritability are gone! DQ 5 & DQ 6

Husband has DQ 5 (elementary, my dear Watson!). Self-diagnosed gluten-intolerant by diet response and challenge.

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I read this thread hoping that you had found some sort of gluten free candy bar that was just like a Twix ;)

Obviously that is clearly not the case (sniff sniff). Maybe you are just one of those people that doesn't get an actual GI reaction you can feel. But as others have said, regardless you are still getting damage to your small intestine.

But quick question, how in the world did you not know Twix had wheat?!!! Had you never had a Twix pre-gluten free. It's a cookie, covered in caramel and chocolate!


Jillian

Positive Blood test and Biopsy

Inflamed stomach lining

Gluten free since July 6, 2005

Tarrytown, NY

"Sometimes being a b$tch is all a woman has to hold onto." - Dolores Claiborne

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I think all of my medical junk is killing off brain cells. I don't know what I was thinking. That's sort of why I finally read the label on the third try. I have never been a candy bar eater and I wasn't that hip to Twix. Duh....still what was I thinking. You all think I'm probably a moron with this diet. I assure you that I am not. But I was curious about one thing.......is Wonderbread Gluten-Free? :wacko:

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What's a Waldo's Pizza, gluten free?

Waldo Pizza is a place in Kansas City that makes us feel NORMAL again. They serve gluten free pizza!! It is SOOOOOOOOOOOOOOOOOOOo good!! The crusts are made by a lady/company called Olivia's Oven ( http://www.oliviasoven.com/Index.cfm ) . The pizza place buys them from her and she has taught them about CC.

Waldo's has two locations. One in Kansas City on 75th and Wornall and one in Lee's Summit Missouri.

http://www.waldopizza.net/

Ok that's my commercial for Waldo's hehe (btw, no affiliation just LOVE having normal pizza)

Riceaddict...did you drive all the way from Iowa just for pizza??

As far as the twix goes, many people are asymptomatic (no symptoms) and the damage is still being done to their intestines. What's done is done, you made a mistake, but don't feel like just because you didn't have symptoms you can add twix to your diet now. Get back on track and avoid the wheatygoodness of twix :P

-Jessica :rolleyes:


Jessica

Gluten Free since 12-31-2002!!

Kansas

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.......is Wonderbread Gluten-Free? :wacko:

:D:P:D:P:D At least you have a sense of humor about it. We're here to support each other, so don't worry about us thinking you're a moron. Go and "sin" no more.


gluten-free May 17, 2007; casein-light since June 2007

Dx'ed gluten/casein intolerant by Enterolab. Family doc dx'ed "gluten sensitive" after dietary response. DQ 6 & DQ 7

8 year old daughter dx'ed gluten/casein intolerant & malabsorption by Enterolab and has been GFCL since June 12, 2007. Excellent response to diet, including growth! Tummyaches & irritability are gone! DQ 5 & DQ 6

Husband has DQ 5 (elementary, my dear Watson!). Self-diagnosed gluten-intolerant by diet response and challenge.

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Ok, for here on in, anything crunchy in a candy bar should be investigated as it could and most likely is wheat (gluten) based.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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But I was curious about one thing.......is Wonderbread Gluten-Free? :wacko:

LOL!!! According to some of the people I've met, yes because it's not "wheat" bread ;)


Jillian

Positive Blood test and Biopsy

Inflamed stomach lining

Gluten free since July 6, 2005

Tarrytown, NY

"Sometimes being a b$tch is all a woman has to hold onto." - Dolores Claiborne

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LOL!!! According to some of the people I've met, yes because it's not "wheat" bread ;)

One restraunt gave me a gluten-free option of a Salad with Cornbread Crutons... with breaded chicken.

I obviously had to tell them they need to find out what gluten-free was, and just because it's a salad it's not gluten-free.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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Thanks everyone. YOu have to have a sense of humor about these things, how else would we get by? My sister lives in Johnson Co, KS and I was visiting for Memorial Day Weekend. I met a gal while I was down there and we decided to have a little platonic fling, we had a total blast. Unfortunately I never made it to Waldos......dang it! Next time, next time.

BTW: Wonderbread is not "wheat bread"....that is some good material. :lol:

I'm finishing my Redbridge now like a good little celiac.

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I have been back on gluten for a few weeks now in order to get testing done. When I started to eat gluten again I wasn't having any symptoms right away. After a few days though, I can DEFINITELY tell I have a problem with gluten. I kind of wish I would get an immediate reaction. It almost seems harder when my reactions are delayed.


Kim

Irritable Bowel Syndrome 1995

Candida Problems 1996

Low Thyroid 2001

Gluten Free 2002

Dairy Free 2007

Egg/Onion/Garlic Free 2007

SIBO (self diagnosed) 2007

SCD since October 2007 and starting to feel better than I have in years!

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