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lob6796

Be Proactive In Your Health Care!

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My physician ran a few of the celiac blood tests and they came back positive, so he informed me that he believed I had celiac. he gave me a referral to a GI specialist and said I needed to have a consult with him, then he would do more blood work, then send me for an endoscopy for biopsies, then another consult, then I could go on the diet. I was looking at waiting until October or November to start the diet. I got the paper in the mail with my appt date for August 23rd! I called the office and the receptionist said that they were already booking into September, and they rarely had cancellations. I muttered something about "god I wonder how long it will take to get my endoscopy appt, if you have to wait so long just for a consult". She caught the remark and answered - "one to two weeks. We do endoscopies everyday. We only do office appts 1.5 days a week."

The next morning I sat down and wrote my physician a letter (that I faxed to him). I told him that I felt he was competent enough to handle my post-diagnosis care, and that I would appreciate it if he could just send me for the endoscopy. His nurse called me this morning. My endoscopy is next Wednesday. I am looking at being able to begin the diet within a month, instead of 5 or 6.

So be proactive in your health care - you might get more out of it than you think!


~Sorry for the million questions, I really want to learn as much as I can!~

04/07 - Diagnosed Fibromyalgia

05/07 -Diagnosed Celiac from test & symptoms - scheduled for biopsy

~Also intolerant to milk, soy & beef

Daughter - 2yo - tested negative 03/07 for Celiac

-allergic to milk and soy

-retesting Celiac soon due to symptoms~

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kilcan:

wow, good for you! im happy that you will have the procedure much sooner, due to your action. And of course, let us know how it goes. best of luck!

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Wow, good for you. It is all too easy to get lost in the system. While you wait, read up here, and hope we here back from your tests. :)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Wow! That's great news. It does pay to b proactive, that's for sure. Your experience also explains why I'm getting my biopsy results from the P.A. I guess the doctor has to save his precious time for consults and endoscopys. Part of me wondered if I had insulted him in my sedated state, since I think he is a huge jerk.


Celiac blood testing negative July 2007

Confirmed diagnosis of wheat allergy by skin test Dec 2007

Gluten-lite since July 2007 (didn't know all the hidden sources of gluten)

Gluten-free since December 2007

Life Long Symptoms

Extreme fatigue--needing 10-12 hours of sleep and still woke up exhusted

Allergic to everything--allergies remained out of control despite shots and strict enviornmental controls in my home.

Severe "sinus" headaches

More Recent Symptoms

IBS symptoms

Severe stabbing stomach pains that started 6 months before diagnosis of wheat allergy.

In my heart I feel it is more than an allergy and that I am gluten intolerant. This is based on my how eerily my childhood maladies match most celiac's histories, and my more recent increase in the severity of my usual symptoms and new digestive symptoms that have already started to subside on the gluten-free diet.

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