Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Ok, so we've been going through all of the testing and struggles with trying to get a diagnosis for our 17 month old daughter. She's had blood work done, but it was inconclusive. We're now waiting for our appointment with the pedi GI in September to find out more. In the meantime our pediatrician recommended that we try the gluten-free diet and have had MAJOR improvements in all of her symptoms!! We're not great yet, but it's getting better a little at a time.

I know the disease is genetic...my sister and niece are both Celiacs. I'm now beginning to wonder if I don't have it, too. I've never had the same symptoms as my daughter, sister or niece...but I feel aweful!! I'm a stay-at-home mom and have been eating, well, I guess I'll call it gluten-light since we switched Ali's diet about two weeks ago. Since it's just easier to make one meal for both of us I've cut down a ton! For all of my life I've swung pretty wildly from the big C to the big D at the drop of a hat. I always thought it was just my system and was pretty normal. That seems to have eased up some recently...hmm... I've had more energy and just felt sharper mentally.

Well, I had gone about four days without ANY gluten and then decided to have a peanut butter sandwich yesterday with Jiff and put it on regular whole wheat bread. Almost instantly I felt nauseated and today I have a killer headache! I'm still feeling really sick to my stomach, too. I also am SOOOO tired! I feel like I've been run over.

No one else in the house is sick, so I'm doubting that I have a bug of any kind. But, I suppose that's always possible. And the fatigue could always be explained by my new baby and the fact that I was up four times last night with him.

Do you think I have a more mild form of the disease? Or that my symptoms are just different? Would it be a good idea for me to be tested just to know? I'm so confused.

Share this post


Link to post
Share on other sites

You sure sound like you have celiac disease as well. There is no such a thing as mild celiac disease. You either have it or you don't. For some people the only obvious symptom is anemia! You don't have to have the same symptoms as your daughter, or many at all.

I always thought it was normal to fluctuate from diarrhea to constipation all my life, too. Now I know that it is NOT normal to have more than two episodes of diarrhea a year!

I say that it is very telling that you felt better off gluten, and had a major reaction when you ate it again. Do you need the official diagnosis? If not, why not just go gluten-free along with Ali and just get well.

Share this post


Link to post
Share on other sites

just the fact that your sister has celiac disease is reason enough to get screened for it. when we suspected one of our kids had celiac, we tested the rest of the family----that is how we discovered that the other two girls had celiac, also. all three girls had different symptoms. my mother and two of my sisters have also been tested since my girls were diagnosed. my two step-children have not been tested, yet, but they are older and live away from home.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


    • July 08, 2019 Until July 09, 2019
      0  
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Tracks
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
       
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
×
×
  • Create New...