Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Can Someone Help Me With My Blood Results?


good-trojan

Recommended Posts

good-trojan Newbie

Hi everyone,

First poster here with request for help!

I recently requested to be tested for Celiac due to months of sudden and escalating joint pain. The joint /bone pain moves around. I have had a number of other blood tests for ANA , CRP, RA, Lymes and all so far are negative.

What we have found so far is:

Anaemia at 9.1 (not pern.anaemia..all reds are low)

Thyroid Underactive

After reading about Celiac Disease..I felt this strange kind of... connection - like all those other "smaller" things Id lived with all my life may have a connection to this bone pain. The other lifelong "smaller" things being:

tiredness and nausea sometimes after meals

weak stools (they always float lol. in fact until i read about celiac, i thought everyones did!)

accelerated digestion (i usually have stools at 2-4 times a day)

flatulence

abdominal distention

muscle cramps

I was an awkward kid who when ill, threw up until i reached my stomach green bile

So.... I ask my doc to test for Celiac. I collected my results today and he advised "negative"

But I look at my results and I see only three possible Celiac things on my blood count, these being

Transglut igA 1.2

transglut igA 1.2

Gliadin 1.2

Now Im an english speaker living in germany, so the titles may look a tad different... but Im a bit puzzled when i read my numbers here above, and compare with sarahelizabeth

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

unfortunately, you can't use another labs reference ranges against your tests. you need to find out the reference ranges for the lab that your tests were performed at, in order to interpret the results.

Link to comment
Share on other sites
good-trojan Newbie
unfortunately, you can't use another labs reference ranges against your tests. you need to find out the reference ranges for the lab that your tests were performed at, in order to interpret the results.

thanks Tarnalberry!

Do you know which of the above tests though, my test were?

Like I see five test results often in other threads on this and other sites, but I only have three on my bloodcount.

Transglut igA 1.2

transglut igA 1.2

Gliadin 1.2

I don

Link to comment
Share on other sites
tarnalberry Community Regular

no, I don't really understand the results. the first two things you right are the same thing, too. unless it was a typo - were one of those IgG, not both IgA?

but yes, at least some tests are missing.

Link to comment
Share on other sites
good-trojan Newbie
no, I don't really understand the results. the first two things you right are the same thing, too. unless it was a typo - were one of those IgG, not both IgA?

but yes, at least some tests are missing.

thanks tarnalberry. You

Link to comment
Share on other sites
NY547 Newbie

Guten Tag!

I think it is quite a coincidence that all 3 results came out 1.2 I would question the results if they were mine!

Many doctors just order the Tissue transglutaminase test (TtG IgA) as a screen. It is good your doctor included the IgG as well and also the gliadin antibody. I would also ask for the total IgA (total immunoglobulin A) as well.

The endomysial antibodies you see on these boards are often part of an initial screen, but are only positive in 60% of confirmed celiacs anyway. So many doctors just order the TTg instead, which is fine as an initial screening.

It is possible that 1.2 is the low end sensitivity of the tests, so that is what they report, while many labs just report the numbers as <1 or less than 3, whatever the cutoff value is. I would ask the doctor if that was the case, then it would make sense that all 3 numbers were the same.

I hope this helps! And the symptoms you describe do sound like celiac! I would definately follow up.

Link to comment
Share on other sites
  • 3 weeks later...
good-trojan Newbie
Guten Tag!

I think it is quite a coincidence that all 3 results came out 1.2 I would question the results if they were mine!

Many doctors just order the Tissue transglutaminase test (TtG IgA) as a screen. It is good your doctor included the IgG as well and also the gliadin antibody. I would also ask for the total IgA (total immunoglobulin A) as well.

The endomysial antibodies you see on these boards are often part of an initial screen, but are only positive in 60% of confirmed celiacs anyway. So many doctors just order the TTg instead, which is fine as an initial screening.

It is possible that 1.2 is the low end sensitivity of the tests, so that is what they report, while many labs just report the numbers as <1 or less than 3, whatever the cutoff value is. I would ask the doctor if that was the case, then it would make sense that all 3 numbers were the same.

I hope this helps! And the symptoms you describe do sound like celiac! I would definately follow up.

Thanks NY547!

I saw an Endocrinologist 14 days back who diagnosed Autoimmune Hypothyroidism. My doc has since advised that they want to wait 4 weeks to monitor improvements in joint/muscle pain during that time to give the Thyroxin chance to help my body. On the one hand I understand the logic of this. On the other I am impatient and unconfident in this approach. I seem to have a sore throat almost daily now, and these strange 60 minute Irritability hours that are developing. On top of the joint pain, anemia, the immensely itchy skin and the abdominal pain- waiting 4 weeks seems to me like an age.

I believe I should be tested further for Celiac, but somehow I always feel like I have to push for this. It

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

False negative abound in celiac testing. Going on the gluten free diet to see if it helps is only going to improve your thyroid if the diet is needed. The diet will not mask any other disorders or disease. Sometimes the best diagnostic there is is your response to the diet.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    2. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj posted a topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
×
×
  • Create New...