Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Doctor's Opinion


Stokey107

Recommended Posts

Stokey107 Newbie

I have never used this forum before but I was wondering of I could get a doctor's opinion on whether my case sounds like celiac. I will be as short as possible. And Thanks for your advice ;)

For about three months I was having all your classic symptoms of gastrointeritus (I may have mispelled it.) I did blood work, stool samples, and nothing. By the end of the three months, I was missing about 1 day of week of work. I eventually starting keeping a food log but I saw no conncestions for any food alergy. MY GI finally suspected celiac. He did do an endoscopy but I never went back for the follow up to see about the biopsy results. I was gluten-free for about 2 years.

On a side note, my husband starting having the same symptoms for about two months. We finallly narrowed it down to a new type of bread he had both been eating. I was eating this also before I was gluten-free.

I recently have starting eating gluten again (about 2 weeks) and have absolutley none of the symptoms I had before. I haven't so much as had a stomach cramp. Does this sound like celiac or maybe IBS?

Thank you!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I'm not a doctor, this is just an idea. Might be time to check the endoscopy results. According to my understanding, if it does show celiac, your body is sustaining damage when you eat gluten whether or not you show symptoms.

Otherwise, it is possible that you have had an allergy to gluten, and having stayed away from it you can now tolerate to some degree. My guess is it this is the case, eventually the symptoms may return.

Food allergies mask symptoms when you are eating the items more often than every 4 or more days. So a food log may not show these. If you don't eat the item for 5-10 days, then do a food challenge, you see a more clear response. Did you go through that kind of testing before?

Link to comment
Share on other sites
Stokey107 Newbie
Might be time to check the endoscopy results. According to my understanding, if it does show celiac, your body is sustaining damage when you eat gluten whether or not you show symptoms.

Otherwise, it is possible that you have had an allergy to gluten, and having stayed away from it you can now tolerate to some degree. My guess is it this is the case, eventually the symptoms may return.

Food allergies mask symptoms when you are eating the items more often than every 4 or more days. So a food log may not show these. If you don't eat the item for 5-10 days, then do a food challenge, you see a more clear response. Did you go through that kind of testing before?

No, I simply logged what I ate for 3 weeks and kept track of any symptoms.

Link to comment
Share on other sites
Belinda Meeker Apprentice
No, I simply logged what I ate for 3 weeks and kept track of any symptoms.

My son did this too and man O man he has paid big time he was fatigued terrably like he was as a child and the stomach cramp D stools all returned :(

So be careful u might be being masked at first so watch urself u could do severe damage in the end :huh:

U see my hubby just now the past 3 years has showed some more signs then he did when he first quit smoking :)

But he too like my son tired to go back to breads and learned the hard way and missed alot of work almost lost his 17 year job do to D :(

So if ur hubby is getting same as u did with the bread then throw it away and never return> they do have some good bread recipe's here on the site :)

Sometimes it takes longer to find the food's that r the culprites the GI doc. told hubby he had to do gluten full blown for 6 weeks to be sure the test showed a true post.

But hubby says "no way" am I making myslef that sick and now he is doing a Gene test in September

he knows he has it just his J O B requires it on paper :angry: (u can be gluten -free for this)

Since we have a Celiac Spure child there is a possability both parents carry the gene :(

I'm not sure if u have been told, but it is genetic and it runs more on the Irish side (not being sarcastic)

and he has it on his side of the family and so do I :(

Good luck be careful !

Belinda

Link to comment
Share on other sites
tarnalberry Community Regular

Just for clarification, the majority of us on here are not doctors, or other medical professionals. And true medical opinions over the internet are not likely to happen, as there is no way to get a full picture (especially without discourse).

That's not to say that we don't have a lot of well educated opinions here, however - the folks on this board are very helpful! :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,210
    • Most Online (within 30 mins)
      7,748

    Sue Barnett
    Newest Member
    Sue Barnett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...