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Momof2cuties

We Need A Pedi Gi In Or Around Omaha, Ne

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If anyone has any recommendations for a pedi GI in or around Omaha, Nebraska I'd be so thankful! We saw a new doc in town yesterday and he was AWEFUL! I figured if he was at Children's Hopsital he'd have to at least be willing to listen, but boy was I wrong.


Allison - 21 months, Celiac

John - 5 months, too early to tell...but, he's a tank!

Me (Stephanie) - Blood test was negative, but VERY positive response to a diet change! Hurray!

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Must be a Nebraska thing, I get the same thing out here at the other edge of our little state.... seriously thinking about a trip to denver for a few days!


Just my .00000002 cents worth

If I knew what I was doing years ago I would have half a clue today!

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I'm in Denver and we saw the GI docs at Children's here and *loved* them. We actually worked with a physician's assistant, Stephanie Petersburg. She was extremely thorough and left no door unopened while we were diagnosing DD. Also, the dietitian (can't remember her name) is an expert in Celiacs and often speaks to the Denver Celiac support group.

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If anyone has any recommendations for a pedi GI in or around Omaha, Nebraska I'd be so thankful! We saw a new doc in town yesterday and he was AWEFUL! I figured if he was at Children's Hopsital he'd have to at least be willing to listen, but boy was I wrong.

Stephanie,

Here is a link to the Celiac Sprue Association, which is headquartered in Omaha: http://www.csaceliacs.org

It appears that they are affiliated with the University of Nebraska Medical Center. They have a Dr. Frederick Pausiton (can't remember that I spelled it right) on their Medical Advisory Board, from the University. I would think his office would be the place to start.

Good luck.

Sue


Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.

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Did you see Dr. Attard? I've heard great things about him. Who did you end up seeing? We've seen Prestridge (yuck), Zapata (doable, but not the best), and Antonson (very stuck on himself and MSPI). There aren't many good options for ped GIs.


Jennifer, gluten free on and off since 2005, best I can remember sx started 2007, tTG of 4 1/13,

gallbladder out 2/13, scope 5/13 showing inconclusive damage to stomach and intestines,

tTG of 5 6/13, dx with non-Celiac Gluten Sensitivity or maybe pre-Celiac, gluten free since 6/13,

appointment soon for second opinion

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I just moved from there and would also recommend Dr. Attard. I didn't see him myself but have heard nothing but wonderful things about him with relation to children with MSPI. I also saw Prestredge and would have to say "stay away" b/c she doesn't listen to her patients.

Hey, the peach, is that you Jennifer? :)

Julie

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If anyone has any recommendations for a pedi GI in or around Omaha, Nebraska I'd be so thankful! We saw a new doc in town yesterday and he was AWEFUL! I figured if he was at Children's Hopsital he'd have to at least be willing to listen, but boy was I wrong.

I'm guessing you have found someone by now but we saw Dr. Kunnath at Children's Hospital and he is WONDERFUL! He is relatively new (and young) but came highly recommended by our pediatrician who was a colleague of his. He was great. He diagnosed our daughter (3 years old) and his staff has been excelent. I would highly recommend. Hope this helps!

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