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Greetings,

The nurse called and said it is not Ceilac's.

Said the test results, all the factors were less than 1, so it is normal.

What does less than 1 mean?

I still have joint pain and the GI issues now what?

Respectfully,

Mark

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Greetings,

The nurse called and said it is not Ceilac's.

Said the test results, all the factors were less than 1, so it is normal.

What does less than 1 mean?

I still have joint pain and the GI issues now what?

Respectfully,

Mark

Did they check to see if you have the gene for Celiac?

I am waiting to get my tests results tomorrow morning from the Mayo here in MN, and the doctor I saw said that he looks to see if you carry the gene if the other results are negative.

He said that if you don't carry the gene then there is almost (99.9%) sure that you do not have celiac, but if you do carry the gene you could have just gotten a false negative and they do more testing.

He also said just because someone doesn't have "celiac" doesn't mean that you don't have an intolerance by any means. With an intolerance you just need to find the amount of gluten you can ingest without symptoms or don't eat it all ......but if you do eat it it won't damage your intestines like if you had celiac.

I would see if they tested you for the gene.

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Less than 1 means no antibodies, which means either: 1) you aren't celiac and your problems have nothing to do with gluten, 2) your that special kind of celiac that doesn't produce antibodies, 3) you are gluten intolerant, so you don't produce antibodies, 4) they messed up the test, or 5) you weren't eating enough gluten to produce antibodies. There are no tests to determine that gluten is NOT the problem, on that it is. That means that your blood test means that they can't tell you that you are celiac, but they can't tell you that you aren't either.

What I did is I went off of gluten for 2 months and saw how I felt, and sure enough, gluten was the problem. Based off of all of my symptoms going away (in medical terms, positive dietary response), I was able to get a diagnosis of gluten intolerance. Some people still are sick on gluten and it could be something else. The only way to find out is by not eating it.

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