Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Why Do I Feel So Full?


polly123

Recommended Posts

polly123 Newbie

Hello!

have been having a fabulous time poking around this site while i wait for my "diagnosis." Recently had several blood tests, and when I went in for the results my DR. was on holidays, so I had a more-than-useless replacement. She told me that the only abnormal result was my "gluten test" and when I asked what that meant she said that she couldn't tell me, that only I know my body. K, that's pretty useless. I pushed for info but she simply told me that I could eat gluten or not, it's up to me. I'm scheduled for ultra-sounds tomorrow, and will see my regular DR. for those results, and will have him explain it to me then.

In the meantime, I'm wondering if anyone has had a similar experience to what I have now. My DR suggested avoiding gluten for a while, during the beginning screening process of blood work, and see if it helps my list of symptoms. I have been MOSTLY off gluten for 2 weeks, and must say, I feel much much better. However, I was invited to a very swanky business lunch yesterday, and all sorts of delicious buns and dumplings were dumped on my plate. I ate them so as not to appear rude (dumb i know, but i'm not diagnosed, so I didn't want to protest and try to explain.). It has been more than 24 hrs since that lunch and I am still feeling "full." Honestly I feel like there is a brick just sitting in my stomach. I have tried to force down a bit of fruit, but I have absolutely no appetite. I feel like I just ate a huge meal. My stomach cramps have also returned, which is strange because I didn't think that I was quite so accutely sensitive, but perhaps the lack of gluten caused my body to be "shocked" by the sudden influx?

ANyway, the full feeling is very uncomfortable and disconcerting. I feel slightly nauseaus. But not bad. Mostly like a semi-trailer packed with buns and dumplings just got lodged in my tummy.

Appreciate any feedback someone could offer......!!!!!!!!! THANKS! :D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

I just wanted to say, you have the right to get a hold of the gluten tests and if you want to post them here, we'll help you interpret them. Now, I don't know why your doctor is sending you for an ultrasound. Mine did that and I found out later they can't do anything with the results unless you have a tumor (they basically send you for one when they don't know what is wrong...doesn't mean they think you have a tumor, they just have to rule it out). The only way to diagnose Celiac is with an endoscopy or blood tests. If you go off of gluten, your tests aren't going to be accurate. You must actively be eating gluten to get accurate results.

Good luck!

Kassandra

Link to comment
Share on other sites
Lisa Mentor

I am sorry that you are not feeling well.

But what concerns me the most is that you DR informed you to go gluten free during the screening process. You must remain on gluten to achieve the most accurate testing possible. Even given that the blood testing is not always the most reliable.

If you DR is looking for Celiac, an ultrasound will not indicate anything. An endoscopy exam should be the next course of action for a diagnoses.

Pepcid OTC or Pepto may help with the bloating.

Hope you feel better soon.

Link to comment
Share on other sites
polly123 Newbie

Thank you thank you for input.

They are testing with an US because I have a history of ovarian cysts, and they want to check out the pain in my side. This is different than cyst pain, and I have had times in the past where i had pain, thought it was a cyst and the US turned up negative. I have now learned to differentiate the pain. But they want to do it anyway (I get the day off work, so I'm not going to complain!) ;)

I think he wanted me to try avoiding gluten at first to see if it made a difference. Which I feel it has. So I will work gluten back into my diet until I have some sort of diffinitive answer, so as to ensure accurate results. Even if I come up with all negative results for Celiac's, I will most likely cut it out anyway, since it is so far helping quite a bit!

When I had teh blood tests I was still eating gluten, which probably helps explain the "gluten sensitivity." When I re-visit for US results I will ask for a copy. My regular DR is coming back in a couple of weeks, and he is great at explaining things in full detail, and not treating his patients like idiots.

Thank you again. I appreciate your support!!!!!!!

Link to comment
Share on other sites
Lisa Mentor
Thank you thank you for input.

They are testing with an US because I have a history of ovarian cysts, and they want to check out the pain in my side. This is different than cyst pain, and I have had times in the past where i had pain, thought it was a cyst and the US turned up negative. I have now learned to differentiate the pain. But they want to do it anyway (I get the day off work, so I'm not going to complain!) ;)

I think he wanted me to try avoiding gluten at first to see if it made a difference. Which I feel it has. So I will work gluten back into my diet until I have some sort of diffinitive answer, so as to ensure accurate results. Even if I come up with all negative results for Celiac's, I will most likely cut it out anyway, since it is so far helping quite a bit!

When I had teh blood tests I was still eating gluten, which probably helps explain the "gluten sensitivity." When I re-visit for US results I will ask for a copy. My regular DR is coming back in a couple of weeks, and he is great at explaining things in full detail, and not treating his patients like idiots.

Thank you again. I appreciate your support!!!!!!!

Good, well, keep us posted about your results. In the mean time absorb as much as you can. (information, I mean :rolleyes: )

Link to comment
Share on other sites
polly123 Newbie

Lovin the feedback. You guys are great!!! :)

But has anyone had that lump in your belly full feeling? It's freakin me out that I can't eat anything today.

Link to comment
Share on other sites
Janessa Rookie

I absolutely get that super full feeling and my stomach gets so bloated it looks like I'm pregnant, and it feels so sensitive I can't really eat when that happens either

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,059
    • Most Online (within 30 mins)
      7,748

    Zackery Brian
    Newest Member
    Zackery Brian
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...