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covsooze

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I've had another miscarriage :( This time at 9 weeks. I had a scan just as it was starting, and there was no sign of a baby, just an egg sac - like with my first miscarriage. This is my third one now, so I'm being referred for investigations. If anyone has any good links on the subject for me to read, I'd appreciate it. It makes me appreciate my darling son even more now, I think he's a miracle.

Susie x


Susie from Coventry, UK

IBS & GERD 2000

Screened for coeliac disease as sister has it - negative blood test

Nov 2005 positive blood tests

January 2006 dx by biopsy

gluten-free and dairy lite since then

I am also neutropenic, anaemic and have hypothyroidism

Feb 08: free protein S deficiency; candida overgrowth; adrenal exhaustion

'My grace is enough; it's all you need. My strength comes into its own in your weakness.' 2 Corinthians 12

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My thoughts are with you Susie.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I've had another miscarriage :( This time at 9 weeks. I had a scan just as it was starting, and there was no sign of a baby, just an egg sac - like with my first miscarriage. This is my third one now, so I'm being referred for investigations. If anyone has any good links on the subject for me to read, I'd appreciate it. It makes me appreciate my darling son even more now, I think he's a miracle.

Susie x

AH Susie - I'm so sorry.


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Susie, I'm so very sorry.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Susie, I am so sorry.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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I'm so sorry for your loss. I'm going to an fertility doctor and he said with Celiacs it's scary and we can be up to 40% infertile. I see you don't live in NYC, but if you are ever in the area I'm more then happy to give you his number, he's WONDERFUL!!! I wish you all the luck and health in the world!


all my life i have had an oat allergy.

gluten-free 5/2005.

active yeast free since... don't remember.

refined sugar free 5/2010.

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I'm so sorry Susie. :(


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Susie, my thoughts and prayers are with you.

Stephanie


Positive for dermatitis herpetiformis via skin biopsy and blood tests 6/21/07

Gluten free since 6/25/07

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Susie,

I am so sorry for you three losses. I know how emotional it can be. My daughter found out she miscarried this past week.

You may remember, there was a thread here some time ago regarding miscarrages. I was amazed how many of us had suffered them.

I hope you can find some answers.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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I can't imagine the emotions you are going through right now. Take some time and take care of yourself right now. This has to be emotionally and physically hard for you. My thoughts are with you.

-Jessica :rolleyes:


Jessica

Gluten Free since 12-31-2002!!

Kansas

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Susie

So sorry

I had one before and one after my son.

Nothing makes it easier.

please know if care.

Will send a note from Alice Blast.

Judy


Judy in Southern CA

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Susie,

I'm sorry to read of your experiences & losses. I don't have any wisdom for you, except

to make sure you take care of yourself as much as possible right now. Do something extra

special for yourself, & give your child a great big hug! Good luck in whatever lies ahead.

My thoughts & prayers are with you and your family.


Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07

Enterolab positive for gluten, casein, soy, egg

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07

Casein free 8/27/07

Soy & egg free 9/8/07

Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09

Starting various supplements/vitamins in hopes of feeling better!

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Wow...I'm overwhelmed by all your support and love. Thanks so much everyone, it means a huge amount.

Susie x


Susie from Coventry, UK

IBS & GERD 2000

Screened for coeliac disease as sister has it - negative blood test

Nov 2005 positive blood tests

January 2006 dx by biopsy

gluten-free and dairy lite since then

I am also neutropenic, anaemic and have hypothyroidism

Feb 08: free protein S deficiency; candida overgrowth; adrenal exhaustion

'My grace is enough; it's all you need. My strength comes into its own in your weakness.' 2 Corinthians 12

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Susie

I am sorry for you lose, my daughter and I will keep you and you husband/family in our night, night prayers.

donna


Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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Susie, I'm so sorry for your loss.


Linda, Mom to Ty (11 years old)

Ty was diagnosed by blood test June 7/05

biopsy Aug 11/05, diagnosis confirmed Aug 18/05

Mom, Dad and big brother Celiac-free.

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Susie, I'm very sorry for your loss. I know, nothing, that I will say or do, will make it any easier for you. I just hope, one day you will have the chance to have another healthy baby and I will keep you in my prayers.

Stef


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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