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Shane's Mom

Autoimmune Polyglandular Syndrome 1 And Celiac

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My 17 yr old son was diagnosed w/aps1 in 1995 and has since been diagnosed w/ auotimmune hepatitis, hypoparathyroidism, hypocalcemia, kidney issues from calcium and now we believe he has Celiac's Disease. A few weeks ago, he was taken by ambulance for having a seizure, which is not part of his other medical issues. They weren't sure it was a seizure, but that's what wittnesses said. His calcium was low and they treated him for that. Low calcium is something we've dealt with many times, but he's since been in ER four times last week and admitted for four days, not absorbing the calcium. It's common with his syndrome to have malabsorbtion or Celiac's, but have never spoken with anyone else who has this combination. His magnesium and potassium were also very low. Anyone out there know anyone with this combination? I appreciate any help.

Kari

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Doesnt aps 1 include addisons? Addisons would affect the potassium levels.

Celiac is autoimmune and can occur with any of the aps (1, 2 or 3).

Our family is polyendocrine - kids are classed as aps 3

son - type 1 diabetes, celiac, lactose intolerant

daughter - hypothyroid, celiac, lactose intolerant, gilberts syndrome, Kawasaki (recovered)

Mom (me) - type 1 diabetes, hypothyroid, pernicous anemia.

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