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Anyone At Ucla Or In The Area?

Kaitlin7

By Kaitlin7
in Meet Up Room

Recommended Posts

Kaitlin7 Rookie
Kaitlin7
Posted

Hi everyone,

I'm brand new to the site! I have been gluten-free for only a few months, and everything I have read here so far has been so extremely helpful. In September, I'll be heading down to UCLA (from the Bay Area) for my first year of college. Eating in college is always difficult, and with celiac, it will be even tougher. Is there anyone else attending UCLA, or at least living or going to school in that area? It would be great to get a group together!

Kaitlin

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confusedks Enthusiast
confusedks
Posted

Hello,

I am 17 and I am obviously in High School. I live in Studio City which is not that far from UCLA...about 25 minutes. I am in the process of starting a support group for Celiac Teens. I don't know if you'd be interested...it will be for kids/teens 12-20? If you want, I will keep you posted. My email is knshore@hotmail.com if you ever want to talk and I can tell you the local health food store to you if you want.

Kassandra

GOOD LUCK!

Kaitlin7 Rookie
Kaitlin7
Posted
  • Author

Thanks Kassandra!

I'd love to be involved! That sounds like a great idea, and I'm sure we could find many more people in the area to join. Do you know of any great food places (retaurants or stores) in Westwood that have gluten free options? I wont have a car next year, so it will probably be pretty tough to get any farther from campus.

Kaitlin

AIM - keightleign

newlyfree Rookie
newlyfree
Posted

Hi Ladies - I'm in LA myself (though a bit too old for your support group ;) and there's a Los Angeles Celiac Yahoo group you can join that I've found to be a great resource. They also maintain a list of gluten-free/gluten-free-friendly restaurants all over the area.

confusedks Enthusiast
confusedks
Posted

If you know anybody who is interested, let me know. I have a long list from a celiac place with lots of names, so I will be contacting them. I am thinking of having a meeting in the first week of september. I'll let you know.

Kassandra

BTW, do you have an email?

Kaitlin7 Rookie
Kaitlin7
Posted
  • Author

All sounds great, except that I wont actually be in the area until late September, when school starts. If you decide to do it later, maybe early October, then I could come!

Kaitlin

davis.kaitlin@gmail.com

confusedks Enthusiast
confusedks
Posted

No problem. I plan to have meetings every couple months. One again before the holidays that you may be able to go to?

Kassandra

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  • 1 month later...
Merika Contributor
Merika
Posted

Kaitlin,

There's a Whole Foods in Westwood that has your usual supply of gluten-free stuff. I think you could walk/bike from ucla.

Hth,

Merika

in Hollywood

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    • trents
      diagnostic testing variance

      By trents · Posted

      But you have already had the genetic testing done and you have results. You have one main celiac gene out of two main celiac genes. You have  the HL-DQ8 gene. So, you do have the potential for developing celiac disease.
    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      oh wow that's so interesting! if I do re-scope, I will try to eat gluten more as well. when I do its super light. so maybe trying to keep that consistent for a while then the scope. plus i want to still do the genetic testing to rule it out. that would be so easy if that is negative then I for sure don't have it.  
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      diagnostic testing variance

      By trents · Posted

      Keep us posted about the scoping results. Make sure before the scoping you ask them to take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and is sometimes missed if insufficient sampling is done during the biopsying. 
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      diagnostic testing variance

      By KDeL · Posted

      so all this info has been really helpful... thank you! I recently tested again and was IGA negative for celiac, but further testing says I am positive for one of the variants that is associated with celiac.  (HLA DQ8) also says value 1 and 3 for HLA DQA1, but idk what that means. Anyway, now they are suggesting repeat scope. sometimes gluten makes me super sick and sometimes I can handle it fine. last night I had bagel and woke up with stomach ache...   so Idk. the mystery continues... just dont' want to be eating and damaging my insides for years without knowing it. -K  
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