Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sacroiliac Joint Inflamation


confusedks

Recommended Posts

confusedks Enthusiast

I don't know if this is Celiac related at all because it is a joint problem. I was told by my dr. the other day that I have a problem with my SI joint when they had thought it was a disc bulge that was causing all the problems. It turns out I have to have ANOTHER cortisone epidural for it (I had 2 for the disc bulge which they thought was the problem.) Since the sciatic nerve runs through your pelvic area, it mimics disc pain. It is REALLY painful. I guess my question is does anyone have experience with this, and how did it get better or did it not get better?

Kassandra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Worriedwife Apprentice

My husband occasionally has difficulty with the sciatic nerve. Since it runs through a very small hole in that area, if it gets the slightest bit inflamed it is VERY painful. The only thing that helps him is rest and ibuprofen. Sometimes ice packs on the hip area helps as well.

Hope you feel better!

mylady4 Rookie

There is a difference between the sacroiliac joint and the sciatic nerve. The joint is a smaller joint in the pevis/lower back that joins your pelvis to your spine. This joint provides your body with the sliding motion it needs for walking. The sciatic nerve is located in the lower lumbar region and usually involves the legs and the pinching of the nerve. I have had problems with both. If you look each of them up on the web it will explain it more. Sciatic nerve pain radiates down my leg and it feel like the leg is going to give out and the hip needs to crack. My sacroiliac joints are pretty much in pain all of the time. It feels like the butt hurts and is located in the low part of my back pelvis. Massage therapy has helped in the past, but I have not gone for a while and it is really bothering me.

I have heard that there is some connection between celiac and arthritis. I have never had a bulged disc so I cannot help you with that. I would try a message therapist but make sure that it is one who is familiar with back problems. See if your doctor can recommend someone.

Hope that helps

Nicole

confusedks Enthusiast

Thanks for the replies. I am in PT and have been for about 5 weeks. The way my Orthopedic Surgeon explained it is that the sciatic nerve runs through the pelvic area and lower back, so a lot of the times SI Joint problems imitate sciatica. I also have a disc bulge, but we don't know which one is really causing the problems. The doctors are so confused also because I'm only 17!!! It seems I'm too young for all of this. ;)

Kassandra

mylady4 Rookie

Your age might make a difference. I had all sorts of problems when I was 17. That is when the sciatic nerve bothered me the most because I think I was just finishing growing and the pelvis was ever expanding to prepare my body for future motherhood (my hips just kept getting wider). I was seeing a chiripractor at the time as well because I had some scoliosis (sp?).

Hope they figure out something soon. It sucks being in pain all the time.

Good Luck

Nicole

confusedks Enthusiast

Hm, that's interesting. I have Schuermann's Disease which is a curve of your spine...different than scoliosis. It is the curve when you look at someone's profile...it should be 20 degrees....mine is 67 both upper and lower. So apparently it has shifted my pelvis and it has shifted. Ugh, I don't know. This just sucks!

Kassandra

tarnalberry Community Regular

I have sacroilliac instability issues, and I'm seeing a chiropractor for it. If you can find one that specializes in structural based correction (posture, traction, and adjustment) I'd recommend it. My problem is a combination of twists along the spine and general tendency in my posture, along with a pelvis that isn't the same 'height' on both sides. (The effect of the last one is - at the spine - as though I had different leg lengths; I don't, the 'length' difference in manifested in the pelvis, but a heel lift is helping there.) Along with that, there's a tilt (not quite scoliosis, though) in the spine that I'm on my way to fixing.

The other important thing, for me, is to not stay too stationary. Chairs are evil! ;) (I have an exercise ball at work due to the sacroilliac issues.)

I'd search out other opinions as well, not that your ortho is bad, but at 17, your spine shouldn't have seen so much wear.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

My only concern is that I went to a chiropractor for a while and he never noticed my "hunchback and swayback." When you look at me it is fairly noticeable. So, I am afraid to go to another one. I am in PT and that is helping, but the pain was so bad I was in the hospital for 6 days and ugh! I am just so annoyed and the dr. is saying if the PT and epidural injection doesn't help...surgery will be the answer. That scares the crap out of me! It uses bolts and screws because it needs to be stationary. This is just so scary and the pain is so exhausting!

Kassandra

frec Contributor

I am sorry you are in pain. I was also diagnosed with a bulging L5-S1 disk that has morphed into an unstable SI joint this past year. Sometimes I think one malfunction sets off the next one. Anyway, I really want to avoid surgery. I have tried cortisone epidurals but they only help for a while, and if you get them too often the cortisone is bad for the bones. The good thing about epidurals is that SI joint problems are hard to diagnose. If the epidural helps (especially the local anesthetic), you'll know you've been diagnosed correctly.

Someday you might want to investigate prolotherapy. It is a kind of naturopathic epidural--no steroids, usually a glucose or saline solution--and it is supposed to tighten the joint by temporarily inflaming it a bit more and strengthening the ligament. It is rather new and sometimes insurance doesn't cover it. It helped my facet joints and next week I am trying it on my SI joint. Meanwhile I agree with tarnalberry. Chairs are evil. Keep moving, but gently. Swimming makes me feel much better. So does putting ice on the joint for short periods. Good luck.

georgie Enthusiast

I had this pain for years and despite chiros etc it never improved. I have a bulging disc.... I had Prolotherapy 3 years ago for that area and its been a 99% success ! Hardly any pain at all now unless I do something silly and lift a heavy object. The Dr explained that my ligaments were slack and movement was causing friction of nerve fibres hence the pain. Physio will not improve slack ligaments - only Prolotherapy. I had about 20 jabs a session , and 8 sessions - 1 x week . That was 3 years ago now. Good luck.

Nancym Enthusiast

You might want to see a rhuematologist as you could have Ankylosing Spondylitis, it often starts in the lower back and shows up in young folks often. I hope you don't, it isn't a fun disease to have. But if you do, then bookmark this web site: kickas.org and give a starch free diet a try, lots of AS patients are controlling their symptoms with it.

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.