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tuxedocat

Should I Go Glutenfree Before Diagnosis?

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Question - should I go gluten-free before having the biopsy and everything? I'm reading I may get a "false negative"... what do you all think?


2007 - dx'd with Graves' Disease

Suspected DH (no biopsy)

Tested negative for celiac (after gluten free two months)

2012 - Gluten free again after suggestion it might help my thyroid symptoms. Many strange one-off symptoms cleared up. Brain fog gone.

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If you are going to have a biopsy done you need to remain on the gluten. You could definately get a false negative if you go off gluten beforehand.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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The blood and biopsy tests are worthless if you are gluten free. You should not go gluten free until you have completed testing.

The tests measure different types of antibodies to gluten and the damage caused by gluten/antibodies. If you remove gluten (and you are a Celiac), your body stops producing antibodies, and you begin to heal. The goal for a Celiac is to have their blood/biopsy results return to normal after going gluten free. Only when they eat gluten will their antibodies, etc. rise again. Not eating gluten defeats the purprose of initial Celiac testing.

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