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Janniec6

Heart Palpitations And Insomnia

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We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan

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Glad you're having it investigated, but yes, I have those exact symptoms, and it's always when I've eaten something I have problems with - not necessarily gluten, as I have other food allergies that cause them, but before I went gluten free, it was happening a lot more. It will probably take a few months to see the full benefits of the diet and it seems to be a fairly common experience for there to be set backs in the improvements, even where you're being strict about being gluten-free.

All the best

Susie x


Susie from Coventry, UK

IBS & GERD 2000

Screened for coeliac disease as sister has it - negative blood test

Nov 2005 positive blood tests

January 2006 dx by biopsy

gluten-free and dairy lite since then

I am also neutropenic, anaemic and have hypothyroidism

Feb 08: free protein S deficiency; candida overgrowth; adrenal exhaustion

'My grace is enough; it's all you need. My strength comes into its own in your weakness.' 2 Corinthians 12

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I have anxiety and experience palpitations. It is much worse when glutened--and these two symptoms take a much longer time to abate than the others.

About a month ago, I had a stress echocardiogram. It was completely negative--the cardiologist said my heart was just fine (what a relief!)

To give you an example of how long it takes for these to go away, I used a facial cream (liberally) for about 6 weeks in April/May. I called the company at my wit's end in trying to figure out what was making me sick. (the wheat-derived ingredient was not listed on the labeling). I stopped using it, and my GI symptoms got better.

Here it is, the beginning of August, and the palps are fading, but not gone completely. I'm also just beginning to feel significantly less anxious.

I hope all goes well for your son today :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I hope everything worked out with your son. Is his EKG OK? Good luck and you are in my prayers.

You know, come to think of it I would have that too, but never connected it with celiac disease. I was diagnosed 12 years ago with IBS and that is when I had the worse palpitaions and I would forget to how to breath, which would happen out of nowhere. I thought they were panic attacks. Now that I have been gluten-free for ~1 1/2 yrs. I do not have them anymore, but again I did not connect any of this to celiac disease. I have so many symptoms I forget things that were my first symptoms.

Jacqui

We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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Been thinking of you Jan - how's your son? Since my original reply, I remembered also that you can use taking your pulse as an indication of whether you are allergic/ intolerant to something. I hope the EKG went OK.

Susie x


Susie from Coventry, UK

IBS & GERD 2000

Screened for coeliac disease as sister has it - negative blood test

Nov 2005 positive blood tests

January 2006 dx by biopsy

gluten-free and dairy lite since then

I am also neutropenic, anaemic and have hypothyroidism

Feb 08: free protein S deficiency; candida overgrowth; adrenal exhaustion

'My grace is enough; it's all you need. My strength comes into its own in your weakness.' 2 Corinthians 12

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Glad you're having it investigated, but yes, I have those exact symptoms, and it's always when I've eaten something I have problems with - not necessarily gluten, as I have other food allergies that cause them, but before I went gluten free, it was happening a lot more. It will probably take a few months to see the full benefits of the diet and it seems to be a fairly common experience for there to be set backs in the improvements, even where you're being strict about being gluten-free.

All the best

Susie x

Poor guy. I totally agree with Susie here. It doesn't have to be gluten for me. I am off dairy and don't eat the yellows of the eggs, peppers are also a problem. Sugar and caffeine are big triggers, as well as some chemicals and dyes in food. I eat a very basic diet and that is how I feel best.

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Heart pounding and insomnia are two of the symptoms I had when I had Graves disease. It is caused by the thyroid pumping out too much thyroid hormone. You might want to look it up on the Internet and see if the other symptoms apply too. Fortunately I had a doctor who figured it out without me even knowing that my heart rate was galloping like mad (I just thought I was nervous).

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We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan

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Just wanted to add that I got glutened last week (Fudgsicles= malt powder- duh!!!!) and have had both insomnia and heart palpitations :(

How is your son doing?


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan

Jan,

I was curious to know if the thyroid has been checked out..

insomnia and heart pounding are also very thyroid issue type symptoms

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