Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Closed Throat/ Lump In Throat Feeling

Jill1028

By Jill1028
in Related Issues & Disorders

Recommended Posts

Jill1028 Newbie
Jill1028
Posted

Hi, recently diagnosed with wheat, oat, barley, eggs, soy allergies. Allergist didnt mention celiac term to me at all.

I have cut out all of the aforementioned products and the vicious rash and diarrhea went away.

Acupuncture really helped with rash.

Now I am dealing with this annoying and constant lump in my throat feeling. No reflux, heartburn, etc issues.

This feeling will not disappear! So annoying- not sleeping, constantly swallowing, ick!!!

Not sure what my next step should be.

Going to a new GP/ gastro guy next week- terrified of drs btw...

Any suggestions for blood tests, etc would be greatly, greatly appreciated.

thanks,

Jill

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Jill,

Make sure you get checked for things like infected tonsels, swollen glands and epiglottis infection, even tumors (heaven forbid). Don't assume it is allergy/celiac related. An ENT (ear, nose and throat) doc might also be a good avenue to explore if your other docs don't come up with good ideas.

Steve

Jill1028 Newbie
Jill1028
Posted
  • Author

Hey Steve, thanks for the advice. I am not feeling at all sick in any way but I won't discount your suggestions. Since I am more aware of how I am feeling these days, I do notice that this closed up feeling has occurred in the past and I am trying to pinpoint as to when it might be happening and if it is related to an allergy/food reaction-issue.

thanks again,

Jill

georgie Enthusiast
georgie
Posted

Thyroid....

Make sure you get a full Thyroid Test done. That includes Free T4, Free T3 and Thyroid Antibodies. Go to www.stopthethyroidmadness.com I had that lump as you describe. Dr did all the cancer checks and had no reasons for it. She kept telling me my Thyroid was 'normal'. I eventually got copies of my tests , and found she had been testing ONLY ...TSH.... So make sure you get all the tests done, and get your paperwork and make sure that your results are completely normal and don't just take a Drs opinion of it. Drs can be wrong .... And most Drs don't understand Thyroid. I have had 3 Endos and 10 Drs over a 30 years time span that did not understand my autoimmune Thyroid - so be aware.... My current Dr is great - she has Hashimotos Thyroid herself, and had to train herself off the Internet and with expensive Conferences AFTER she was a dr. The Endos also gave her the run around when she was trying to get diagnosed..

blueeyedmanda Community Regular
blueeyedmanda
Posted

GERD also causes that feeling as well. I would get it checked it out though.

georgie Enthusiast
georgie
Posted

I forgot to say that my throat is fine now. Eventually I had the full thyroid blood tests and an ultrasound that showed an enlarged multinodular thyroid ( goitre). It took about 8 weeks of changing Drs and getting appts etc - to reach this stage. All that time I could barely swallow and my voice was husky. I could only eat rice... After going onto Armour Thyroid - the Goitre eventually went away and a ultrasound done a couple of months ago showed that the swelling had gone and that all the nodules had disappeared. Luckily I started Armour before the nodules grew large. :)

PattiD2 Rookie
PattiD2
Posted

My DD has been diagnosed with eosinophilic esophagitis which is inflammation in her throat, probably caused by an allergic reaction. Diagnosis involves multiple biopsies taken in different areas of the esophagus to rule out GERD and to count the number of eosinophils in each area. This is a relatively rare disease but is being diagnosed more each year. Not all GI doctors know about this disease and it can be tricky to do the biopsies the correct way. Most often, they put you on reflux medicine prior to checking for EE to see if that may be causing the problem.

www.apfed.org has information on eosinophilic esophagitis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevieb Newbie
kevieb
Posted

reflux can cause that sensation in your throat----even if you don't get heartburn. i deal with this on a regular basis.

wowzer Community Regular
wowzer
Posted

I used to get that feeling too. I had a goiter and was put on synthroid. My thyroid was like 3 times the normal size. It is much better now.

BettyL. Rookie
BettyL.
Posted
Hi, recently diagnosed with wheat, oat, barley, eggs, soy allergies. Allergist didnt mention celiac term to me at all.

I have cut out all of the aforementioned products and the vicious rash and diarrhea went away.

Acupuncture really helped with rash.

Now I am dealing with this annoying and constant lump in my throat feeling. No reflux, heartburn, etc issues.

This feeling will not disappear! So annoying- not sleeping, constantly swallowing, ick!!!

Not sure what my next step should be.

Going to a new GP/ gastro guy next week- terrified of drs btw...

Any suggestions for blood tests, etc would be greatly, greatly appreciated.

thanks,

Jill

My haital hernia is giving me a sore throat , strachty feeling, lost of voice, pressure on my left breast. I didn't realize how swollen my throat was until I change my blood pressure medicine. At that point my throat swelling changed. For awhile it was thought it was the cause of my problem. Alas, it turned out to be my hernia is back. The endoscope did not show the hernia; but a barium swallow did.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.