Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Archived

This topic is now archived and is closed to further replies.

Judyin Philly

Alexis Stewart Bashing The Gluten-free Diet On Her Sirius Radio Show

Recommended Posts

WARNING ..RANT COMING...

I was just sent this from list serv. It's just a part of a long rant from Martha Stewarts daughter alexis's radio show- I will not print the rest of the text B/C IMO the rest of the text is in such poor taste.

This part about celiac is bad enough--

There is a email address where we can reply along with the thread with the entire site to read for yourself if you have the stomach for it. it's not about celiac

The Shows wednesday 8.08.2007

Allergies, Shmallergies


Judy in Southern CA

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


We are always hoping to have some publicity for celiac so people can learn....we do not need her negative thoughts on it. How would she like it if someone pointed out her infertility problems...it's personal and in my opinion so is celiac. After the initial diagnosis, lets face it, the next few weeks months (transitional phase) is very emotional.....I am sending an email tomorrow!!!!!


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

Share this post


Link to post
Share on other sites

At the end of your link, there is an "e" missing!

And yes, it's really stupid, I will write them an e-mail, too. What was she thinking? <_<


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

Share this post


Link to post
Share on other sites
At the end of your link, there is an "e" missing!

And yes, it's really stupid, I will write them an e-mail, too. What was she thinking? <_<

thanks steff, think i corrected it. if anyone else has problems let me know.

did you guys read the whole thing? maybe I'm just jaded but didn't seem nice to me on so many levels...

Manda, did i read you got food posioning on your b/day??? hope it's not true.

thanks for writing.

i warned them we might 'crash' their system with 'emails'

:lol:


Judy in Southern CA

Share this post


Link to post
Share on other sites

There wasn't a possibility to listen to it in the archives, at least I didn't find it. But there's a bulletin board and I just gave gluten into the search. Maybe somebody already officially ranted on there. If so, I'm joining and if not, I'm becoming a member (it's for free, just like on here) and will rant officially. You can join me, if you want. I'm using the same name, then on here...


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

Share this post


Link to post
Share on other sites

EDIT BY JUDY--FRIDAY

HERE IS THE FULL WRITTEN TEXT-

SCOTT WILL PROBABLY REMOVE IT AT SOME POINT BUT IT'S ON THE INTERNET.

The Showswednesday8.08.2007

Good morning..

ok took it down myself. I thought about some the stuff they wrote about and just not comfortable in leaving it up....esp the paragraphs about the special..'cookies' and the dinning out experience one observed...

the only reason i put it up was to show what dolt's they were and hopefully those who listen to them 'are of like minds' and won't give our 'serious medical diet' more press of this kind.

one of my friends on Daily Strength wrote a powerful letter to Ms Stewart..telling of her personal struggle with celiac and related cancer. I'm asking if i can post here. It was an amazing, intelligent letter..

write a note if you can find a few seconds..

thanks judy


Judy in Southern CA

Share this post


Link to post
Share on other sites

I read it, and it reads like a bunch of airheaded attention seekers. gluten-free is a hot,hot subject right now, so they are just trying to be au courant! Sounds like she didn't inherit Martha's smarts.


Iron deficiency without anemia, unexplained weight loss 2/2003

Positive celiac biopsy 4/2003

Autoimmune thyroiditis 8/2005

Gluten Free Since 2003

Share this post


Link to post
Share on other sites
Guest Doll
I may be missing something, but I just spent a great deal of time skimming through your posts. I saw one reference to a study I had previously seen. It says that the stool tests gave positive results for folks who weren't officially celiac. Well, that really begs the question doesn't it? Dr. Fine doesn't claim that any of his tests diagnose celiac disease. What I didn't see in your previous posts is how positive stool tests are for "perfectly healthy people." They are just people who are not diagnosable in the traditional way as celiac. If one accepts that gluten can be causing problems before damaged villi can be seen or can cause problems other than to villi -- in other words, things that mean folks are NOT perfectly healthy but are not celiac -- then the study means very little.

Is it your position that if someone cannot be diagnosed as celiac then by definition they do not have a problem with gluten and are "perfectly healthy?"

You say: "To some extent, almost everyone can test positive for stool antibodies to anything at some point. When we eat foreign substances (food) we create antibodies that often show up in stool." This is the first time I've seen this. Please elaborate. I have tried researching on Pub Med BTW ... the only thing I've ever found is the study already discussed.

I agree I would like to see this stuff get peer reviewed and published. Unfortunately in the real world one must sometimes act on less than perfect information.

From what I can tell, there are far more wasted resources from doctors not running all the necessary blood tests, taking enough biopsies, running these tests after gluten-free diets have been followed (and so are invalid), refusing to do celiac testing, etc.

Ummm...who are these idiots, and who is dumb enough to listen to them? Sad, sad, sad...I think my IQ dropped 50 points just reading this.

P.S. This is why I am scared. If people think I am "lying" about my "gluten allergy" (Celiac) when I go to restaurants or think I am on a "fad diet", my health and life is at risk. It's really terrifying. If the gluten-free diet is seen as a massive fad diet, it is not good for any of us.

Share this post


Link to post
Share on other sites

Well stated, Doll.......I was at a dinner meeting last week.......asked the manager if they could do gluten-free for me...he said yes......but my server told me he used to have a problem with wheat, and understood what I needed......said he'd "take care of me".....and I swear I think I got invisible gluten somewhere that night at a low level. Belly cramping,bloating within 1 hour of leaving the place. Hope it wasn't intentional, but it's easy to get paranoid about it at times,especially when he said it didn't bother him anymore. I'm having the muscle cramps and twitchy legs 4+ since then...I won't go back there for sure.

We are NOT a fad diet!!!!!!!!!!!


Iron deficiency without anemia, unexplained weight loss 2/2003

Positive celiac biopsy 4/2003

Autoimmune thyroiditis 8/2005

Gluten Free Since 2003

Share this post


Link to post
Share on other sites
Ummm...who are these idiots, and who is dumb enough to listen to them? Sad, sad, sad...I think my IQ dropped 50 points just reading this.

P.S. This is why I am scared. If people think I am "lying" about my "gluten allergy" (Celiac) when I go to restaurants or think I am on a "fad diet", my health and life is at risk. It's really terrifying. If the gluten-free diet is seen as a massive fad diet, it is not good for any of us.

This is why I posted.

I've been saying this all along on this forum when people say...any attention to celiac disease is good.

I didn't and still don't agree with that.

What I do agree with is ...THIS IS A SERIOUS ISSUE...and when we see something like this sailing out there on the cyber space..I FEEL IT'S UP TO US TO try to respond to these 'air heads' (thanks gluten-free MEMPHIS) let them know that we will be responding to their stupidity. plus, the whole rest of the talk show was 'trash' talk in my opinion. Will leave it up tonight but probably erase tomorrow as some of it is abhorrent IMO. Don't want to give them free space on here but rather to show just how really stupid the women are.

thanks for reading.

ps Doll ...what does 'hathor's quote have to do with this discussion..was it a error in pasting here?

just courious.


Judy in Southern CA

Share this post


Link to post
Share on other sites

I tried to read through that junk and had to skim it. Airheads indeed!

And odd they should mention cilantro. A waitress at a restaurant where I used to dine has a life threatening allergy to it. Alas, we can't eat there any more now that they changed the menu.

Share this post


Link to post
Share on other sites

Yea--I think "airhead" pretty well sums it up.

That Alexis sounds like a real piece of work <_<

An interesting note on that latest NYT article on gluten that had her in such a tizzy--it ended up in my mailbox! :D My neighbor, who knows I have Celiac, read it, cut it out, and left it for me. There was a nice note with it--so thoughtful.

Articles like this really get my dander up--the gluten-free diet is the only treatment for our disease. It needs to be taken seriously by people who write for the public. It's just irresponsible to treat it as a fad, or begruge us the occasional, accurate press that we do get. If they don't get it, then they should educate themselves--I guess that's too much to expect.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

Share this post


Link to post
Share on other sites

I just sent a scathing (yet informative) email.

That is beyond infuriating. She is a spoiled little girl, who has worked for nothing, and is only successful because of her mother's hard work.


Jillian

Positive Blood test and Biopsy

Inflamed stomach lining

Gluten free since July 6, 2005

Tarrytown, NY

"Sometimes being a b$tch is all a woman has to hold onto." - Dolores Claiborne

Share this post


Link to post
Share on other sites

THANKS JILLIAN

APPRECIATE YOU WRITING.

AFTER I GET BACK FROM DR APT WILL COPY A WONDERFUL LETTER FROM A FRIEND.

IF THIS LETTER DOESN'T HER ATTENTION NOTHING WILL.

JUDY


Judy in Southern CA

Share this post


Link to post
Share on other sites

HERE'S THE GREAT LETTER MY FRIEND SENT.

Ms Stewart,

It has come to my attention through a friend, that you have a negative attitude about people with Celiac disease and the need for a gluten free diet and gluten free restaurants.

Well, I must tell you....you need to read up quite a bit on the subject.

I was diagnosed with Celiac Disease June of 2006 at the same time I was diagnosed with Lymphoma stage 4 that was caused from the Celiac Disease. I had been ill for a long time.....the final testing is when all of this was discovered. Thankfully--I am in remission from the cancer after undergoing 10 months of chemo. I just turned 60 years old this year, my doctors believe that I had Celiac ever since childhood and was misdiagnosed all these years. Had I known, I certainly would have been following the gluten free diet and would welcome restaurants where I could safely dine.

Did you know that 1 out of every 133 people have Celiac Disease and do not know it?

Lord, knows we want to eat too. Those of us with Celiac Disease also develop other intolerances, i.e. soy, dairy, nuts. I also have Chron's disease...so I am limited with foods for this disease, and now my doctors are testing me for Oxalate intolerance!!!!! Gee, it would be so nice to have articles/recipes in magazines and newspapers to help others who may be experiencing food related problems.

We, in the Celiac community have been begging our Senators and Congressmen to pass a bill to help educate everyone in the medical field from doctors to insurance companies about this Disease.

It would be helpful if celebrities, as yourself and your mother, would educate yourselves and climb on board with us to educate the world. This disease, if left unattended, can cause cancer and other serious related problems. I know it happened to me!

"They used to put out some really great recipes but now they only feature articles about weird and


Judy in Southern CA

Share this post


Link to post
Share on other sites

HI DEAR FRIENDS

YOU GUYS ARE ON YOUR OWN NOW. I FOR ONE WILL NOT WASTE MY TIME TO RESPOND TO 'AIRHEADS' WHO WILL NEVER GET THE SERIOUSNESS OF THIS DISEASE IN A MILLION YEARS. I AM PARTICULARY ANGRY AT THE 'FLIP' COMMENTS ABOUT CANCER ESP. AFTER 'MY FRIENDS' PASSIONATE PROFESSIONAL LETTER.

I ONLY POSTED THE RADIO SHOW TEXT THAT RELATED TO CELIAC. THE REST OF THE TEXT SO FILLED WITH SEXUAL REFERENCES (AS THERE WERE IN THE FRIST ONE) I WILL NOT RE PRINT IT.

WE TRIED...AND THANK YOU..JUDY

From list serv this am--

Subject: Re: Martha Stewart's daughter bashes gluten free

Poster: Ariel-arielsetzer@BELLSOUTH.NET>

_______

If any one listened back to the show which is repeated at 11 at night, was also discussed again today in length . . . Alexis did not bash gluten free diets. In fact she pretty much eats a gluten free diet. She was simply bashing people who LIE about having an allergy in order to avoid food the simply don't like. So, if you think about it, she actually OUTED the very people who make light of someone who actually SUFFERS from a forced restricted food diet.

Also, she's not just Martha Stewart's daughter, her mom has nothing to do with what she (Alexis) thinks or says. If she's important enough to discuss, then discuss her by name. It's only polite.

______________________________

JUDY WRITES...""AH, I THINK WE DID ADDRESS HER BY NAME IN OUR EMAILS...DAGH!!!!""

____________

Reactions to Wednesday


Judy in Southern CA

Share this post


Link to post
Share on other sites
ps Doll ...what does 'hathor's quote have to do with this discussion..was it a error in pasting here?

just courious.

I was wondering that myself.


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

Share this post


Link to post
Share on other sites

I was also wondering what message board they meant. The one on their website or ours??? If they meant ours, then it's not just posted on "some message board", like they said. It's absolutely posted on THE correct message board. What the??? <_<

And I can't get rid of the feeling, that they just make these statements to save their reputation. They are not really interested in us?!? How can so many celiacs misread the test of a show. I don't get it!!!


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

Share this post


Link to post
Share on other sites

I think you're absolutely right, Stef. My take is that they put their collective foot in their mouth, and had to quickly spin things. <_<


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

Share this post


Link to post
Share on other sites

THANKS GUYS

HAVEN'T GOTTEN ON C.COM YET TO READ BUT YOU KNOW :blink:

WHAT THE HECK IS THE MATTER WITH ME :blink:

CALL ME NAIVE...IT WON'T BE THE FIRST TIME-- :lol: --BUT 'RATINGS NEVER ENTERED MY MIND'

GUESS I DON'T THINK THAT WAY...BUT STUPID AIR HEADS SURE DID :o

PATTI...BACK PEDDLING IS A GOOD WAY TO PUT IT

I'M SURE YOU ALL READ BRONCO'S (CHRIS) OUTSTANDING LETTER.

HAVE A GREAT DAY EVERYONE .

JUDY


Judy in Southern CA

Share this post


Link to post
Share on other sites
bottom line, Martha is probably just testing the waters to see if a "Martha Stewart cooks gluten free" cookbook would be a runaway best seller. Wonder how long till it comes out :rolleyes:

LMBO!!!


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

Share this post


Link to post
Share on other sites

QUOTE(gfpaperdoll @ Aug 12 2007, 08:32 PM)

bottom line, Martha is probably just testing the waters to see if a "Martha Stewart cooks gluten free" cookbook would be a runaway best seller. Wonder how long till it comes out

GREAT ONE... :lol:


Judy in Southern CA

Share this post


Link to post
Share on other sites
I think you're absolutely right, Stef. My take is that they put their collective foot in their mouth, and had to quickly spin things. <_<

Heaven forbid it be a gluten-free foot!

:D


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

Share this post


Link to post
Share on other sites