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Casein Free Too?

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I got my results back from Enterolab, which showed I'm gluten-intolerant, as well as having the HLA-DQ1,1 gene (2 copies of it). Plus, it says I have the antibodies for casein too. I'm waiting for the results of my biopsy from Friday, to see if I'm "officially" celiac.

My question is, since I have the antibodies to casein too, do I HAVE to go casein free now?

I'm back gluten free again (4 days now!) and that's a hard adjustment, though I know my fibromyalgia symptoms will go away without gluten in my system. What happens if I don't go casein-free too? That seems so overwhelming, being gluten & casein free! (And having a husband & preschooler who eat normally).

Any advice on this would be appreciated.


Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07

Enterolab positive for gluten, casein, soy, egg

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07

Casein free 8/27/07

Soy & egg free 9/8/07

Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09

Starting various supplements/vitamins in hopes of feeling better!

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Celiac.com Sponsor (A8):

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I am also casein free and it's not that hard. It was really hard in the beginning, but it gets easier. Since you have the antibodies, you should stay away from it. If nothing else, a lot of people go casein free at the beginning (few months or so) until the villi repair themselves. It is up to you. I never noticed that dairy was bothering me until I went cf and now I get really bad migraine headaches when I eat it, so it's not worth it.


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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