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Hi everyone,

Would really appreciate some insight.

For the past three years i have had gas, runs, tiredness etc. I had just come back from a stint o/s so doctors sent me for numerous tests to see if i had contracted some sort of o/s parasite-no!

THEN i was diagnised with IBS, i had heard about gluten intolerances and went to my doctor to get a blood test and since then have had three more..all came back negative.

When i went to see a specialist he was like again you have IBS but i will do a gastroscopy/colonoscopy to apease you but i am sure you have IBS. I became frusrated and never had the tests done and thought well maybe i do have IBS as life is stressfull.

I then went to a Naturopath who informed me i am Gluten Intolerant and Lactose Intolerant! When i heard this i was annoyed thinking what on earth am i meant to eat now and no more chocolate!

Anyway, i went on this new diet and after a week began to feel a bit better but i relapsed and had some chocolate biscuits the other day and within half an hour i was sick but i was sicker than i ever have been before, is this because my body was beginning to get used to having No gluten and lactose?? AND my body responded so bad because of the reaction...How long does it take for Glutent to leave your body..???

This whole thing can be so annoying and if i do eat such food i am literally sick for a few days?? Does this happen to others?? I Am really confused!!!

Again would apprecaite any insight??

Thanks ;)

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Your story sounds very much like mine. It does take awhile for your body to heal. I am on month 4 and when I get glutened, it takes about a week for my bm's to be normal and for me to feel energized. You may have celiac, the biopsy is the gold standard of diagnosis. If you respond to the gluten free diet, then you probably need to be gluten free, especially since you reacted so strongly to your mistake. If you do want a diagnosis with a biopsy, then you need to continue to eat gluten until you have it done. Unfortunately, you may get another false negative if you don't. It sounds like the naturpath can help guide you through this experience. This forum is great for getting answers! Good luck and welcome.

A couple things that might help you as you heal:

you may want to try a probiotic to help get some good bacteria in your system

alot of people have great lists for first timers on their personal accounts. Noglugirl has a really good list that can help get you started.

Terri


Diary free 11/06-6/08

Now using a small amount of low-lactose dairy such as aged cheeses and yogurt. Yum!

Gluten-free since 4/07

"When you row another person across the river, you get there yourself."

- Fortune Cookie

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Just give the diet a chance. Concentrate on doing what is necessary to feel better and see what happens. A negative response to a relapse is an indication in itself. Take it one step at a time. Understand that if you have to give up something (gluten) you have the possibility of getting something (a better quality of life) in return. Think positive and good luck.

Tom

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Guest j_mommy

Yes, When I get glutened or CC'd I am not myself for days!!! big D and EXHAUSTED!!!!

Hang in there...the first few weeks are hard but it gets easier.

Also you said you were going to do an endoscopy...if you are interested in checking for celiac you need to be eating gluten!!!!

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Hi everyone,

Would really appreciate some insight.

For the past three years i have had gas, runs, tiredness etc. I had just come back from a stint o/s so doctors sent me for numerous tests to see if i had contracted some sort of o/s parasite-no!

THEN i was diagnised with IBS, i had heard about gluten intolerances and went to my doctor to get a blood test and since then have had three more..all came back negative.

When i went to see a specialist he was like again you have IBS but i will do a gastroscopy/colonoscopy to apease you but i am sure you have IBS. I became frusrated and never had the tests done and thought well maybe i do have IBS as life is stressfull.

I then went to a Naturopath who informed me i am Gluten Intolerant and Lactose Intolerant! When i heard this i was annoyed thinking what on earth am i meant to eat now and no more chocolate!

Anyway, i went on this new diet and after a week began to feel a bit better but i relapsed and had some chocolate biscuits the other day and within half an hour i was sick but i was sicker than i ever have been before, is this because my body was beginning to get used to having No gluten and lactose?? AND my body responded so bad because of the reaction...How long does it take for Glutent to leave your body..???

This whole thing can be so annoying and if i do eat such food i am literally sick for a few days?? Does this happen to others?? I Am really confused!!!

Again would apprecaite any insight??

Thanks ;)

You just did a gluten challenge. The results were positive. It is common for the symptoms to become worse after going gluten free and then getting poisoned. Your body is going to tell you in no uncertain terms that if does not want you eating it again. This is how some of us who are unfortunate and have false negatives on blood work are diagnosed. Unfortunately in my case it took 15 years for a doctor to think to suggest it. It took 2 weeks off gluten and then 3 days on for my body to react violently. That was 5 years ago, after 40 years of debilitating neuro and joint problems and 15 years of serious illness and thousands of dollars for tests.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You've gotten some good advice.

All I can add is -- dark chocolate, hon! Come over to the good stuff -- you won't want your chocolate adulterated with dairy ever again :lol: In addition to the straight stuff, I've seen recipes & mixes for chocolatey delights that are also dairy free. Despair not :wub:


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

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