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Is Anyone Else A Double Dq9 ?

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Now that I may have figured out, with much assistance (Thanks y'all), what I am, I am wondering how many others are also DQ 9. Mainly I am wondering if others with the same gene are prone to the same amount of early neuro damage and if they have the same extreme reactions from alcohols and vinagers. I know one of my children reacts as violently as I do, and I know he has to have at least one DQ 9 from me, the other must have also but she has been off her diet and supposedly asymptomatic since some doctor in Boston told her she doesn't have celiac genes.

Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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