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Hadleygirl02

Negative Stool Test?

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My daughter had a blood test last week and we are still waiting on the celiac portion of it. Hopefully, today or tomorrow those results will be in.

I did a 3-day stool collection and we did get those results this morning--NORMAL.

It is not that I WANT her to have Celiac Disease. But I just want an answer. In a strange way, I did feel some sense of relief when the gastro told me that she strongly suspected celiac--because it is an explanation and there is a SOLUTION.

My big fear is that we will never get an answer as to WHY she has so many GI issues. :(

The dr. said if the celiac tests all come back negative, we will move on to an u/s and possibly an intestinal biopsy, etc.

I just want some sort of answer.

How accurate is the stool testing? Anyone ever had a stool test come back negative, but blood test come back positive?

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My daughter had a blood test last week and we are still waiting on the celiac portion of it. Hopefully, today or tomorrow those results will be in.

I did a 3-day stool collection and we did get those results this morning--NORMAL.

It is not that I WANT her to have Celiac Disease. But I just want an answer. In a strange way, I did feel some sense of relief when the gastro told me that she strongly suspected celiac--because it is an explanation and there is a SOLUTION.

My big fear is that we will never get an answer as to WHY she has so many GI issues. :(

The dr. said if the celiac tests all come back negative, we will move on to an u/s and possibly an intestinal biopsy, etc.

I just want some sort of answer.

How accurate is the stool testing? Anyone ever had a stool test come back negative, but blood test come back positive?

What are they testing the stool for? My daughter had three day stool sample, but it was to check for bacteria and white blood cells, not celiac. It came back normal except for some bacterial overgrowth. She also had a celiac panel drawn. It took over three weeks for the test results to come back. She had such terrible constipation, I couldn't wait that long. I started her on gluten-free diet and she improved w/in a week. When the results came out she was Negative for celiac. I was very confused. I took her off the diet to see if it had been a fluke, but instant constipation again. I heard celiac panels are not very accurate, especially when it comes to children. Eventually I had her tested though enterolab https://www.enterolab.com/Home.htm and found she was gluten intolerant. Also, you may want to look into the gluten-free/casin-free diet if eliminating gluten alone does not help. Hope this helps. Good luck!

Stacy

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My daughter had a blood test last week and we are still waiting on the celiac portion of it. Hopefully, today or tomorrow those results will be in.

I did a 3-day stool collection and we did get those results this morning--NORMAL.

It is not that I WANT her to have Celiac Disease. But I just want an answer. In a strange way, I did feel some sense of relief when the gastro told me that she strongly suspected celiac--because it is an explanation and there is a SOLUTION.

My big fear is that we will never get an answer as to WHY she has so many GI issues. :(

The dr. said if the celiac tests all come back negative, we will move on to an u/s and possibly an intestinal biopsy, etc.

I just want some sort of answer.

How accurate is the stool testing? Anyone ever had a stool test come back negative, but blood test come back positive?

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The best and most accurate stool test for celiac is from Enterolabs (enterolabs.com) You can order a DNA test along with it. Sometimes it will come back positive and the blood parameters come back negative. Even though it isn't the gold standard in the medical community like a biopsy would be. I feel that its a less invasive way and can show when the celiac is beginning its process. Plus if the genetic markers are their along with the other findings it would be a matter of time when the other mechanisms of Celiac would show its face. Its tests anti tissue transglutaminase, anti gliadin antibody in the stool along with DNA from a cheek swab. You can also add a soy, milk, egg, and yeast antibody test along with it.

Its just a one time stool collection

Good Luck!

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