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jenleebee

Rebuilding Your Life

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Hello -

It feels a little premature to be posting this, as I have only been gluten-free for only less than a week. I am so thankful to be feeling better - gut ache diminished, rashes clearing up, feel steadier emotionally, clearer thinking and feeling like I am actually on a healing path that makes a real difference, but I also feel like I am waking up from a life-long deep sleep and am looking around at my life feeling *lost*, maybe because up until now has it been consumed/fixated on feeling horrible and then looking for answers to why I feel so bad.

I was hoping to get a dose of inspiration from hearing about other people's experiences and stories of how the health improvements/healing from being gluten-free helped you to transform other areas of your life, like work, relationships, goals, new interests, etc.

I'd also be interested in hearing any stories about how anything that was difficult or seemingly impossible (learning, social interactions, etc) got better after going gluten-free.

Thank you so much!

Jen

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Hi Jen,

I have been at this since April. I don't get the whole gut reaction but do have horrible joint and muscle pain. When I was first diognosed I could not even walk to the bathroom without support. I sat in a chair all day and did nothing but watch TV. I don't do that anymore. I have pain still but it is no where near what I had. I have been able to reduce my meds and am slowly coming off of them. I can now do my job without help. I have more stamina, energy, and feel happy again. I am in the process of eleminating corn and rice from my diet as well as gluten and am feeling much better since doing that. I have a very supportive family and as far as social settings go I just bring my own food, explain that I have alergic reactions to a lot of foods and don't want anyone to go to any trouble accodmodating me. Dining in restruants I eat salads and bring my own dressing, or eat a baked potato. It's filling and works just fine for me. When people ask how I can give up wheat and/or gluten I tell them It's not a choice it's poison for me and then educate them. I also make a point to let them know I am grateful to God for giving me an answer to my health problems that can be solved so easily by just changing my diet. No surgery, dialisis, chemo, medicine, etc. it lightens up the mood and makes people look at it in a different light.

Yellow Rose

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Hi Jen,

I think you are going to be a little shocked in the ways that you feel better and never knew anything was wrong. The first few months of going gluten-free my moods were stable and I felt better than I had ever felt in my life. That feeling spills over into other areas of your life. So some of the changes will be great others changes may be hard for people to accept. In the end, consider this a new beginning for you. Enjoy it.

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I've been at it since April too, not dramatic change yet but slow change, enough that I think I am on the right track. Still a lot of ups and downs, but now a few great days here and there when I really feel energetic, and like I have a life back.

I second Yellow Rose, I am grateful for an answer for which the treatment is dietary and not drugs. I am still taking a ton of stuff but I hope that will get better over time as my body heals.

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Guest j_mommy

Alot of us gluten-free since April!!!!

At first I was like there is noooo way I could do this!!! But know I can go to the grocery store and not feel over whelmed, I pick up a product and look at the list of ingred. and know what to look for!!! There are still ups and downs for me but I feel a ton better now!!!

Good Luck!

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Guest thatchickali

I'm only a month and a half into my recovery...not completely healed yet. (I think there might be another intolerance)...

Anyway. I know exactly how you feel. It took me a couple days for it to hit me and I just had a hard time comprehending that I wasn't going to feel sick for the rest of my life.

It's good that you have a positive outlook though!

For me, every new experience (like dealing with friends, family, planning for holidays) it gets really hard. Sometimes I just need to lock myself in my room and cry, but I think that it naturally takes time to accept these things and let it become a lifestyle.

Sometimes I feel like I'm back in an infantile stage, relearning life.

It's a long road.........

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I have been gluten-free since May, so I still very clearly remember how incredibly lost and awful I felt emotionally when my doctor told me. I had just graduated from college, all my friends were scatted to the ends of the earth, and I was living with my parents again. I remember sitting in front of the TV for a straight week, eating popcorn and trying not to cry every time I saw a commercial for a food I could no longer have. I had no support group, and I truly felt like my life was over.

But after that week, I noticed that I was really starting to feel better. I only had DH, so the rash was still there and extremely itchy (usually waking me up at night), but I wasn't so fatigued, my afternoon headaches had disappeared, and I could walk into the grocery store without thinking "poison" at everything I couldn't eat. Things do get better - I remember my parents and other family telling me this, and I thought they were nuts - they had no idea how I was feeling, they didn't have to follow my insane diet, but it turned out to be true.

Eating out still presents a challenge. Sometimes restaurants don't take me seriously when I tell them I cannot have food that has touched any bread product (so don't just pick the croutons out of my salad, and don't put my burger on a bun), but I've found that if you stress that you are allergic, they shape up. Outback (and the other restaurants under that corporation) has a gluten-free menu, and they take special care to make sure all your food is "clean".

I hope this helps - for me, the key was finding alternates, not substitutes. Like, instead of just buying the gluten-free version of Wheaties, I have yoghurt, or eggs. Good luck! B)

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