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vanillazeis

Medicalert

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forgive me if this has already been covered... what do you guys think about medicalert bracelets? my three year old has celiac and asthma. necessary or no? thanks guys!!!


Breanna

& Bayleigh <3

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I hadn't considered that before! I guess, unless some of the other members came up with a reason why it would be a good idea, I probably would not get one for my son. If he had an allergy that caused a histological reaction (like swelling of mouth/tongue, breathing difficulties) then I would.

In your case, I think I would be more likely to get her one for the asthma than for Celiac. I'm interested to see what others say!

-Sarah


-Sarah

--Son, Lucas, age 7. Gluten-free since May 2007

--Son, Ezra, age 5. Gluten-free 10/13/07. Bipolar tendencies, massively improved on gluten-free diet! He's also allergic to a jillion antibiotics.

--My mother has Celiac Disease, dx'ed by Positive Blood Tests and Biopsy. Diagnosed Sarcoidosis 6/08.

--Myself, Gluten-free since 8/07

Time heals all hurt of heart... but time must be won.

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This has been covered before. What sticks out in my mind was that if your child can't talkf for some reason (unconscious, etc.) and the paramedics get to her...you wouldn't want them to be afraid to give her something that may have gluten in it, if it's going to save her life. I would do it if she had anaphylaxis to something, but otherwise...I don't think its necessary. I had asthma when I was little and it we never thought about a medicalert, because I always had my inhaler with me, so they (paramedics, medical professionals, etc.) would have known.

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Guest j_mommy

I would say yes to the asmatha, no for the celiac b/c for some EMTS, time would be wasted just trying to figure out waht it is....I'm saying this as I live in a rural area and talked to some EMT's and they had no idea what celiac is!

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MedicAlert is a veruy good Idea if you child has a condition or Allergy that could threaten her life! Like my son, he's had a Medicalert Bracelett since he was two for his epilepsy and contraindication to Benedryl, since this yerar it also has on it that he has a Braininjury and Sensitivity to Morphine! Since my son has to have his Meds tyo continue to keep him good and not worse, after an accident and him not receiving his Meds, he HAS to have the MedicAlert Bracelt, wher eyou can update the Information on Meds, and conditions online!

If your daughter only has Celiac, I do think it is important for her to have a Bracelett since her receiving maybe somehting in case of an Emergency in the Hospital that has wheat asnd could possibly worsen her! I think it's a great idea, it can never hurt be too carefull. Sopecially due to the numvber on the back and her Casenumber (not name() on it, Medicalpersonal can call them around the clock and receive the information what Meds she usually takes in case of a Asthmaattack adn so on! If you think she does not need that you just want people to be aware that she has Celiac and Asthma then you can get one fo the regual Alertbr5acelelts with the information of Celiac and Asthma on it. there you don't have to pay a monthly fee!

Overall I can highly recommend the Medicalert, in the first signupfee is the first bracelett already included! they'll put Asthma and Celiac on the Bracelett and evtl. if hse has an Allergy to a Med or so. If she does get in an accident with school, daycare or even with you and your huisband. You guys are may unconcious, nobody knows who you guys are. they can call there tollfree, find out her name and age, can find out her Allergies and Medications she takes, when and how often ect. as well as ALL kind of Emergency-contacts she has (including you- and you can manage those online and update them when needed as well as Meds ect.) as weell as who her Ped. is or her Gastroenterologist ect.!


Susi with Shayden and Brandy

Shayden, pos. with DQ 2, pos. for Glutensensitivity with Tissuetransglutaminase Stool TgA 45 Units

Brandy, pos. with DQ2 + DQ8, DX Celiac Nov.07, gluten-free since Nov. 1st 07, Tissuetransglutaminase Stool TgA 63 Units

Me: Gastroscopy negative f. Celiac, IBS, Oesophagitis, Hiatus-Hernia

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I think for asthma, it's plausible, but for celiac it's not as critical. I have a post-it note on my Insurance card. I figure once they get me stable, they are going to want to charge my insurance company, then they will find out my gluten staus and then they can care, but they won't be distracted while saving my life. I'll take some busted villi if they take care of my busted head! :P

Just my take!!


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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My 3 dd's and I all have one. I have it listed as "Allergic to Wheat, Barley, Rye, and Oats." I did it more so that if I were injured and can't talk, then ppl will know how to take care of my kids. I do travel alot alone w/ my kids. I know it isn't life-threatening, but it does make them very uncomfortable for a few days, and if I am very sick and in the hospital, they don't need any more misery. Also, some adults don't always believe a child when they say they are allergic to something. My DD#2 also has asthma and an allergy to Benzocaine, so both of those are also on hers. Plus they have the added bonus of having thier name on them (2 of my celiac dd's are only toddlers) in case they get lost. And when we got them, we were able to get a free online medical registry. So I can update all of their info on their with the contact info for me, hubby, and extended family and friends. I got ours from http://www.americanmedical-id.com. I just feel more comfortable knowing my dd's are wearing them.

ptkds


ptkds

Mom of 4 beautiful girls (the 2 youngest are only 10 months apart!)
Diagnosed with Celiac disease on November 8, 2006; gluten-free as of 12-1-06.

DD#2 13 years old; diagnosed on November 28, 2006. gluten-free as of 12-7-06.
DD#3 9 years old; diagnosed through blood work in October 2006. Gluten-free as of mid-November and doing GREAT!!
DD#4 8 years old; had a scope done on 6-22-07 (at 14 months old) and the dr saw stomach ulcers, but all test results were negative. GI dr told us to put her on the gluten free diet anyway. She is gluten free as of 6-22-07.

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I am an insulin dependent diabetic, and have a Medic Alert bracelet disclosing this, as everyone with type 1 diabetes should. Hypoglycemia due to excess insulin or insufficient food can be life threatening, and can be mistaken for intoxication. Since I already wore the bracelet, I had it updated after my celiac diagnosis to include "no gluten - celiac disease."

I would not get one just because of celiac, and I agree that there is some fuzziness about the value. In a life threatening critical care situation, I would not want to waste time worrying about gluten. But in a less acute situation, I would not want gluten-containing food fed to me if I was not sufficiently aware to explain my condition.

You decide.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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I think she should have the medic alert bracelet anyway because of her asthma, and it would be good to have celiac disease on it as well. If she is ever in an accident and already in shock, being given something that will make her really sick (gluten) on top of being in bad shape already, can't be good at all.

I have a medic alert bracelet for various reasons, and I have celiac disease on it, too.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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thank you all for your info!!! She also has an allergy to zithromax, although from what i've seen its usually prescribed for sinus/tonsil infections so i cant imagine it being used in a medical emergency, but better safe than sorry!! I think i'll go ahead with it, because she is on daily medication for her asthma, and her allergist said it's very important for other dr's to know she has asthma... i cant remember which drugs, but people with asthma shouldnt have all drugs. Sorry for starting a new topic on something that has already been covered, and thank you all for still answering me, even though im being repetitive. Our biopsy and second blood test just came back positive wednesday, so ill definately be around alot more often!!! thanks for the help, guys!


Breanna

& Bayleigh <3

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You know, if it comes to that I'm sure every topic has been covered in here at one or another time! But we also socialize here, if somebody doesn't answer because they feel you should read up on it it's their thing, most people here I'm sure do not mind answering your questions even if the where covered at another point! We are here to talk and discuss and besides that knowledge about things changes, there might be new ideas and tips on a topic that has been already covered, it never hurts to bring it up again! So gbo ahead, I pesonally do not' mind answer to topics that have been covered! ;)


Susi with Shayden and Brandy

Shayden, pos. with DQ 2, pos. for Glutensensitivity with Tissuetransglutaminase Stool TgA 45 Units

Brandy, pos. with DQ2 + DQ8, DX Celiac Nov.07, gluten-free since Nov. 1st 07, Tissuetransglutaminase Stool TgA 63 Units

Me: Gastroscopy negative f. Celiac, IBS, Oesophagitis, Hiatus-Hernia

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forgive me if this has already been covered... what do you guys think about medicalert bracelets? my three year old has celiac and asthma. necessary or no? thanks guys!!!

I have been thinking off getting one for my daughter as well for the same reasons. Medication has to be watched as well as foods. have you started a safe meds list? that is really important.. medications are damaging also.

vvvvvvvvvglgl

lynn


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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I got one for my daughter who is only celiac from Laurenshope.com. Reason being we travel quite a bit by car and plane. If we should ever get separated My number is on the back along with her name and wheat intolerance/gluten free diet. Just incase some helpful employee or grandma wants to give her a cookie. She will probably be to upset to remember to tell them she has celiac. Once she is older she probably won't need it but for right now, I figure it can't hurt.


Melissa

Diagnosed Fibromyalgia March 2007

Mom to Katharine, 5 years old diagnosed Celiac Disease Sept 2006

Peanut allergy

Michael 3 years old diagnosed infant reflux at 6 weeks

Dairy Soy allergy until 22 months

Neg blood tests and biopsy Feb 2008

Positive gluten-free dietary response

You may have to fight a battle more than once to win it.

Margaret Thatcher

Fall down seven times stand up eight.

"I've decided that after air, water, and dirt, the next most common substance on the planet must be gluten!"

Toni Nolte, Overland Park, Kansas

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I got one for my daughter who is only celiac from Laurenshope.com. Reason being we travel quite a bit by car and plane. If we should ever get separated My number is on the back along with her name and wheat intolerance/gluten free diet. Just incase some helpful employee or grandma wants to give her a cookie. She will probably be to upset to remember to tell them she has celiac. Once she is older she probably won't need it but for right now, I figure it can't hurt.

it has her peanut allergy on it as well! :rolleyes:


Melissa

Diagnosed Fibromyalgia March 2007

Mom to Katharine, 5 years old diagnosed Celiac Disease Sept 2006

Peanut allergy

Michael 3 years old diagnosed infant reflux at 6 weeks

Dairy Soy allergy until 22 months

Neg blood tests and biopsy Feb 2008

Positive gluten-free dietary response

You may have to fight a battle more than once to win it.

Margaret Thatcher

Fall down seven times stand up eight.

"I've decided that after air, water, and dirt, the next most common substance on the planet must be gluten!"

Toni Nolte, Overland Park, Kansas

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it has her peanut allergy on it as well! :rolleyes:

That is a wonderful idea- especially for travel. But it might also good for ICE to hospital they would see it, and have to treat following lines 4 the disease.


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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My boys have them. I like the idea of them wearing them in school. It helps remind the teachers that they cant have gluten. Plus is did help with some family members that thought celiac wasnt harmful. Some how if they saw the braclet they took it as more serious. I'm not sure how long they will wear them.. but for now they will.


April L. In NY

w/ Hunter 4 DX by biopsy on his 3rd B-day 7-28-06

Douglas 6, Gluten Intolerant, Biopsy Neg.

Virginia 10, tested neg.

And the hubby.

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