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Linda56

Some Testing Results

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My doctor did blood test on me for Celiacs. It was the one that has to do with the antibodies. Its the test with the Tg and so on. That test was negative. I went ahead and ordered the genetic test from Entrolab. I got it today. I am not sure it was necessary to order but did anyway. If the genetic test comes back negative I assume I can finally stop wondering if Celiacs is my problem. Is this correct in my thinking? I appreciate thoughts on this.

Linda

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Nearly everyone diagnosed with "celiac" will have one or two "celiac genes." However, some get it without the genes.

Also, you can have a problem every bit as severe from non-celiac gluten sensitivity and not have the genes, too.

So a negative result for "celiac genes" will just tell you that you probably don't have classic celiac. It won't tell you if you have a problem with gluten or not.

You should consider doing the other Enterolab testing or a dietary test to figure that out.


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

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Hi Hathor,

I am thinking I will continue to do some of the other test with entro lab. I am thinking I want to find out to if maybe I have problem with yeast. Thanks for letting me know what else might be going on.

Linda

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Your dr. can also order the gene test, which if you have insurance, may be cheaper than paying out of pocket for the gene test through enterolab.

The majority 95%+ of Celiacs have one of the two genes, but there are biopsy proven Celiacs without the gene....we have a few on this board.

Keep in mind that you may not have "true" Celiac, but a non-Celiac gluten intolerance...meaning you still have a problem with gluten.

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I went ahead and paid for the test. I have trouble with my doctor doing all I want. I hate to spend the money but figure if it gives me some peace of mind its worth it.

I guess I can't consider it all over with after all. I have an appt to see a gastro doctor and will talk to him about everything maybe he will do the right thing.

Linda

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