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mama2two

This Almost Made Me Cry!

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my daughter takes dancing and her instructor usually gives them a treat after dancing, usually a sucker, sticker, tatoo, etc. well last week she gave them sugar cookies and the first thing my daughter asked was if she could eat it, and I had to tell her no, also my 2yr old would want it, I knew, so i suggested she give it to her friend, and she did, but she really wanted to eat it, and when she got in the car she was licking the bowl that it was in, I guess there were crumbs, and I know she got a little gluten from doing that, but I did not say anything about it. Then she asked if she could keep the bowl, I said yes. I told her i was sorry that she couldn't eat the cookie, I said, I know it's not fair, but sometimes life is not fair, she was so grown up about it. She said it's OK mom, it's not your fault. I was so sad, I could have easily cried. her pedi's are speculating that she has celiac dx, even though her panel was just probable. we are waiting enterolab results and I do believe that she needs to be on the gluten-free diet, but I hate to deprive her if there is a chance she doesn't have to be. I guess we will see. I just thought I would share my story, I know others have had bad experiences too. :(

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Guest andie

Hi

It's the look of hopeful expectation before you say No that gets me! I hear you!

We have to keep telling ourselves that this will be better for them long term. A cookie is not worth 3 days of pain and feeling unwell. Licking the bowl though........ that's brutal!! But kids forget quickly and what I would have done was go home a cook a whole bunch of gluten free!

Talk to the instructor as well. Keep a sucker in your purse. I know my kids would have a sucker over a cookie any day!

Things will get better. Don't concentrate too much on what they can't have, but how much healthier they are now.

Andie ;)

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You don't realize how many "treats" cross your kids' path until you have to inspect every one! My daughter has really done well with the adjustment. Most things, she already knows or at least suspects that she can't have. She does always tell/remind me when she has had to turn something down because she knows that I will respond with the "We'll get you a treat when we get home." She's got an excellent memory once we get home, too, and usually has a request for a specific item! :lol:


Janet

Experience is what you get when you didn't get what you wanted.

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Poor baby. :(

Those situations just kill me. I've started keeping a FULL SIZED bag of M&Ms in my purse at all times to hand her when we have to turn down a treat. People who know me are shocked that I do that because pre-diagnosis I would NEVER let my girls eat that much candy. But I want her to have something way better than whatever we have to turn down.

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I promise, it gets better over time. Those situations are tough, but after a while the kids really get used to it. My little boy's soccer team always gives out cookies or some sort of gluten filled treat, at the end of each game. Jack doesn't even think twice about it now, he just grabs the drink and goes on his way like it's no big deal, LOL.

I also carry a bag of treats in my bag at all times for moments like that....if a surprise treat situation comes up, they know I have something safe they can have. They honestly don't even get upset about it now though. So, I hope that makes you feel a little bit better!


Tamara, mom to 4 gluten & casein free kiddos!

Age 11 - Psoriasis

Age 8- dx'd Celiac March 2005

Age 6- gluten-free/cf, allergy related seizures

Age 4 - reflux, resolved with gluten-free/cf

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My son at 3 years of age knows that he can only eat certain things. When people give him food items he is sure to ask "is it gluten free?" or "does it have gluten?". It's actually great to see that he knows or understands that he can not eat certain foods containing gluten or they will make him sick. He has been asking these sort of questions since he was almost 3.

I can only recall one time where my son got upset over the fact that he couldn't have something that he wanted to eat. There was a piece of candy and he couldn't have it so he said "but I want it, I don't care if it has gluten" we told him that it would make his belly hurt and make him sick and he said "I want to eat gluten". Finally in the end he knew he couldn't have it. It breaks your heart but I know if I did let him have it, he'd be suffering in the end.


Sarah- Mom to Carter & Lauren

Lauren 8/21/98- Has not shown signs of Celiac Disease as of yet

Carter 4/21/04- Diagnosed with Celiac Disease over Labor Day Wknd 9-05

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Poor baby. :(

Those situations just kill me. I've started keeping a FULL SIZED bag of M&Ms in my purse at all times to hand her when we have to turn down a treat. People who know me are shocked that I do that because pre-diagnosis I would NEVER let my girls eat that much candy. But I want her to have something way better than whatever we have to turn down.

I usually don't want my kids to have too much candy either, but lately I do keep snack size hershey bars and peanut butter cups in the house because I don't want her to be deprived. we also have M&M's sometimes but I have been not real happy with those type snacks because of all the artificial colors and flavors and other undesirable ingredients in those. I try to buy all natural snacks and things free of artificial additives, but I don't know if I should just disregard what I have read about these ingredients, and let them have the junk, just not too often. All this worry about diet and skin care products is overwhelming me at times. I have eczema so I scrutinize every label on everything making sure it doesn't have gluten in food items and doesn't have anything that will upset my eczema etc.

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((hugs)) BTDT. You didn't say how old your daughter was. I just sent my dd off to a Halloween party with a friend. She had to bring a package of store-bought cookies to the party. I bought Oreos for her to contribute. I sent her K-Too cookies and pretzels to eat for herself. Most of the time, she is okay with always being different. However, there are times that the tears flow and then we just cry and agree that it's not fair. Life isn't fair sometimes. But look at all the good things she CAN eat, and that I make for her. Its usually a short lived pity party.


Mom of:

Carleigh~ 10 years old, allergic to wheat, milk, peanuts, strawberries, and many EAs. She is currently soy-light and egg-light ~ celiac testing inconclusive by allergist.

Gluten-Free since 10/05 She's a gymnast. : )

Nick ~ 13 years old with no known allergies.

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my daughter, not yet 3, is sooo good about not accepting, and if the substitute teacher gives her something, she'll say "but it has gluten in it, miss!"

BUT we just tole her that her 1 year old brother might be able to eat gluten and that made her almost cry :( Then i felt bad for her!! Poor thing thought that all kids can't eat gluten and now her little brother can hopefully :) but i know she won't try gluten - the pain is too much for her!!

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