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jasonD2

Probiotic Concern

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Just made a frightening discovery- turns out the probiotics i have been taking for a long time now contain milk in them (jarrowdophilus). not sure when the company changed the formulation, but I may have been putting dairy into my system without knowing it for a year or more. could this have caused any serious damage if my body was reacting to dairy for all this time? i am severely lactose intolerant and cant handle any dairy at all. the supplements surprisingly werent giving me symptoms of lactose intolerance, but i have been dealing with bad constipation and poor bowel habits that have been worse over the course of the past 1-2 years. i'd appreciate any feedback - thanks


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

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Constipation is one of the more obvious symptoms of dairy intolerance. So, I guess it was probably due to the probiotic.

Yes, unfortunately, you may have been doing damage by taking this probiotic. It is too bad that they will put dairy into probiotics at all, with so many people being intolerant to it.

The probiotic from Genestra is free of all problem ingredients. You may want to try that one. Here it is usually only available through a naturopathic or homeopathic doctor. I don't know about the US.

Now that you know, I hope you will feel better soon.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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Just made a frightening discovery- turns out the probiotics i have been taking for a long time now contain milk in them (jarrowdophilus). not sure when the company changed the formulation, but I may have been putting dairy into my system without knowing it for a year or more. could this have caused any serious damage if my body was reacting to dairy for all this time? i am severely lactose intolerant and cant handle any dairy at all. the supplements surprisingly werent giving me symptoms of lactose intolerance, but i have been dealing with bad constipation and poor bowel habits that have been worse over the course of the past 1-2 years. i'd appreciate any feedback - thanks

Jason, You may not have been getting symptoms of lactose intolerance because you may not be sensitive to lactose any longer. Depending on how long you have been gluten free your villi may have healed enough to for you to handle lactose now. If you have an intolerance to casien, the protein rather than the lactose, the sugar in milk, that is usually permanent. One thing my naturopath told me when we had a hard time finding a soy and casien free probiotic was that saurkraut has many of the same probiotic properties. You could also do a short challenge with something like yogurt and see if you can tolerate it now, that would be another good way to balance the flora.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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thats true, however, ive only been gluten free for the past 2 weeks. my antibody test for anti-gliadin came back slightly elevated so i don't know how much villi damage has occurred (if any) but i do know that i am so sensitive to lactose that if i take a prescription med with lactose as a filler it will give me problems. havent experienced that with the probiotics, but my constipation and bowel function has gotten worse over the past 1-2 yrs and the whole time i was on those probiotics on and off.


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

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