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Skotty

Bagels...

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I have not been diagnosed with Celiac disease but I have been getting blisters on my buttocks for 8 years, I have seen 4 'specialists' and as I have Rheumatoid Arthritis every doctor says its something to do with that...well I did a detox in January omitting all gluten, suger etc from my diet and my blisters cleared up within 2 weeks.... I then started researching for a connection and found DH. I alway got my blisters when going on holiday, in USA I ate bagels every morning for breakfast and just suffered so badly, (my doctor said it was fear of flying that caused the blisters!) well to test my theory I ate no bagels for 3 months..no blisters...then 3 days ago I had one and today I have a cluster of blisters. Does anyone else only get the blisters with certain gluten foods? I have also had the blisters on my ears and elbows, but mainly buttocks, its so embarrassing I feel like a leper.

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Guest j_mommy

Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

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Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

Good advice however make sure the doctor is well versed in DH. You need to biopsy the area next to the blisters, not the blisters themselves or you will get a false negative. If you have an active blister you would not have to be eating gluten specially for the biopsy but you do need to be consuming it actively for blood testing and endoscopic biopsies. Even then there is a risk of a false negative.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

Thank You I will.

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