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getsetgo

15 Month Old Diagnosed Milk Allergy And Soya Intolerent!

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I will try and keep this brief! lol Sorry if tmi!

My son has had problems since birth with his nappies runny, watery, containing blood, mucous, sometimes being green/yellow, some absolutely stink! Also with a rumbling tummy, wind, colic and reflux. (The colic and reflux did sort themselves out around 6 months?

He was breastfed from birth with the occasional bottle of Aptamil thrown in just to keep him used to a bottle if the need ever arised. (later changed to SMA White and then Progress). He fed almost every half an hour for what seems forever, night times didn't change the frequency, he hardly ever slept and spent most of the early weeks and months awake.

I spoke with my GP and Health Visitor several times as I was concerned about the blood etc but was told that as long as he was thriving there was no problem. I asked the question about allergies/intolerances but was just fobbed off.

When my son was approx 12 months old I tried him on whole cows milk which resulted in him coming out in a blotchy rash, I took him to our local pharmacy who suggested it may be a milk protein allergy? Put him back on the SMA which lowered the severity of the symptoms for a while although not solved!

Eventually spoke with my Health Visitor who agreed and told me to put him on Soy Milk. Which I did for about a month! but the probem carried on, on some days getting worse where I was getting 5+ disgusting explosive stinking nappies a day and his bottom was so red raw and bleeding that I decided it was time for him to see the doctor who then referred him to Paeds.

When we saw the GP he was suffering with a night time cough, sounding chesty, eczema patches, sneezing amongst other things.

After speaking with the GP I tried him on Wysoy and again the symptoms cleared up somewhat.

I noted that Liquid milk whether SMA or Wysoy lessened the problems unless large quantities were drunk, but liquid milk cow or soya made the situation alot worse quite quickly?

I kept him on Wysoy until one night I ran out and had no choice but to try him on the SMA Progress again, no change! So he stayed on SMA until last Friday when we had our appointment with the Paeds.

After going through the history he was diagnosed with a Milk Allergy and Soy Intolerance and put on Nutramigen Stage 1. He refused to drink it so I was advised to slowly start mixing it into his SMA. On the Friday of the appointment he took 1/2 oz in a couple of his bottles and by the evening the nappy situation had started again. Saturday and Sunday things got a little worse so I introduced Rice Milk to try and cut down the amount of SMA he was having as I have been told to eliminate all dairy/soy from his diet. Yesterday Monday, 6 explosive horrible stinking nappies again! Today his little bottom is so sore he screams when I try and clean him, this morning we had an explosive nappy but the rest of the day has been ok, the only difference being he has had nothing at all with Gluten in nor the SMA which does have the milk proteinsm nor any Nutramigen!

My only problem with accepting the diagnosis we currently have is surely if he has milk allergy or soy intolerance he would be like this on the Formula milks and not just on liquid milks?

Could the Nutramigen be to blame for the bowel changes despite the fact he has only had half an ounce added to his bottle?

Do you think I am barking up the wrong tree with the Gluten thing or could it be a possiblity?

If Gluten is to blame how long before I should see changes?

Any comments, suggestions or help would be so greatly appreciated!!

Lisa

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Lisa,

Your son has had quite the go around with everything. :(

I certainly wouldn't hurt for you to make his diet gluten, dairy and soy free. My family is free from those as well. My youngest will be 2 years next month.

It is entirely possible that the formula's would cause a problem, the same as the liquid milks.

Do you know if he tolerates rice? If so you maybe you could blend your own rice milk. It wouldn't have the vitamins unless you blended in a multivitamin too. Don't know how well that would work though. Are you still breastfeeding? That would give him more nutrients. My son was just put on a multi about 2 months ago, but your son may be too young for that.

I've started a thread for dairy, egg and soy free recipes that I have in cookbooks. Rice milk I believe is in there. You can go to my profile and search my topics.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Hi Andrea

Thanks for the reply!

I stopped breastfeeding altogether when he was about 1, put my back out and had to go onto some strong drugs so had to give it up!

I am going to carry on the gluten free as well as soy and dairy for a little while longer to see if there is any improvement!

He appears ok on rice milk, no reactions that I saw, the nappy thing got worse again on Friday and I started the rice milk on sunday so I don't think it will be a problem but I will obviously consider it if things don't improve!

I will take a look at your recipe section, sounds interesting! Been trawling the internet for ideas for things for him/us to eat.

One last question can anyone tell me how quickly should I see results as far as his nappies go? Could 24 hours be enough for things to start sorting themself out? The reason I am asking that this mornings nappy was alot better than yesterday, almost normal but not quite lol

Thanks again

Lisa

Lisa,

Your son has had quite the go around with everything. :(

I certainly wouldn't hurt for you to make his diet gluten, dairy and soy free. My family is free from those as well. My youngest will be 2 years next month.

It is entirely possible that the formula's would cause a problem, the same as the liquid milks.

Do you know if he tolerates rice? If so you maybe you could blend your own rice milk. It wouldn't have the vitamins unless you blended in a multivitamin too. Don't know how well that would work though. Are you still breastfeeding? That would give him more nutrients. My son was just put on a multi about 2 months ago, but your son may be too young for that.

I've started a thread for dairy, egg and soy free recipes that I have in cookbooks. Rice milk I believe is in there. You can go to my profile and search my topics.

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As far as the consitency of the stools, I'm not sure. I would think it wouldn't take too long though.

As far as rashes, depends on whether anything else is in the diet that he's reacting too. My family has multiple food intolerances, but they aren't real bad. My youngest gets rashes when he has something that doesn't agree with him.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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