Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1):


Archived

This topic is now archived and is closed to further replies.

Recommended Posts

Has anyone tried to get off of their PPI and onto natural Aplle Cider Vinegar and HCL to teat GERD? My naturopath wants me to try this for 2-4weeks. So far it has been two days and now ive had terrible heart burn. I have been drinking baking soda and water to combat the acid reflux. It works temporarily. Does anyone know how long it takes for the ACV to work, and does anyone have any experience trying this remedy. The prilosec worked like a charm, but she wants me to try this. If the prilosec was working, wasnt that proof that I was producing too much acid, so why would taking ACV and HCL be smart?


28 yr old Male

Diagnosed Celiac in February 2007

Gluten-free/Casein Free

HLA DQ 2,3 Subtype (2,8) I have both celiac genes!

Married

1 child 9 months- Levi

Yeast/Bacteria overgrowth

" CHANGE THE WAY YOU LOOK AT THINGS AND THE THINGS YOU LOOK AT CHANGE"

Wayne Dyer

Share this post


Link to post
Share on other sites

Join eNewsletter


Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


The problem with reflux is that it can also be caused by LOW stomach acid. The stomach has to churn more in order to get the same amount of work done. I'm not really sure how the PPIs work in this case, other than create even less acid so there isn't any to come up the esophagus. I've often wondered why docs rx PPIs without checking stomach acid levels. Doesn't really make sense to suppress acid production in someone who already doesn't make enough.

I'm kind of surprised your naturopath has you using both. Its usually one or the other. Maybe cut out the HCl and just try the AVC? Are you using 2 teaspoons of ACV in a glass of water?

If the AVC makes you feel better in about 1/2 hour, then you probably don't have enough stomach acid. If it makes you feel worse, than you're either producing too much stomach acid or you're too alkaline. Some people that have H-Pyloria are thought to be too acidic and are treated for this when in fact that can actually be too alkaline. Of course not everyone with H-Pyloria is presented as alkaline. Which is why testing is good. H-Pyloria can be tested for with a simple breath test. Ask your Gastro about this.

To see if your system is too acid or alkaline, pickup some litmus paper. Most pharmacies carry it. You can test your urine or saliva. Its a really good indicator.

*steps down from soapbox*

I've tried the ACV thing too. Makes my stomach feel like its on fire. I'm trying to get off the PPIs as well, largely because they can lead to nutritional deficiencies (iron, vit B, calcium) and I already have enough problems on that front.

While modifying my diet has helped a lot, I don't think its completely gotten rid of the problem. I've cut out gluten (of course) as well as pasteurized milk (now use raw milk products), corn, and refined sugar. I'm also using digestive enzymes and probiotics, since tests have shown that I have dysbiosis, which I'm sure isn't helping any.

Good luck and let us know how things work out.


2/05 GERD

3/07 Multinodular goiter (suspicious for follicular neoplasm as of 11/07)

5/07 Iron, vit D, and B vit deficiencies (all of them), but particularly B1, B5, B12 and folate

6/07 Elevated mercury, subclinical hypothyroid, adrenal fatigue, CFS

9/07 Endo/Colonoscopy - neg biopsy (only took 2 samples), diverticulosis, benign polyps

10/07 PCOS (cysts in breasts, ovaries and cervix)

10/07 Major reaction to wheat challenge. Minor reactions to corn, dairy, barley, and refined sugar

2/08 Candida (per Doctor's Data)

3/08 Lyme disease (clinical dx), began tx

3/08 Intradermal allergy testing - high for wheat, beef, pork, tuna, and corn - moderate for almonds, chicken, coffee, eggs, garlic, gluten, green peas, milk, rice, soy, sugar, tomatoes, green peppers, celery, sesame, garbanzo, mushroom, cabbage, strawberries, and spinach.

4/08 Began tx for babs and bart

4/08 Slightly elevated titres for EBV and HHV-6. IgG1 deficiency.

"What doesn't kill us makes us stronger... and stranger."

Share this post


Link to post
Share on other sites

Join eNewsletter

I am taking a medicine similar to prilosec, and I was worried that it was making me produce too little acid and making my stomach hurt, so I asked my doctor and she said it's not so much an acid reducer as a balancer, and so it would be very strange for it to make me produce too little stomach acid....


10-06 Diagnosed Urinary Tract Infection (Allergic to Cipro, Bactrim, Macrobid, Doxycycline, Monocycline, Penicillin) - This UTI is still present with no symptoms.

10-06 Diagnosed "Acid Reflux" (Nexium didn't work)

12-06 Endoscopy diagnosed Gastritis (Negative Bioposy)

12-06 Negative bloodwork for Celiac Disease, Diagnosed "Gastroparesis" - Started Zelnorm

1-07 Diagnosed "IBS-C" - Still taking Zelnorm

3-07 HIDA scan to check gallbladder which was fully functional.

3-07 Zelnorm taken off market, started Domperidone

4-21-07 Emergency Appendectomy (FUUUNN!)

7-24-07 Enterolab results came back positive

Gluten Free since that night....

...Still not feeling great.

"Don't expect constant success, but strive for constant growth."

Share this post


Link to post
Share on other sites

Join eNewsletter

I am now off all PPI's. I was taking Prilosec daily, but it stopped working, and I was then put on Nexium daily and that worked. When I went gluten free back in April, I also went casein and soy free as well, following the Enterolab results. Now that I think back my GERD would *really* act up when I ate chinese (with lots of soy sauce). I have since been able to leave all the PPI's behind. There were some occasional flare ups in the earlier "bad food"-free months, but now I am good. I know now right away when I eat one of the banned foods, because heart burn is usually one of the first symptoms.

I have never found the ACV to be all that effective at helping the heart burn. Speaking heart burn, does yours always manifest in the same way? Mine would sometimes be a dull dry burn, to a shooting pain, to palpitation like fluttering, to referred upper back pain!

Share this post


Link to post
Share on other sites

Join eNewsletter

I've pretty much left all the medicines behind. I occasionally still have a problem if I eat pork or something else with a lot of fat. When I first went gluten free I tried the apple cider but couldn't stomach the smell. Then I used the apple cider pills which worked well, but again they didn't always work all night. Milk sometimes helps me for some reason. I vaguely remember something about PH being the reason, but I don't recall the specifics. I also found that relaxation helped me. If I made a concentrated effort to relax all the muscles, particularly in my stomach and chest area at night that seemed to help. Don't ask me what that's about.

Violet


"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

Share this post


Link to post
Share on other sites

Join eNewsletter

For the interim flare ups after I got off the PPIs I took good old Pepto Bismol. Before that I was trying TUMS! That just made the reflux worse, and gave me a nasty stomach ache, nausea, and a migraine to boot.

I use the Pepto also, it works quickly and usually one dose will do it. I only need it now when glutened. Not all Tums are gluten free and they might relieve things for a bit only to have them return in force as a reaction to the gluten. Kind of insures we keep popping the things. I would try the pepto first before anything.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Join eNewsletter

For the interim flare ups after I got off the PPIs I took good old Pepto Bismol. Before that I was trying TUMS! That just made the reflux worse, and gave me a nasty stomach ache, nausea, and a migraine to boot.

How do we know which Tums are safe?? I read on a gluten free list that all Tums except one type were safe. I need to know if the type I just got my dd are not safe then! :(

Thanks!

Share this post


Link to post
Share on other sites

Join eNewsletter

How do we know which Tums are safe?? I read on a gluten free list that all Tums except one type were safe. I need to know if the type I just got my dd are not safe then! :(

Thanks!

Personally I would pitch the Tums and grab some pepto. Is there a phone number on the pack you could call? I can never remember which is safe and which isn't and since they can change formulas whenever they want I avoid them altogether.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Join eNewsletter

Personally I would pitch the Tums and grab some pepto. Is there a phone number on the pack you could call? I can never remember which is safe and which isn't and since they can change formulas whenever they want I avoid them altogether.

Ug. Unfortunately I am 99% sure she can't do Pepto. That pink color is undoubtedly not natural and she can't do anything with FD&C colors. I'll look into it, but I doubt she can do it. Maybe I can find an alternative with the same active ingredient.

Thanks,

Cathy

Share this post


Link to post
Share on other sites

Join eNewsletter

Has anyone tried to get off of their PPI and onto natural Aplle Cider Vinegar and HCL to teat GERD? My naturopath wants me to try this for 2-4weeks. So far it has been two days and now ive had terrible heart burn. I have been drinking baking soda and water to combat the acid reflux. It works temporarily. Does anyone know how long it takes for the ACV to work, and does anyone have any experience trying this remedy. The prilosec worked like a charm, but she wants me to try this. If the prilosec was working, wasnt that proof that I was producing too much acid, so why would taking ACV and HCL be smart?

my GI put me on acifex..helps


Confirmed by endoscopy and blood tests October 2007

Donna

Share this post


Link to post
Share on other sites

Join eNewsletter

Ug. Unfortunately I am 99% sure she can't do Pepto. That pink color is undoubtedly not natural and she can't do anything with FD&C colors. I'll look into it, but I doubt she can do it. Maybe I can find an alternative with the same active ingredient.

Thanks,

Cathy

Perhaps some weak peppermint tea might help if she can't do artificial ingredients that might be the safest way to go. She could do a few sips at a time and see if it helps. I wish they didn't think they had to artificially color and flavor so many things it makes it really hard. Hopefully the gluten free diet will help her soon and you won't need to search for something.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Join eNewsletter

I tried apple cider vinegar for a few months but only got temporary relief. Try using Honey (1-2 tsp) everytime you get that feeling (GERD sufferers know what i mean). Sliced Red dilicious apples also work. Those are the best natural ways to help with GERD.

I'm currently taking aciphex for GERD which works great! The only problem is that my insurance only covers half the cost so I pay $70 for a month supply. It's completely worth it especially since prilosec, protonix, nexium and prevacid didn't work for me!

I hope you get better soon.

Share this post


Link to post
Share on other sites

Join eNewsletter



Join eNewsletter