Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Legs And Feet Hurt So Bad


LoriC

Recommended Posts

LoriC Apprentice

My legs and feet have hurt me since late June..i was diagnosed with DH in late August..everytime i tell my doctors my feet and legs ache me so bad..they said either i'm getting old or eat a banana a day..I'm getting a little tired of hearing the "old" thing, i don't think this is normal, i mean its hard for me to get out of bed in the morning thats how bad they hurt and my veins stick out really bad, no discoloring or swelling. Anyone else have this problem? could it be related to being glutened? Thanks, Lori

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yellow Rose Explorer

This could be PAD parifarial artery desiese. My spelling is bad sorry. Google it and see if your symptoms match.

Yellow Rose

Link to comment
Share on other sites
ravenwoodglass Mentor
My legs and feet have hurt me since late June..i was diagnosed with DH in late August..everytime i tell my doctors my feet and legs ache me so bad..they said either i'm getting old or eat a banana a day..I'm getting a little tired of hearing the "old" thing, i don't think this is normal, i mean its hard for me to get out of bed in the morning thats how bad they hurt and my veins stick out really bad, no discoloring or swelling. Anyone else have this problem? could it be related to being glutened? Thanks, Lori

Yep. For me leg pain and balance issues were along with DH were a primary presenting symptom. The pain was excrutiating at times and I was young so they told my Mom it was growing pains. I also lost my reflexes about this time which remained absent until 40 years later when I had been gluten-free for about 3 years. One of the things that will help until you heal a bit more from the gluten will be sublingual B12. When I get glutened now it is not as painful but it still feels like my legs are made of lead and weigh about 50 lbs apiece. Sometimes a nice hot bath and a couple of baby asprin, I take St. Josephs baby chewables, will help to relieve the discomfort.

Link to comment
Share on other sites
Offthegrid Explorer

I have a lot of problems with something like restless leg syndrome, but it affects my arms, too. I have found that alcohol severely aggitates this. Just something else to consider that could possibly help.

Link to comment
Share on other sites
nokomis Newbie

I have the same problem as offthegrid. Legs and arms. Not so much restless leg syndrome for me, but really bad muscle fatigue with activity. Seems to get worse as the day goes on and the only thing that seem to make it go away are hot baths and lots of resting (laying down).

It's not B12 or iron deficiency, my thyroid is fine, so ???

Anyone have any experience with Myasthenia Gravis? I read that it can be more common in people with celiac disease.

Link to comment
Share on other sites
bakingbarb Enthusiast
I have the same problem as offthegrid. Legs and arms. Not so much restless leg syndrome for me, but really bad muscle fatigue with activity. Seems to get worse as the day goes on and the only thing that seem to make it go away are hot baths and lots of resting (laying down).

It's not B12 or iron deficiency, my thyroid is fine, so ???

Anyone have any experience with Myasthenia Gravis? I read that it can be more common in people with celiac disease.

I too have this bad muscle fatigue. We have stairs, my bedroom and the laundry are in the basement! We also have puppies right now so up and down, up and down etc.

The muscle fatigue drives me nuts, my family just looks at me. Last night I just sat down, I was so done. I used to think I was wonder woman and could do it all, mentally I still like to think that but I know it isn't so.

I am so glad you all posted about this, between feeling like I am starving and the fatigue I thought I was having some other issues. It is great to know what it is, now just waiting for it all to heal.

Link to comment
Share on other sites
JodiC Apprentice

I too struggled with this until my internal med dr checked my vitamin D levels (all of them) and my vitamin C level. Both were dangerously low. I was prescribed 50000 units of D3 for 8 weeks. and 2000 of C. Felt much better. Now I know when I start getting the same feeling in my legs and arms to up my vitamin D and C. Especially now that it is winter and its harder to get in the sun. I also had very low thiamin levels (formally known as B1). I took 100mg for 8 weeks and now only have to take 15 to 25 mg a day to keep the levels up. Hope this helps. :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,479
    • Most Online (within 30 mins)
      7,748

    Charlotte Smith
    Newest Member
    Charlotte Smith
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
    • trents
      No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing gluten.
    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
    • JustGemi
      Thank you! What do you recommend in the next 7 weeks until I see my Doctor?  Just start my Gluten free diet?
×
×
  • Create New...