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dolly

Just Wanted To Give A Quick Update

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You all have been so helpful to me that I wanted to give you all a quick update.

My blood work results just came back and my friend called me with some news. She is not an actual doctor, well, she is a chiropractor but you know what I mean. Anyway, she said that she wasn't sure what it meant but one of the tests (she didn't mention the exact one) was off of the charts. She said that a positive result for Celiac would start at 17 and my number was 45. So, now she has recommended that I find a gastroenterologist in my area to get more testing.

Tomorrow I will get the actual paper work from my blood tests. I will know more then but I just wanted to say thanks for all of your support!!! Geez, I have never been so happy to be ill before. :P

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Celiac.com Sponsor (A8):

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Actually, your chiropractor IS a doctor, a doctor of chiropractic. They study every bit as long as every other doctor, and actually get more classes in nutrition, diagnostics, x-ray and others than your regular doctor. I find my chiropractor is a lot more knowledgeable than any other doctor I know. When I have a health problem, he is the first one I'll consult.

Are you sure you want to wait to go gluten-free and get more testing done? You could just try the gluten-free diet. I am glad you are getting some answers! It is so frustrating to be ill and not knowing why you feel bad.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Actually, your chiropractor IS a doctor, a doctor of chiropractic. They study every bit as long as every other doctor, and actually get more classes in nutrition, diagnostics, x-ray and others than your regular doctor. I find my chiropractor is a lot more knowledgeable than any other doctor I know. When I have a health problem, he is the first one I'll consult.

Are you sure you want to wait to go gluten-free and get more testing done? You could just try the gluten-free diet. I am glad you are getting some answers! It is so frustrating to be ill and not knowing why you feel bad.

I have already started on the gluten free diet and already I feel so much better. In fact, I never want to eat gluten again.

Question: would a doctor ever diagnosis you with celiac if you haven't done the biopsi but responded well to a gluten free diet? I am terrified of the biopsy.

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My gastro told me to start the diet immediately and refused to biopsy me because I was so close to death. A year later I wanted to do the biopsy and he was going to let me, but I got too sick too quickly to every make it long enough to get a positive biopsy. I am diagnosed Celiac with no biopsy.


~Angie~

Gluten free since May 2004

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My gastro told me to start the diet immediately and refused to biopsy me because I was so close to death. A year later I wanted to do the biopsy and he was going to let me, but I got too sick too quickly to every make it long enough to get a positive biopsy. I am diagnosed Celiac with no biopsy.

Angie,

I see that you are from Pennsylvania-so am I!! Are you from the Philly area? If so, can you share who your doctor is???Thanks!!

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I have already started on the gluten free diet and already I feel so much better. In fact, I never want to eat gluten again.

Question: would a doctor ever diagnosis you with celiac if you haven't done the biopsi but responded well to a gluten free diet? I am terrified of the biopsy.

If you are already on the diet a GI doctor is going to want to do an endo and he is going to want you to do a gluten challenge. For that to be effective it needs to be about three months long. Thats 3 months of eating something that you know already is making you sick. You have had a good response on the diet, the only treatment is the diet, you never want to eat gluten again so... I would say you are diagnosed. It is up to you but I would skip the GI for now, get on the diet and consider seeing the GI in a couple of months if your problems haven't resolved.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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If you are already on the diet a GI doctor is going to want to do an endo and he is going to want you to do a gluten challenge. For that to be effective it needs to be about three months long. Thats 3 months of eating something that you know already is making you sick. You have had a good response on the diet, the only treatment is the diet, you never want to eat gluten again so... I would say you are diagnosed. It is up to you but I would skip the GI for now, get on the diet and consider seeing the GI in a couple of months if your problems haven't resolved.

Is there any benefit to getting an official diagnosis?

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My GI diagnosed me without a biopsy. He said with positive blood test results and a positive reaction to the gluten-free diet, that was enough for him to diagnose celiac disease. Good thing, too, because there is NO WAY I'm EVER going to do a gluten challenge... I get SOOOOO sick if I get CC'd that the thought of purposely eating bread is out of the question!

I did go ahead and get tested by Enterolab after his diagnosis, and I tested positive there, too. Plus I have both the DQ2 and DQ8 genes :angry: .

For me, the biopsy wouldn't change a thing. Celiac disease or gluten intolerant, the only "fix" is the diet anyway.


  • Gluten-free since 6/12/07
  • Positive Blood Test
  • Sjogren's Syndrome
  • DH
  • HLA-DQ 2,3 (Subtype 2,8) DQ2 and DQ8

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My GI diagnosed me without a biopsy. He said with positive blood test results and a positive reaction to the gluten-free diet, that was enough for him to diagnose celiac disease. Good thing, too, because there is NO WAY I'm EVER going to do a gluten challenge... I get SOOOOO sick if I get CC'd that the thought of purposely eating bread is out of the question!

I did go ahead and get tested by Enterolab after his diagnosis, and I tested positive there, too. Plus I have both the DQ2 and DQ8 genes :angry: .

For me, the biopsy wouldn't change a thing. Celiac disease or gluten intolerant, the only "fix" is the diet anyway.

Thanks for sharing your experience!!!

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