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FootballFanatic

I Am Going To Try Nixing The Soy...

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I really didn't want to eliminate soy because my diet has just narrowed down so far since going gluten free...

BUT, I'm dizzier and dizzier and the B12 isn't helping.

I start my day off with gluten-free waffles(which contain soy)

Snack on an apple and some gluten-free pretzels(which contain soy)

Then I'm dizzy.

Those are really the only things I know have soy in them, but I don't know about my medicine...Do you think that eliminating the foods - going "soy lite" - would help or does it have to be completely removed. I'm not allergic to it, I had an allergy test.

I am asking for the full enterolab package for Christmas this year, how sad is that...but I want to be tested for soy, eggs, dairy and caseins....

I can't keep missing class due to feeling faint!


10-06 Diagnosed Urinary Tract Infection (Allergic to Cipro, Bactrim, Macrobid, Doxycycline, Monocycline, Penicillin) - This UTI is still present with no symptoms.

10-06 Diagnosed "Acid Reflux" (Nexium didn't work)

12-06 Endoscopy diagnosed Gastritis (Negative Bioposy)

12-06 Negative bloodwork for Celiac Disease, Diagnosed "Gastroparesis" - Started Zelnorm

1-07 Diagnosed "IBS-C" - Still taking Zelnorm

3-07 HIDA scan to check gallbladder which was fully functional.

3-07 Zelnorm taken off market, started Domperidone

4-21-07 Emergency Appendectomy (FUUUNN!)

7-24-07 Enterolab results came back positive

Gluten Free since that night....

...Still not feeling great.

"Don't expect constant success, but strive for constant growth."

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Celiac.com Sponsor (A8):

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There's nothing wrong with cutting out soy, but you might be getting dizzy from all the sugar. You can try balancing things out a bit with a little protein (hard boiled egg, nut butter etc.) and see if that helps. I don't eat much meat, but I get extremely dizzy if I just eat bread-type products and fruit and nothing else.

Also, are you on any medications that might cause dizziness?


"Let food be thy medicine, and let thy medicine be food." - Hippocrates

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If you really think it might be the soy, then the only way to really find out is to eliminate it completely for a period of time and see how you feel. Then do a challenge if you want to. My dd had to eliminate soy to *really* get on the path to being well....first gluten, then dairy, then soy. I hear you about the restrictive diet....but it can be done. I'm really hoping that it's temporary for my dd, and that she can eat both dairy and soy again. But for now, it's out.

I also agree with Mango. You need more protein in your diet. Protein will keep your blood sugar level, instead of the highs and lows that come with eating only carbs. I ALWAYS get dizzy if I don't eat a good amount of protein. Eggs, meat, nuts, nut butters, beans....are all good protein sources. When I'm rushed, I grab a handful of walnuts or almonds, instead of snacking ONLY on carbs....it keeps me from needing to gorge on carbs again 30-40 minutes later, and starting the whole high/low blood sugar cycle all over again.

Hope you feel better soon!

Rhonda

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Soy intolerance is not uncommon in people with celiac. It can be harder to avoid than gluten, but as a listed allergen under FALCPA it must be clearly disclosed on the label.

If just being gluten-free is not doing it for you, soy might be the next thing to look at.

But first, as a recently diagnosed celiac, your villi may not be producing lactase. You need lactase in order to digest lactose (milk sugar). Many newly diagnosed celiacs need to be lactose free for as much as six months until their villi heal enough to resume the production of lactase. This condition is temporary and will disappear once the villi heal. Usually, though, the symtoms of lactose intolerance are abdominal: flatus (gas) and/or diarrhea.

Take care.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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Soy was the final piece of the puzzle for me. My ataxia which had improved greatly gluten free is now totally gone. I found eliminating soy harder than gluten, I never realized it was in so much. I am older and amazed at how much soy is in our foods. When I was growing up it was in almost nothing.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I recently eliminated soy. I'm completley casein free, and challenged the soy idea a couple of times (both on purpose and by accident) and it's clearly the culprit. I was having some pretty sharp intestinal pain and that's completely gone. I'm very rarely gasey. And I've had more normal BMs this week than in 6 months. But still some symptoms now and then, so there might be a bit of soy slipping in.

It's in a lot of stuff, but at least it has to be on the label. So far luckily only one of my McCormick spices has soy (hamburger seasoning).


"I'm not telling you it's going to be easy. I'm telling you it's going to be worth it." - Art Williams

Currently gluten-, casein-, soy- and nightshade-free.

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Did you know that Enterolab keeps your specimen for 6 months, and if you want an additional test it can be done ? I 've had lactose intolerance for 30 years, and tested positive for Celiac. Eliminated gluten from my diet. Still had some problems....and tested positive for dairy, and also soy!!! Most of my gluten free products also had soy in them......mayonnaise,tuna fish, wheat free soy sauce,salad dressings, dairy free cheese,dairy free ice cream,Crisco, Wesson oil, soup,dairy free margarine,Van's waffles, Pamela's Chocolate Chunk cookie mix etc. The list goes on and on.

So, here I am cleaning out the food supply again.I'm using Nutiva coconut oil for a margarine substitute and love it. Spectrum shortening is working out very well in baking. Canola mayonnaise replaces regular soy containing mayo.

Darn expensive, but I am now well and enjoying life so much more.

Yes, have the tests done if possible.

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Ick, I'm just imagining the storage facility. It isn't as if you send in a tiny bit ...


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

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