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shan

Drs Blame Everything On Celiac

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My daughter, who is 2 and 10 months, just woke up crying that her diaper is "wet". So i had a peek and it had blood in it! I freaked! So off i went to the emergency room, and when i said she had celiac, the doctor said "maybe it is because she is a celiac that she has blood over there, but just incase we will do a urine check" Is this doctor a load of garbage, or is it possible it is celiac related?!

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You need a seocnd opinion. He is jacka** to look at very young child with blood in the diaper and do no investigation and to pin it on a preexisting condition. If the blood was red - it was fresh blood and had not been in the bowels long. (fresh bleed).

Even if he thought it was related which in my opinion - it does NOT. [i am not a doctor] - then he should have done some tests to confirm his suspicion as well as rule out any other common intestinal conditions in a young child.

Sandy

I found this:

If you have noticed blood in your child


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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Katharine had blood in her stool and on the tissue, sometimes and little sometimes a lot. This is how we foudn the Celiac disease. She also suffered from fissures as a baby and that also left blood in her diaper. Either way whether it is the Celiac or a fissure or something else it definitely needs to be checked out. Since she is gluten free there is NO blood. So it can be the Celiac but if she is completely gluten-free then probably not.

Just wanted to let you know two things that caused blood for us. Definitely push to find out what this is. The doctor was a moron to say that. Let us know how it goes and what you find. I hope she is doing better and will be ok. (in both cases dd's blood was bright red)


Melissa

Diagnosed Fibromyalgia March 2007

Mom to Katharine, 5 years old diagnosed Celiac Disease Sept 2006

Peanut allergy

Michael 3 years old diagnosed infant reflux at 6 weeks

Dairy Soy allergy until 22 months

Neg blood tests and biopsy Feb 2008

Positive gluten-free dietary response

You may have to fight a battle more than once to win it.

Margaret Thatcher

Fall down seven times stand up eight.

"I've decided that after air, water, and dirt, the next most common substance on the planet must be gluten!"

Toni Nolte, Overland Park, Kansas

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If she's been eating gluten-free for a while (i.e. fully healed) and hasn't been glutened, I don't see why this would be celiac-related. I guess there's a possibility it might be, but I always figure that a gluten-free celiac is just like a non-celiac.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Sorry, i guessi didn't give graphic enough details - it seemed that it was coming from her vagina!! Today she hasn't complained but i do think she is holding herself back - she is trained in the day, not at night, so that is probably why i noticed... :(

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I would push to know what is causing it, when i think of blood in that area i think of kidney infections or an uti, can she tell you if it burns to pee. I would gbive her some cranberry juice til you can find out for sure what is going on. But i doubt its celiac related.

paula


gluten, casein and soy free

on low carb/low sugar diet

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If she is still breastfed even at her age for example, your hormones can cause her having something like a "period". If not, she really HAS to be checked out, take her to the Pediatrician, you don't know hwat caused the bleeding there, a girl her age sjhould not ever bleed from that area! It could be that she has a silent infection IN there, which could if not treated make her tubes stick together making her possibly infertile for later on, often the tubes can be oppened up again but believe me the flushign is not a painless experiense and god knows how may years pass until then. Take her to peds and don't rest until they did everything they could to find out what caused this!


Susi with Shayden and Brandy

Shayden, pos. with DQ 2, pos. for Glutensensitivity with Tissuetransglutaminase Stool TgA 45 Units

Brandy, pos. with DQ2 + DQ8, DX Celiac Nov.07, gluten-free since Nov. 1st 07, Tissuetransglutaminase Stool TgA 63 Units

Me: Gastroscopy negative f. Celiac, IBS, Oesophagitis, Hiatus-Hernia

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Thanks, i went back to another dr and i thought he was exagerating when he said i should do blood tests to check her kidney function and also ultrasounds... but now i see it is important. But now i am nervous!!! The dr said first to check and do another culture and see if everything is still clear - you can get false negatives! if it is still clear, i should do everything else! BUT i am going to do the culture and the blood work on the same day - only coz its the same clinic and it is too hard to get to! I'll keep you posted!

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