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Guest keegans_mommy

Terrifying Dreams And Gluten

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Hmm...very interesting. My little girl started sleepwalking, sleep talking, moaning and crying in her sleep, all when her worst symptoms were taking place prior to diagnosis. It was really weird--I would wake up because I felt someone staring at me and there she'd be, silently looming over my bed. It was creepy as h**l! I would ask her what was wrong over and over and she wouldn't answer me or just utter non-syllables. I had to walk her back to bed, sometimes several times a night. From the moment she went gluten-free, this stopped happening (I've only heard her moan once since) and she has no memory at all of ever doing it.

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Please tell me this happens to others! I feel so neurotic!

Oh this TOTALLY happens to me. If I eat gluten I wake up at 2am with panic attacks worrying about the stupidest things. My heart races before I'm even awake, and those ghost dreams are the worst! I wake up paralyzed and can't scream and it feels like they're in the room.

Of course, I have Narcolepsy from eating gluten and this is called Sleep Paralysis and Hypnogogic/Hypnopompic Hallucinations. "Normal" people can get this too. It's terrifying when it happens! You are not the only one by far. I've had the gluten-induced panic attacks since I was a kid, but never knew the cause.

You can hang out with more people who experience this all the time at http://www.narcolepsynetwork.org/forums/ I'm dogdreams there. And yes, several of us people with narcolepsy are gluten intolerant. :) I started a poll to find out just how many, because my theory is that it's quite a significant number but people just don't want to try the diet.

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This is kind of embarrassing and yet, really funny. Numerous times I have had (I guess you could call them nightmares) dreams where I accidentally eat gluten and then immediately wake up.

LOL that happened to me 2 nights ago. I had these giant slices of cheese pizza in my hand and I thought "no, I can't eat them" and then I was talking to someone and thought "screw it I'm hungry. I'm eating them" and ate them anyway, and then I was horrified "oh no I'm going to get sick!" Then I woke up and thought it was real for a minute or two. I thought in all seriousness "I can't believe I ate pizza! what was I thinking??" Total nightmare! But so hillarious. :lol:

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Guest simrnz
Oh this TOTALLY happens to me. If I eat gluten I wake up at 2am with panic attacks worrying about the stupidest things. My heart races before I'm even awake, and those ghost dreams are the worst! I wake up paralyzed and can't scream and it feels like they're in the room.

if you're so much obsessed in an attempt to make something "happen" and following gluten free diet so forcibly then nightmare or panic attacks are a general symptom. So first of all you really dont need to worry about it at all. The more you're conscious about your gluten cheats, the more anxious you'll feel. Just let it go if you've done it mistakenly or by intentions once or twice. You can also fix a day to go with gluten depending on the severity of your disease. Nightmares are nothing but the repetition of our daytime routines.

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Oh my gosh, I was accidentally glutened last evening and I actually didn't have an issue falling asleep but I had an issue STAYING asleep! I kept having terrifying dreams paired with panic attacks that I would wake up gasping for air and heart pounding!

I kept dreaming about an evil spirit in my house, grabbing me and I just recall having a super heavy feeling on my chest where I had a tough time breathing.

Please tell me this happens to others! I feel so neurotic!

I had a similar dream once before 2. Wheat and Gluten are really bad for you...

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I have definitely had both insomnia and nightmares at times. I take B vitamins to help with nueorpathy symptoms, and if I forget to take them or have alcohol (which strips B vitmains right out of you) I get really spooky dreams, feelings of anxiety and worry, and just poor, unrestful sleep. No celiac diagnosis, but am looking for a new GI guy. Gluten free for three months.

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I wake up screaming - this is something that started when i was 19. My husband has to shake me to wake me up. I have frequently thought dead people were in the room. One night I fell/rolled out of bed and really hurt myself. It doesn't happen hardly at all now that I am good about my diet - but I also get it when I have other allergic reactions. Now I know I am not alone. I just thought I was crazy.

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So when I have horrifying nightmares it probably means I've been glutened?? Oh man, I've had nightmares, night screaming and jumping out of bed and I just thought it was me!!I'm usually so careful about what I eat but now am having serious bowel problems and have to get a colonoscopy. Could it be living with others who eat lots of gluten, like there are bread crumbs on table and we share the same pots and pans? I always thought if they were washed it was ok...can anyone help??

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There's a very strong correlation between celiac and sleep apnea.

With sleep apnea, in a deep sleep your brain has to increase your level of adrenalin sharply to wake you up if you're not breathing. It will do whatever it takes to do that, wake you up and save your life.

I'm always amused by how inventive "cruel to be kind" brain can be! Extraordinarily, and viciously so.

Makes me awfully calm in real life though... nothing compares.

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To all of you who have posted in this topic - how are you now with regard to dream status? Better, worse, same?

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I had nightmares too, I just didn't know it was because of the gluten. Most of the time it just made me tired but sometimes I had nightmares. Thanks for making me feel more sane :lol:

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Yes, terrible nightmares when glutened-somehow gluten itself makes its way into the dreams in some nefarious way, too. I have nightmares sometimes without gluten but I ALWAYS have them if glutened. It's interesting to hear others have similar experiences.

Sleep tight,

lisa

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Hi Keegans Mommy!

I'm a member of the International Association for Dreams (www.asdreams.org) and in all of my research and reading they have not determined that food is linked with nightmares. If this were my experience I would think I was having an issue with "Sleep Paralysis" which unfortunetly happens very often to people. You might want to browse around ASDs website listed above or google Sleep Paralysis to get a better understanding of this. Sleep Parlysis is a sleeping disorder which is AWFUL as I have experienced it a couple of times. However, I do understand that people say that if they have eaten certain foods that nightmares follow so I would not think you are crazy :)

Good luck, hope this doesn't happen again!!

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Well, goodness I hadn't thought my nightmares were gluten (or other intolerances) related. I've always had weird dreams and they did let up for a while when I went gluten free, but now other intolerances are showing up they've come back with a vengeance. I see I'm going to have to clean my act up even more - what happens when theres nothing left I can eat?

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This s$#& happened to me A LOT too, before I knew the connection between the gut and brain, and how gluten intolerant people can be driven to even a state of schizophrenia when they are eating gluten over time. I think the dreams play on our worst subconscious fears. I was heavily indoctrinated at a young age with Christianity (I'm not longer a religious or spiritual person), and so obviously I'd have nightmares that God was going to send me to hell or that he was going to punish me in certain ways. So mine is a bit different, even though I did have a ton of nightmares at times, what I mainly had were HYPNOPOMPIC and HYPNAGOGIC HALLUCINATIONS. The hypnopompic ones were the most prevalent for me (and still are at times when I've been glutened or eat too late at night). I would be having a normal regular dream, and then right before I woke up, it would change and I'd snap awake, seeing numbers or hearing voices.

I woke up on February 28, 2013 for example, hearing the words 'I HATE YOU'. It was almost like a whisper in my ear. At that time I was still pretty religious minded, and I thought it was God telling me that he hated me. I would wake up other times and have epiphanies of things I wasn't consciously aware of in my waking life. The things I'd start thinking about as I woke up were terrifying, like God was going to torture me in certain ways once I die because I walked away from Christianity and I stayed in 'sin.' It was all so stupid because I know Christianity is false now, but those subconscious fears are still deep seated inside of me from being indoctrinated at a young age. 

I also read another story from a female who has celiac. She wrote her story back in 2012 (which I'll link below). She said she would have hypnopompic hallucinations upon waking, where she'd see dead people standing in her room. She had been seeing these dead people from as far back as she can remember as a child. Once she went gluten free, those hallucinations went away. Here is the link to read that below 

http://www.nourishedhealth.com/my-story-gluten-intolerance/
 

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    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
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    Jefferson Adams
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    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
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    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
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    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
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    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

    Jefferson Adams
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    Alimentary Pharmacology & Therapeutics