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Guest imsohungry

Craving Sweets...

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Guest imsohungry

Hey everybody,

I've been reading a lot of these posts and noticing a common theme in many of them... SWEETS, SUGAR, and CHOCOLATE! :)

O.K.

Here is my issue. Most days I crave sweets very often, and I stay fatigued. I literally want to gag if I smell "real food," but show me a candy bar, and my mouth waters.

I've gotten where I hate to eat. I only really like bread and sugar and milk, but I am ALWAYS tired and have muscle/joint aches, constipation, dermatitis, and headaches. I usually feel worse after I eat. My husband says that he finds it hard to believe that I feel better if I skip lunch, but honestly, as soon as I eat, I feel icky again. The most frusterating thing is that I can't relate it just to gluten.

I'm not hypoglycemic (according to bloodwork). How do I know if I am lactose or yeast intolerant? Or could I be sugar-intolerant? How do I know? I am willing to cut things from my diet, but I am just so confused! :blink:

This morning, I had 3 pieces of bacon, a bowl of grits, and orange juice for breakfast (which I thought was a good breakfast)...but I immediately got so tired that I could hardly stay awake and my head started aching! UGGGGHHH! I could just cry. :(

I'm trying so hard to feel better. Oh, well. Any suggestions??? Hope to hear from somebody soon.

Much hugs. -Julie :)

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Julie,

I can't be any help except to say that I share a lot of your same symptoms. I don't feel bad after eating though, at least not all of the time. But I DO CRAVE SUGAR!

My sister went on a sugar purge. It seemed like an awful diet, but it only lasted a month. This was supposed to stop some process, firmintation maybe ~

She complained the whole time going through it and she doesn't have celiac disease. I'm already soooo restricted, I can't imagine restricting another thing. I'm about ready to ask my doc for a pep pill!!

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For me - my problems are chocolate . . . candy bars, cake, hot cocoa, etc. I could never get enough of it. In the past, I would even have chocolate bars in the morning. If I saw them, I had to have them. I knew that I had to do something about this. So I got them all out of the house which was very difficult for me to do. But at the same time, it helped me out greatly.

Now when I have something with chocolate it in i.e. ice cream or occasionally cake I no longer crave it. Even my cravings for sweets are entirely gone. I do eat cookies & ice cream on a daily basis because I want it not because I crave it. It tastes so much better to me now too.

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Guest imsohungry

Thank you so much for the feedback (and links...I looked at them) :)

Gosh, this is so frustrating. I wish I knew the answer! I feel like, after all of these years, I am "on-to-something" with the gluten and food intolerance problems. I just need to keep researching!

I took a nap this morning at work. I didn't have a choice; I was awake one minute and then so sleepy that I couldn't sit up the next minute. The only thing that I had eaten this morning before it occurred was gluten-free rice milk over gluten-free rice cereal.

What is wrong with me??????? I know that I also have lupus and epilepsy, and I am on medication for both. I don't consider myself a hypochondriac; in fact, I rarely complain, and my work often doesn't know when I have had a week full of seizures...because I come in to the office anyway (what good would it do to complain about it...seizures are a fact of life for me). :rolleyes:

Thanks for letting me vent. I am learning and trying and frustrated. You all are great!

Hugs and blessings. -Julie

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Wow, I'm finding out that a lot of what I thought was just MY problems, are really common for a lot of coeliacs.

I crave sugary food something chronic. I can't eat proper chocolate because of migraines. I've assumed I'm allergic to it. But if I get anywhere near white chocolate, I eat the lot in one sitting. It seems like a real addiction...is it maybe? :unsure:

Actually anything sweet is a real temptation, but I am beginning to think that I feel aweful afterwards from having it.

Julie, I know what you mean when you say you're always falling asleep. I am constantly really exhausted too.

I have celiac disease, CF (ME) and am hypothoid. It is so strange to actually have the diagnosis now. I've felt sick for a lot of years and wondered why. :huh:

I am at the end of my first day gluten-free, and although I feel as bad as I did yesterday, I guess it will improve over time.

Thanks for all the messages on the boards. I've been trying to take it all in.

Hang in there Julie. :)

Maggie

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I have the same thing, real food makes me gag but sweets are great. My thinking is that my digestive system is so raw and unable to break things down that i start to crave food that is digested really easily which is sweets and simple sugars. I really really believe this because even if i want an apples or a piece of meat i can't swallow it.

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Well, the odd thing since all my problems started, I hardly crave sweets. In fact my appetite, is ridiculously small.

But, looking at what a lot of you say you're drawn to or eat more frequently, simple sugars, candy, chocolate. I'm wondering if all of you are eating enough of a balance of carbs and proteins? I ask this really from the prospective as a former marathon runner etc.. I tried atkins ages ago and it was extremely difficult for me to carry on a day, particularly exercising etc. w/o the carbs I was accustomed to.

Maybe take a food log of what you've been eating for awhile, and reflect back on it in 2 weeks, noting when you feel the most fatigued etc. You might find some interesting connections to the foods your eating. I know sugar can give me a great intial buzz get up and go, but I crash hard afterwards. Making me want to do things like, nap at work too.

Good luck, I hope..some of this shed some light for some one!!

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I too am complete opposite. I have been gluten-free for about 10 months now and recently I have not craved sweets at all. I used to have to have dessert after dinner every night and now I don't even think about dessert. Very strange.....

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imsohungry, I'm wondering if you have other food allergies, such as corn? (Thinking about the grits you had for breakfast?)

I did the York Labs allergies test (expensive but so worth it) and discovered I need to avoid: milk, yeast, eggs, soy, cashew, sunflower seeds and pears. Truly, if I avoid all these, I feel infinitely better.

I think enterolab is coming out soon with comprehensive food allergy tests too--I'd recommend them as well.

I did an experiment 2 days ago and had some salad dressing with vinegar in it (most vinegar has yeast) and am still feeling sluggish as a result. On the other hand, I've had days of literally dancing around in joy from the energy I've gleaned after years and years of fatigue.

Regarding the sweet tooth, I have a bit of that and recently discovered stevia, a natural sweetener without the energy-sapping properties of refined sugar.

Good luck!

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Guest imsohungry

You all have such great (and varying) input! Which is exactly what I need as I am trying to examine this whole situation! :)

YankeeDB-

I hadn't considered a corn intolerance. My brother is allergic to any kind of fish, nuts, and, of all things, rice. He had one of those "prick tests" done at the allergist...he goes into anaphalactic shock (sp?) if he eats these foods. If he is allergic to rice, I suppose I could be allergic/intolerant to corn! :rolleyes: Definitely, something to think about.

Tiffany,

It is interesting to hear that you sometimes have the same "gag" feeling toward "real" food as I do. I try to eat anyway, but sometimes I can't make myself...I'll literally heave when I force myself to eat when I get like that. :unsure: It just isn't worth it. :blink:

Maggie,

Hang in there! You will feel better and better as time progresses. Thank you for your kind words. :) and Welcome to the forums!

Dana,

What you said about protein makes sense. I am actually trying to start a food diary (I even started a thread about it) ;) Although I do not like most high-protein foods, I make sure I eat some protein. I try to eat a balanced/healthy breakfast. gluten-free granola cereal/milk, bacon/OJ/grits, etc. But it seems like no matter how hard I try I always hit bottom energy by mid-morning (9-11 am). However, I am going to document EXACTLY what I eat in hopes of catching something I've previously overlooked.

Many blessings and much hugs to all that have replied!

-Julie B)

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Julie,

Glad we all can help some! I just had a thought, you said that you hit a low spot around 9-11.. Perhaps around that time, you can have a small snack on the side, nuts or something that will boost your energy. Just a thought!!! Let us know how it goes!

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:o It is like a light has come on in my head since I started reading the posts here!

Recently, I have started gagging on some foods, mainly meat. It is really embarrasing :( when it happens in front of people. Trying to hide the fact that I cannot swallow it, or spit it out is simply aweful.

How do you handle it when in that situation Tiffany? I'm starting to feel like it's just best to stay home.

I'm freaking out a little today, because my husband's work dinner is tonight and I have to go with him. :unsure:

Also, after really trying not to eat anymore gluten, I bought rice crisps yesterday which said they were 'gluten free'. I ate a couple, and immediately started feeling like a vice had been pulled around my stomach.

Then I read the fine print. It has soy sauce in it, doesn't it! :angry:

So, here we go again...I'll start my gluten-free diet afresh from now on. I guess I will learn by experience.

Thanks for the advice and encouragement everyone.

Maggie B)

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Hi,

I have Celiac and am intolerant of all grains, milk & dairy, egg whites and yeast. I have spent years learning the foods which affect me adversely, and now I never touch any of them, read labels diligently, and always work to remain gluten free.

However, even with eliminating all those foods, I often felt drained or overly tired, just as you are describing. I finally came across the book, The Carbohydrate Addict's Diet, which said that those from families where diabetes is prevalent might have a tendency to eventually develop that disease (my mother had diabetes).

I immediately began following their diet, which involves eating only high-protein, low carbohydrate foods 23 hours a day, with one hour devoted to eating or drinking anything to which you are not intolerant. It sounded too good to be true!

Within a couple of weeks I was feeling good, losing weight, sleeping better, and having no times of letdown fatigue.

It works!

Now I eat chicken, chili burgers, steak, ribs, salmon, tuna, fish, salad, egg yolks, etc. for those 23 hours a day, and indulge in all kinds of treats for my one hour "reward meal" (that's what Richard and Rachel Heller call you one hour meal). They both went from being several hundred pounds of unhealthy flesh to normal weights and healthy lifestyles.

Hope this helps. Welda

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    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
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    • Aya, GFinDC has given you good advice.  Watch your CARBS they ferment and can cause bloating. This can be more pronounced after starting PPIs in some people because you have temporarily lowered your stomach acid which can make things worse for some people.  It is called Acid Rebound when people try to stop PPIs and why (at least) for short period of a couple weeks to a month your body begins to produce it's own stomach acid again.. ..things seem to get much worse. Here is a research link about it entitled "Gastric hypochlorhydria (low stomach acid) is associated with an exacerbation of dyspeptic symptoms in female patients" Dyspectic (dyspepsia) is the medical term for indigestion commonly known as acid reflux/bloating etc. https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 In fact if stomach acid was not the cause your heartburn  and instead say from stress then taking PPIs can make it worse. See this fox news article from 5+ years ago that explains it well. http://www.foxnews.com/health/2012/11/13/gerd-or-nerd-new-type-acid-reflux-doesnt-respond-to-drugs.html quoting from the article "It used to be thought that all GERD was the same—you give patients PPIs and they'll all respond," says Prateek Sharma, a gastroenterologist at the University of Kansas School of Medicine. "But we're finding that a subset of these patients don't have acid as a cause of their symptoms." and they note this in their article on NERD not GERD. quoting again. "Another guess is psychological stress. A 2004 study of 60 patients conducted at the University of California, Los Angeles, found that those with severe, sustained stress in the previous six months were more likely to have heartburn symptoms during the next four months." the standard treatment for acid reflux is to take PPIs and that is troubling for many who start them and cant' get off of them. they actually note this fact. quoting again. "The ones we worry about are the ones who don't respond to standard therapy," he says. "Then we have to figure out why they don't respond." and might actually be making thing worse for many people. quoting again. Aya read the whole article and links provided in this thread when you get  chance. "One 2004 study cited a 46 percent increase in GERD-related visits to primary-care physicians over a three-year period alone." sadly if they had just tested your stomach acid levels before putting you on PPIs many of your acid reflux symptom's might of have been avoided. they are now beginning to realize PPI's don't work for everybody and can make it (heartburn) worse in many patients. quoting again. "Gastrointestinal experts now estimate that 50 percent to 70 percent of GERD patients actually have NERD, and studies show they are more likely to be female—and younger and thinner—than typical acid-reflux sufferers. They are also about 20 percent to 30 percent less likely to get relief from acid-blocking drugs. But their episodes of heartburn are just as frequent, just as severe and just as disruptive of their quality of life, studies show." Ground braking research really but we have a long memory when it comes to treatment regimens.  And it will take a while for the medical field to catch up to this new research. even though this new research recognizes this is real phenomena doctor's are stumped about how to treat it. quoting again. "New research suggests that in many people, heartburn may be caused by something other than acid reflux. But gastroenterologists are often stumped as to what it is and how to treat it." Because they think it is too high to  begin with it doesn't fit their paradigm to think stress or low stomach acid could really be the trigger and never test your stomach acid before beginning you on PPIs. If you were tested you would of remembered because it traditionally involved swallowing a pill retrieved with  string know as Heidelberg Gastric acid test or similar test like the EpH test where a thin tube is inserted through your nose for 24 hours. here is a medline article about the esophageal pH test. https://medlineplus.gov/ency/article/003401.htm because it makes or effects our gag reflex most people feel uncomfortable doing it. so this step (test) is typically bypassed. . . .and the real pH of your stomach is never tested/measured. But we know it is low stomach acid (being misdiagnosed I think) really because we have studied this phenom before see early link posted  here again for convenience sake entitled "Gastric hypochlorhydria (Low Stomach Acid) is associated with an exacerbation of dyspeptic symptoms in . . . patients" https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 the article focuses on the results for women (I am/was not sure (can't remember) if you are women or not but men were also studied in this research. I hope this is helpful. ***this is not medical advice but I have found often when your stomach acid is truly NOT high enough is when we have most of our/your GI problems. I just try and encourage others to get tested. . . because if you don't test you'll never know. We have the endoscopy test for many of our other GI problems we also need to test our pH as well to rule out if is contributing to our other GI problems. ***this is not medical advice but I hope it is helpful. ******Maybe someone else can answer this??? Can you do pH testing with an Endoscopy and if so why is not typically done?? when an Endoscopy is performed thus killing two birds (proverbially with one stone (test). 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • Yeah you have to eat it til they are done with all the testing, backward part of this disease is the dia.

      There are 100s of symptoms with this disease, you probably have a few you have considered "Normal" for years, and after a year or so you will like a new you.

      Go ahead and read over the newbie 101 thread for now and prehaps start cleaning out the cabinets, tossing the CCed condiment jars, scratched pans, and getting some new ones.
      https://www.celiac.com/forums/topic/91878-newbie-info-101/

      A whole foods diet starting off is best, avoiding dairy, oats, for awhile, but I do have a list of gluten free products I update a few times a year with a new one.
      https://www.celiac.com/forums/topic/121802-gluten-free-food-alternative-list-2018-q3/  
    • Aya, I think your PPIs are triggering your dyspepsia medical term for indigestion etc. Often when our stomach acid get's too low we will have issues with CARBS. They ferment and cause bloating. Here is a couple article/links about it. You need to get off the PPIs if at all possible.  Try taking a H2 blocker for two weeks and then stepping off it two weeks between reduction in dosages all the while watching your trigger foods. Here is a link about "Gastric hypochlorhydria (low stomach acid) is associated with an exacerbation of dyspeptic symptoms in female patients" https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 taking betaineHCL can also help your digestion if your stomach acid is already too low from taking lansoprazol. see this topic in the pharmaceutical journal about it. https://www.pharmaceutical-journal.com/learning/learning-article/question-from-practice-management-of-hypochlorhydria/11120379.article?firstPass=false as to whether you have Celiac disease or not . ..you might not yet but if you keep taking PPIs you might develop it if you keep taking them for years and years. PPI's increase your risk of developing celiac disease in the future. that is over 4 years old that studied this topic of PPIs use and subsequent Celiac disease diagnosis. https://www.celiac.com/articles.html/celiac-disease-gluten-intolerance-research/do-proton-pump-inhibitors-increase-risk-of-celiac-disease-r2860/ they (the researchers) concluded  quoting "The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship." and why this is novel research we didn't know why this was so too recently. see this article as reported by Jefferson Adams on celiacdotcom.  It is good research. https://www.celiac.com/articles.html/celiac-disease-gluten-intolerance-research/could-drinking-baking-soda-fight-celiac-and-other-autoimmune-diseases-r4479/ I am also including the medical news today article link on this topic because I think it summarizes these findings well. https://www.medicalnewstoday.com/articles/321624.php the articles about about what controls (switches on) inflammation (autoimmune reactions) in the body. we have microvilli (not villi) that line our organs (especially  the spleen) that alarm our body when proteins are in the body and not in the GI tract. the spleen is critical is here because it acts like a general of sorts directing our immune system and when gluten or other proteins tricks it --- it attacks our body (villi) by mistake. And this new research explains why this happens. quoting from the the summary on celiacdotcom ( again I think the MNT article) goes into more details. " A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed." to continue quoting "The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response." Which explains perfectly how PPI's could cause someone to develop Celiac disease because it lowers our stomach acid.  And this study points out how raising our pH (lowering the pH) cause the spleen to settle down and stop attacking the bodies own organs (villi) in the case of Celiacs'. And it 's not just the Villi the body attacks they note it happens in other organs too when the "general" the spleen gets confused the whole body suffers inflammation. quoting again from the article Jefferson Adams "That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists. In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood." so getting off the PPI by taking BetaineHCL or if you can believe this research baking soda to raise your stomach acid to natural healthy levels of a pH of 3.0 or less should help your indigestion and help control you GI inflammation from too low a stomach acid. you can have this tested by doing an Esophageal pH Test or just take betaineHCL and go low CARB and try the Baking Soda in the meantime to see if it helps your indigestion (if it is going to be a while before you can see the doctor again.) https://www.healthline.com/health/esophageal-ph-monitoring If it is truly low stomach acid (from taking PPI's) and too many CARBS in your diet then taken BetaineHCL will improve your digestion.  Be sure to always take BetaineHCL wtih food and plenty of water.  Water activates the stomach acid and the food dilutes the Stomach acid to ensure you don't get too much. If you get a "warm sensation" in your abdomen it is working. ******this is not medical advice but I hope this is helpful. I had a similar problem with my low stomach acid being misdiagnosed. Sorry the explanation is so long but you got a lot going on inside.. . and it takes some time to try and explain it. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
    • The news bot in on crack again. VERY messed up....celiac site telling us to use barley for weight loss.....YEP will work as we will be married to the porcelain god for a night or two.
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