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After Going gluten-free Then If You Got Glutened Can It Feel Really Bad

seattlemama

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seattlemama Newbie
seattlemama
Posted

yesterday I started feeling a little like I had been glutened. then i made some gluten-free cookies as an experiment and had two. then i had some leftovers for dinner (turkey - not made by me) and I'm thinking it was the turkey. anyway, i was starting to feel a little worse. this was about 6 PM. By 10 PM i felt like i was going to vomit and have diarrhea and my tummy was so bloated. by 11 PM i had done both. my tummy finally settled and i sorta fell asleep on and off for the rest of the night. i haven't had any more vomiting but just a little diarrhea. doesn't really feel like a virus, but i don't know.

my question is if you get glutened since going off gluten, can your "attacks" be worse than you ever experienced before going gluten-free? I never had this reaction to gluten before i went gluten-free. just stomach aches, cramping, gas, etc.

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cruelshoes Enthusiast
cruelshoes
Posted

It has been my experience that my reactions to gluten get more severe the longer I am gluten-free. It has also been true for my son as well. He was asymptomatic when he was diagnosed. Now when he gets exposed to gluten, his reaction is swift and terrible.

Kinda seems unfair, doesn't it? The harder we try to be gluten-free, the worse the reaction to gluten gets. It really gives one a powerful incentive to remain totally gluten-free. ;)

Hope you feel better.

PS - When I am feeling poorly, I often immediately attribute it to gluten, when it may not be related at all. It is possible you just came down with a bug. A few confirmed glutenings should help you figure out exactly what your reactions are going to be so you can see the pattern of symptoms. Getting gluten happens to the best of us sometimes - even if we make superhuman effort to stay away from it.

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cyberprof Enthusiast
cyberprof
Posted

Seattle Mama,

Yes, after going gluten free my reactions to even a small amount were extreme - worse than when I was on gluten all day, every day. Now after being gluten free for 9 months, I get a reaction but I don't get as sick. This is probably an individual thing, but perhaps the healing helps.

P.S. Both Colleen (Cruelshoes) and I are from Washington State too. Welcome to the forum!

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babygirl1234 Rookie
babygirl1234
Posted

whenever i get gluten aka cheat omg i get sick to my stomach stomach cramps big time and it lasts for atleast a week maybe 2

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loraleena Contributor
loraleena
Posted

Yes a thousand times worse for me.

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kbtoyssni Contributor
kbtoyssni
Posted

I think it depends on the person. I'm one of the lucky ones whose reactions have decreased since going gluten-free. I have a hard time knowing if I got glutened or if I just have a bit of an upset stomach.

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Rivergirl Apprentice
Rivergirl
Posted

Since going glutenfree, what I have noticed is my non-stomach and non-GI symptoms essentially have disappeared even after I have accidently glutened myself. So although my migraines, rashes, hand and finger tingling and numbing, brain fog, dizziness have gone away - what is WORSE THAN EVER when eating the tiniest speak of gluten is stomach cramps, bloating, and the big dreaded D. In fact those were my more minor symptoms before going glutenfree - now they are my worst.

On your other question - Turkey! Bad Turkey! There are many turkeys injected with all kinds of crap - including lots of fillers which have GLUTEN. Fortunately, many of the brands pride themselves on being preservative and gluten free - you just need to read those darn labels or read some of the historical notes on Turkey on this forum and others. This website was invaluable when I picked out my turkey this year.

Hope you get to feeling better soon.

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  • 3 weeks later...
rmlacoste Newbie
rmlacoste
Posted

^_^ My son (now 2, gluten free for 8 months now), has reacted three times now like he got "glutened".

This was, of course, a major fear for me as it was such a mess prior to finally having a Celiac diagnosis and not knowing what was making my son so ill.

Each time he has had such bad bouts I couldn't believe it as I have eliminated all traces of gluten in our home and have been so careful!

Each time, the only common denominator was turkey, once made my me, and twice at a Whole Foods deli.

As my son is dairy free as well, I was carefull that the turkey had no traces of butter, I could not varify the Whole Foods turkey.

Each time he got sick, I had it in the back of my mind "I wonder if it was the turkey?... no, couldn't be, that's weird."

Well, it seems the only connection.

Can't explain it, all I know is my son was SICK! He even woke up in the middle of the night to tell me his tummy hurt. I must have heard that every hour, and again after each time he ate.

I won't blame the turkey for certain, but I won't soon be giving it to him again.

???

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arc Newbie
arc
Posted

I think that for me it is because I feel so much better since going gluten free that the symptoms are much more noticeable in comparison.

That said, I do feel that I am more sensitive now.

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Rikki Tikki Explorer
Rikki Tikki
Posted
I think that for me it is because I feel so much better since going gluten free that the symptoms are much more noticeable in comparison.

That said, I do feel that I am more sensitive now.

DITTO!

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      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
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