-
You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment5New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)
After reading the study on Mucosal reactivity to cow's milk protein in coeliac disease I stopped eating processed foods that have milk as an ingredient. Though Gluten Free, "in a fraction of coeliac patients, Cows Milk protein challenge may induce an inflammatory reaction of the same magnitude, as did gluten challenge". After three months my lower belly...- autophagy
- celiac disease
- (and 8 more)
-
- Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease19
Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)
In Addison’s disease, autoimmmune adrenal cortex disease adrenal glands don't make enough cortisol. At 12, it is usually caused by an autoimmune attack. It has a strong genetic link to the HLA-DQ8 gene. After 12 gluten free and 14 years on prednisone for adrenal insufficiency (symptoms like you describe from 1984 until 2014) I recently removed all c...- antibiotic
- antibiotics
- (and 8 more)
-
- knitty kitty commented on Scott Adams's article in Origins of Celiac Disease19Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)
Extreme fatigue, small fiber neuropathy, pain (especially abdominal pain and leg pain) and loss of appetite are all symptoms of Thiamine Vitamin B 1 deficiency. I experienced all these symptoms myself. Thiamine is extremely important in providing energy for the body to function, in nerve conduction, and brain function including appetite. Since your...- antibiotic
- antibiotics
- (and 8 more)
-
- Scott Adams commented on Scott Adams's article in Origins of Celiac Disease19Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)
Does your son have celiac disease? If not, it may make sense to screen him for it.- antibiotic
- antibiotics
- (and 8 more)
-
- trents commented on Scott Adams's article in Origins of Celiac Disease19Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)
Sjogren's and Lupus are autoimmune disorders as well. Autoimmune disorders tend to cluster. If you have one, chances are elevated that you will develop another.- 1
-
- antibiotic
- antibiotics
- (and 8 more)
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.7k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
-
Upcoming Events
-
0June 04, 2026 11:00 PM
Until
June 05, 2026 12:00 AM
-
0June 09, 2026 10:30 PM
Until 11:30 PM
-
Posts
-
By Wheatwacked · Posted
Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with. -
Hi @CC90 Ah... that is very interesting. Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time? I could be wrong, but I would not be at all surprised if they find something on the next attempt. Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples! In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good. You don't want the same mistake to be made again. You say that your first endoscopy was traumatic? May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England? The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one. Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable. I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits. (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!) Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana
-
Hi Cristiana Yes I've had the biopsy results showing normal villi and intestinal mucosa. The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.
-
By Wheatwacked · Posted
Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives. An elevated level means your immune system is reacting to gluten. Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks. You want to create maximum damage. Not a medical opinion, but my vote is yes. -
Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.