Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


Another Round Of Tests

Rate this topic

Recommended Posts

Michael saw the Allergist on Tuesday. He said it was possible that some allergies have developed or resurfaced. We are doing some skin testing on Dec 11th.

I hope we get some answers. He seems to be slightly less cranky on the Prevacid and I was hopeful, however he had pizza for dinner last night and in the middle of the night he had a BM which he hasn't done since he was an infant. 5 more followed through today and this evening. He had HUGE purple circles under his eyes and he was really cranky and all of a sudden he had a messy nose again today. He cried and was fighting with his sister a lot. He got a diaper rash just below his privates and today/tonight on his butt cheeks he has a rash that looks a lot like the one Katharine gets when she gets G. OK so all the tests were negative, his TgGs actually went from 15 to 10.5. So is this in my head? A lot of the things Michael eats are gluten-free simply because it is what I cook or it is what is in the house. For instance he eats gluten-free cookies, muffins, animal crackers and most of his meals. However he loves his cheerios, cereal bars, and crackers for snacks and breakfast.

OK now for my question... how much gluten does it take to trigger a positive if you have never been gluten free? If the gene was activated, if he is only eating crackers once a day (wheat thins) or maybe one cereal bar and the rest of the day is gluten-free would this cause the damage to come slower and therefore not create enough antibodies to give a positive result? Should I make sure he gets a certain amount of gluten each day for the next 2 months before the test or is this enough?

I am not trying to sound like I am "searching" for a celiac diagnosis, this could be the onset of a virus and it happens to coincide with the pizza. But in my gut, I just know that there is something fishy going on here! These same symptoms appeared when he ate pizza for dinner on Halloween, however let me clarify pizza for Michael, it is just the crust. He usually just has me cut off the crust for him, last night he scraped off the cheese and toppings and ate just a bit of the tomato sauce on the crust.

If anyone has any ideas, they would be greatly appreciated! Thanks

Share this post

Link to post
Share on other sites

Blood tests for celiac are not very accurate for children under 4. In countries that screen for celiac in all citizens they begin testing of non symptomatic folks at 4 and then test again when the child reaches puberty. Do not rely on blood or endoscopic testing on your 2 year old, the best test will be a challenge which is what you have done with the pizza. And he definately reacted. Gluten light may not be enough to have him show positive on blood tests, even a full gluten diet is not enough at his age for accurate blood diagnosis. Personally I would get him off of gluten and/or go with Enterolab to check for antibodies and perhaps even the gene test. If you do gene testing don't think he doesn't need the diet if the results are gluten intolerance genes and not 'celiac' ones. The gluten intolerant need a strict diet just as much as folks with a US recognized celiac gene.

Share this post

Link to post
Share on other sites


Thanks for the speedy reply. I appreciate it. We have been toying with the idea of just putting him gluten free since we did the DNA testing when Katharine was pos dx last year. Michael tested negative for celiac back then but the DNA test came back positive for the celiac gene...so we know it is there lurking! ;) I am worried though that without the pos dx for him I won't be able to enforce things when he gets to school. Any thoughts on the whole school thing? Has anyone had problems enforcing the diet at school without the pos dx from a dr?

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
Hi, Celery is one of the top allergens, so it could be a reaction to celery. https://www.livestrong.com/article/207641-celery-allergy-symptoms/ By the way, I merged your two similar threads.  The forum rules don't allow duplicate threads,  They make things confusing.  But no problem, carry on!
  • Blog Entries

  • ×
    • Create New...