Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Judyin Philly

Whose Tried Cholestyramine- Questran Powder?

Rate this topic

Recommended Posts

I know Debmidge has found this helped. Thanks for you emails Deb.

I've found good results being gluten-free for past 2 1/2 years and now sf, df

6 months and the low oxalate for 2 months I guess. I still had dumping

and 'd' but just tired this powder the last 3 days and it seems to be helping.

I still have my gallbladder and don't have g/b symptoms & my cholesterol

levels are great. Many with Habba have their gallbladders and some do not

and the power is to help both folks.

Heard about this Habba Syndrom on mystery dx on the health channel.

Thanks Patti.

I would so appreciate anyone sharing info on this condition or

connection between celiac- low oxalates-- and excess bile from the

gallbladder dumping into the intestine.

I've put this question up on the oxalate thread but thought maybe others might see it here

Thanks

Judy

Share this post


Link to post
Share on other sites

will look forward to it Laura

I started it 2 days ago but it said it also helps with the oxalate in the bladder and that is cropping up now that the 'd' is gone.

hummmmmmmmmmmmmmmm :blink:

Share this post


Link to post
Share on other sites

Judy,

I'm pretty sure Carla was using it....not sure if she's still on it. It can be used as a toxin binder (absorbs toxins)....lots of people with Lyme and other infections use it to help with getting rid of the toxins that circulate.

Share this post


Link to post
Share on other sites
Judy,

I'm pretty sure Carla was using it....not sure if she's still on it. It can be used as a toxin binder (absorbs toxins)....lots of people with Lyme and other infections use it to help with getting rid of the toxins that circulate.

Thanks Rachel...........guess it has lots of uses. This is a good thing for me.

appreciate your comments.

judy

Share this post


Link to post
Share on other sites

It's good for all kinds of toxins...I've read that it's good for people exposed to mold as well. I've been planning to talk to my doctor when I see him in December about this specifically for flushing out the toxins from the lyme and mold toxicity in my case.

Share this post


Link to post
Share on other sites
It's good for all kinds of toxins...I've read that it's good for people exposed to mold as well. I've been planning to talk to my doctor when I see him in December about this specifically for flushing out the toxins from the lyme and mold toxicity in my case.

thanks Donna.

Well this is great news too.

We have a mold issue and of course the lyme is :blink: always :blink: a worry BUT........THIS SEEMS TO WORK FOR ALOT OF 'DUMPING' ISSUES.........

YA...HOOO............ME THINKS ME MIGHT BE ON TO SOMETHING HERE.

I KNOW I'M DUMPING BLADDER OXALATES FOR ..........SURE B)

Share this post


Link to post
Share on other sites

Please forgive me for 'bumping' this up.

With bad weather around the US I was in hopes that maybe someone might be on that might be able to help me with this.

Spoke with Laura yesterday and she was so helpful. THANKS LAURA. :P

JUST thought with a group this large someone might have some info since this drug is used for de toxing as well.

thanks

Judy

Share this post


Link to post
Share on other sites

I know CarlaB has taken this, so hopefully she'll see this, or maybe you can PM her.

Share this post


Link to post
Share on other sites
Judy,

I'm pretty sure Carla was using it....not sure if she's still on it. It can be used as a toxin binder (absorbs toxins)....lots of people with Lyme and other infections use it to help with getting rid of the toxins that circulate.

This is the first time I have seen this thread ... sorry. :) If you ever want to be sure I see a specific post, please mention it in the OMG thread or send me a PM. :)

I was taking this because I had constant diarrhea from unknown causes for months. One of the side effects of the drug is constipation .... though I had diarrhea the whole time I was taking it.

It was used on me to bind toxins (bile) in the intestines so that the toxins would not be reabsorbed. I used this in conjunction with coffee enemas, which force the gall bladder to release bile.

I have been doing so many things to kill bacteria, detoxify, etc. that I can't tell you how much this helped, but I really think it did help.

I stopped taking it when my GI issues were resolved and now take chlorella to bind toxins.

In the end, my GI issues were caused by bartonella (a coinfection of Lyme Disease), bacterial dysbiosis, and a tapeworm ( :o ).

Share this post


Link to post
Share on other sites
Spoke with Laura yesterday and she was so helpful. THANKS LAURA. :P

Not sure how much good information I was actually able to give you, but it sure was a good excuse to chat with you!!!!! I sure hope this new med helps you.

Share this post


Link to post
Share on other sites
It's good for all kinds of toxins...I've read that it's good for people exposed to mold as well. I've been planning to talk to my doctor when I see him in December about this specifically for flushing out the toxins from the lyme and mold toxicity in my case.

Donna

did you ever ck this out with your GI?

I'm pretty sure it is doing 'AL LOT OF DETOXING' IN ME ESP IN THE STOOLS AND URINE.

JUDY

Share this post


Link to post
Share on other sites
It was used on me to bind toxins (bile) in the intestines so that the toxins would not be reabsorbed. I used this in conjunction with coffee enemas, which force the gall bladder to release bile.

I have been doing so many things to kill bacteria, detoxify, etc. that I can't tell you how much this helped, but I really think it did help.

I stopped taking it when my GI issues were resolved and now take chlorella to bind toxins.

In the end, my GI issues were caused by bartonella (a coinfection of Lyme Disease), bacterial dysbiosis, and a tapeworm ( :o ).

SO IT DID HELP YOU RIGHT?

I READ ABOUT YOUR TAPE WORM............. :blink: DID IT ALL PASS CARLA?

Share this post


Link to post
Share on other sites

I really can't say whether it helped or not .... I'm not on it anymore and I'm not sure if it helped.

Yeah, tapeworm, yuck! I don't know if it's all gone, or not!! I'm going to take the Humaworm again .... you're supposed to wait 90 days between treatments. I figure it's a good idea to be sure. Their website says that bad infections may need more than one treatment .... I don't know if they consider a tapeworm to be a bad infection, but I DO!!!

Share this post


Link to post
Share on other sites
I really can't say whether it helped or not .... I'm not on it anymore and I'm not sure if it helped.

Yeah, tapeworm, yuck! I don't know if it's all gone, or not!! I'm going to take the Humaworm again .... you're supposed to wait 90 days between treatments. I figure it's a good idea to be sure. Their website says that bad infections may need more than one treatment .... I don't know if they consider a tapeworm to be a bad infection, but I DO!!!

i learned on the OMG that dumping or detox could be seen in sandy, grainy, black flakes in the stools and i could see shiny chrystal like thinkgs floating on top so guessing dextoxing.

also...........yep....................that tapeworm, what ever name it goes by is BAD NEWS :ph34r:

THANKS FOR ANSWERING.

HOPE YOUR FEELING BETTER AFTER YOUR CHRISTMAS FLU OR WHAT EVER YOU HAD.

JUDY

Share this post


Link to post
Share on other sites
Donna

did you ever ck this out with your GI?

I'm pretty sure it is doing 'AL LOT OF DETOXING' IN ME ESP IN THE STOOLS AND URINE.

JUDY

I did ask my doctor. He won't give it to me. Because I am mold toxic, he wants me to fix that problem not rely on medication. :(

Share this post


Link to post
Share on other sites
I did ask my doctor. He won't give it to me. Because I am mold toxic, he wants me to fix that problem not rely on medication. :(

well i have to say i agree with this.

Since my Internist and GI are at a loss I'm just giving it a try and wish i knew what the cause was tool. excess bile salts they said. oh well.

thanks for letting me know Donna.

j

Share this post


Link to post
Share on other sites

Yeah, I have to say I don't disagree with him, but really just wanted it to tide me over until I COULD fix the problem, lol. Oh well, this just puts a fire under me to get it fixed.

Share this post


Link to post
Share on other sites
Yeah, I have to say I don't disagree with him, but really just wanted it to tide me over until I COULD fix the problem, lol. Oh well, this just puts a fire under me to get it fixed.

Hi Donna

I so agree............ I always want to know 'what the cause is' and not put a bandaid on something and want to get to the root cause.

BUT it seems when my 'd' is so bad i can't even think straight to figure anything out :ph34r:

At least now i can function...........still off all the foods listed previously.........so limited foods but i really am feeling better and thus hopful.

i have a whole printed thing from the IBS forum from people who went to see Habba

and those the powder helped. I can send in a email to you if you want.

i think i have mold issues too. didn't you have to get rid of rugs etc. in your apt?

gosh it's been so long since i read about this issue with you on the omg thread

let's keep in touch ok?

Judy

Share this post


Link to post
Share on other sites

Sure Judy...I'd love to see the info you got!

Yes, I have to replace the carpet and my doctor won't really begin aggressive treatments with me until I do that. He said as long as I'm exposed to the mold, I won't improve much beyond what I have. I have to agree with that too, lol, but I'm anxious to get started on it. I have seen improvement too, just supporting my body with the missing nutrients, etc. has helped.

I'm so happy you are seeing improvement!!!! That is just fantastic! You had me worried for a while there!

Share this post


Link to post
Share on other sites
Sure Judy...I'd love to see the info you got!

Yes, I have to replace the carpet and my doctor won't really begin aggressive treatments with me until I do that. He said as long as I'm exposed to the mold, I won't improve much beyond what I have. I have to agree with that too, lol, but I'm anxious to get started on it. I have seen improvement too, just supporting my body with the missing nutrients, etc. has helped.

I'm so happy you are seeing improvement!!!! That is just fantastic! You had me worried for a while there!

Hi Donna

If you pm me you personal address........think i had it at one time but not there now....i'll send to you as not sure i can put it all in a pm here......long but since it's a print out will be easier to read.

Ha you were worried.........I was getting scared. s...less......... :lol:B) cause that's all i was doing. :lol:

pretty sure with my food diary etc it was 'dumping' so if i can understand it better i cope better.

Also in the middle of this Laura. (happygirl) and i talked and she was so encouraging. sometimes it's all we need to help get us through. Plus lucky to have a few phone friends......who are always there for me and boy it sure helps keep us going.

good luck to you kido.

heard you saw Rachel sleeping at the dr's...............and you met up with carla...you sure get around girl... :lol:

Judy....just let me know as it's ready to hit the 'send' button ;)

Share this post


Link to post
Share on other sites
Judy....just let me know as it's ready to hit the 'send' button ;)

Just sent you a PM.

Haven't met up with Carla yet...just Tom and Claire and then Rachel so far. :P

Share this post


Link to post
Share on other sites

A GI specialist prescribed Cholestyramine for me after having my gallbladder removed. I was having uncontrollable D so bad that if I were going to work at 3pm I could not eat a bite of food in the am at all or I would never make it to work. I couldn't eat until I got home late at night so I could be near the bathroom.

I was unable to eat out at any restaurant as often I had to hit the restroom before I could even finish or pay for the meal, but that was always better than when I didn't have to hit the restroom until I got in the car and made it a couple of miles down the road.

The medicine made it to where I can eat out and at least have the time to make it to the restroom. I have to say that for it.

I have learned that I am allergic to all but 7 of the foods that they tested for and all of the plants, molds and creatures, particularly grasses, which of course includes rice, wheat, rye, barley and oats and I suspect that I have Celiac's disease, but doctor is digging his heels in about testing, wanting it to be something else. I'm not sure what, but he has run every blood test under the sun and so far has come up with low thyroid, which is not getting any higher no matter how much synthroid he prescribes, and low folate.

At this time I am trying to get my doctor to authorize more testing but meanwhile I have gone gluten free and have had to use the Cholestyramine very seldom as in when I am going out to eat, just to make sure, but other than that, I have had no problems at home. I guess I am using it as a crutch but hey, once you have gone 12 years with no control of your bowels after eating, you can get a little bit paranoid about it.

The Cholesyramine is a great band-aid for what ails you, or has been for me. It has helped me to try to live somewhat of a normal life, while testing is ongoing to find out what my real problem is.

Share this post


Link to post
Share on other sites

hi and welcome to the forum. saw you had 3 posts so far.

i am so happy to hear about you using the powder and your experiences.

i still have my gallbladder but it has really helped me.

you might want to ck this thread .........you might find it helpful

http://www.glutenfreeforum.com/index.php?s...8564&st=425 I sent you to the last page..#18 but you will get some info on the things i've done.

if your interested.......i'd start reading the whole thread as there is alot of good info here.

Judy

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,791
    • Most Online
      4,125

    Newest Member
    udayshankar
    Joined
  • Forum Statistics

    • Total Topics
      112,059
    • Total Posts
      956,643
  • Who's Online (See full list)

    There are no registered users currently online

  • Forum Discussions

    Hi, Thanks for your answer! Unfortunately I have to follow the MAOI diet for as long as I'm taking the MAOI, so essentially nobody's going to be inviting me round to dinner from now on… This is a bit of a shock. I don't really have any clear-cut symptoms that I would've considered worth going to the GP about. I mean I'm always tired and I have a bit of IBS and so on but generally I put that down to the other things wrong with me and the medication I have to take for them (mostly the bi
    Thanks Posterboy, that was interesting information.  I believe that I had read something elsewhere about tetracycline, at least, being used instead of, or along with, Dapsone for severe or refractory cases of DH. Unfortunately, even if I had medical insurance (which I do not), and had a regular doctor who was even willing to recognize and accept my condition for what it is, I don't know what kind of luck I would have in persuading that hypothetical doctor to give me a particular and non-sta
Healthysquirrel,  Please have your doctor check your Vitamin D level!   Vitamin D deficiency is related to vertigo https://www.ncbi.nlm.nih.gov/pubmed/27386060 Vitamin D can help with high IgE https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5263170/ Low vitamin D and low ferritin are tied https://www.ncbi.nlm.nih.gov/pubmed/29385099 Dry eye problems including blepharitis can be helped with vitamin d and vitamin a https://www.ncbi.nlm.nih.gov/pmc/articles
  • Blog Entries

  • ×
    ×
    • Create New...