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Runner1978

Blood Test And Endoscopy

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In September, my blood tests were conflicting. One was positive for celiac, the other (apparently the more accurate) was negative. I believe I had a 5 on that one. I've been gluten free for two months. The diarhea has gone away, for the most part, I'm no longer nauseous and I do look healthier. That being said, I have alot of acid reflux and severe abdominal cramps every second day or so despite being gluten-free. So I saw a specialist who says I may or may not have celiac, I may just be gluten intolerant. He also says I may have crohns. My family doctor had tested me for crohns with a blood test and it came back negative. That said, the specialist says there is no blood test for crohns. So now I'm quite worried. I've started eating gluten again in preparation for an endoscopy. So far, I sill feel ok. I sometimes feel nauseoous but it's difficult to tell if these symptoms are real or imagined as I'd really rather have celiac than crohns.

My main frustration is that I can't get a straight answer. I'm not exactly sure what I'm asking with this post. Perhaps a bit of guidance on my positive/negative blood test.

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In September, my blood tests were conflicting. One was positive for celiac, the other (apparently the more accurate) was negative. I believe I had a 5 on that one. I've been gluten free for two months. The diarhea has gone away, for the most part, I'm no longer nauseous and I do look healthier. That being said, I have alot of acid reflux and severe abdominal cramps every second day or so despite being gluten-free. So I saw a specialist who says I may or may not have celiac, I may just be gluten intolerant. He also says I may have crohns. My family doctor had tested me for crohns with a blood test and it came back negative. That said, the specialist says there is no blood test for crohns. So now I'm quite worried. I've started eating gluten again in preparation for an endoscopy. So far, I sill feel ok. I sometimes feel nauseoous but it's difficult to tell if these symptoms are real or imagined as I'd really rather have celiac than crohns.

My main frustration is that I can't get a straight answer. I'm not exactly sure what I'm asking with this post. Perhaps a bit of guidance on my positive/negative blood test.

My naturopathic doctor did a blood test,,allergy testing and a saliva test. In my opinion medical doctors don't test for this enough. they usually do the small bowel biopsy,,but I have been told that if you are off gluten/wheat for a while the tests can be negative and conflicting. In the past I was diagnosed with IBS,depression,and environmental allergies. also the villi in the small bowel can be damaged and you can have other food related reactions. i am currently soy free,egg free and dairy free. I also hear some of the syptoms are like crohn's disease and that if untreated celiacs can cause crohns. good luck

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If you have been gluten-free for 2 months, you will need to eat a LOT of gluten for 3 months in order to damage your villi (which healed in those 2 gluten-free months) enough to have a positive biopsy result.

There has been a lot of talk lately about the problems with biopsy--I hope you can find all the discussion on some of the other recent threads on this board! But biopsy is NOT a reliable way to rule out celiac, as there is the potential for a huge possibility of false negatives. This is especially true if you have already been off gluten for more than a month.

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However, if your doctor takes multiple biopsies from multiple places, it increases the possibility of an accurate biopsy reading.

I would recommend that before/at the time of the biopsy (since you are eating gluten again), to have the full Celiac blood panel run. It involves five tests:

AGA IgA

AGA IgG

EMA IgA

tTG IgA

Total IgA.

This way you'll have the biopsy and the full Celiac bloodwork run to help in making an educated decision. Best of luck.

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There are different tests in the Celiac blood panel and none of them, individually, are 100% sensitive and 100% specific to Celiac. That is why they recommend the full panel.

While the severity of the damage is often correlated to parts of the Celiac panel (I forget if it is EMA or tTG), you can still have a negative blood test and be positive on biopsy, and vice versa.

If you post the names of the tests, the score, and the range, we can help interpret.

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my blood tests for celiac came back fine, but my gastroenterologist wants to do an endoscopy while she's got me there for the colonoscopy...My daughter has celiac, but I have no symptoms. does doing the endoscopy make sense?

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Kifert, absolutely it makes sense, especially if you're going to be having a colonoscopy anyway. Bloodtests aren't all that reliable, they are only reliably positive in people who have extensive damage to their intestines. If you are in the earlier stages of celiac your blood test might be a false negative but the endoscopy might find some damage. Ask them to take plenty of samples though, because just a couple of samples might miss damage if it's spotty.

Pauliina

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    Oh yes, it could, although to be honest I never got myself so wet with sweat that it would have been a serious situation.  However, I can remember one time when I got caught in a cloudburst while going to my car in a large parking lot, though, and got soaked to the skin, and of course had to wear those soaking-wet clothes while I drove the 45 minutes it took me to get home --- I will NEVER forgot the misery and agony of that drive!  I could just barely keep the car under control, in fact.
    Thanks for your response, Squirmingitch, but I have to almost laugh, as at this point I am not really stressing over these questions at all --- just curious.  I have always been an insatiable question-asker, so please don't take my frequent questions as a sign of my obsessing over celiac disease or DH.  Yeah, admittedly I was rather stressed out for a couple of days two weeks  ago or so, but I am significantly settled down now, even while negotiating the nutritional maze of trying to manage two
Water?! That's… unreasonably inconvenient. Did it happen with sweat?
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