Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Hi,

I've been on the gluten free diet for about 2 1/2 months now. I don't have a diagnosis...I've never been tested. I'm mainly doing it for 2 reasons...1. to support my husband while he tries to figure out how to relieve his ongoing health problems and 2. because I've suffered from IBS for years. I'm feeling a little better as far as my gastric problems go, although now I'm dealing with the opposite end of what I was having when I started the diet - meaning C instead of D.

But, my real question is this...I was just thinking about a time a few years ago that I tried a shot of wheat grass juice at a health food store. I got almost instantaneously nauseas & my head felt real dizzy. They told me that that happens to people sometimes.

Do you guys think that that could have been an indication that I really do have a problem with gluten?? Does wheat grass have gluten in it?

I've been wondering if I'm doing this diet in vain - that maybe I don't have a problem with gluten. I do feel better in general, so I'm not thinking about stopping the diet. I've been eating more healthily than ever before in my life. But, it would be nice to have some sort of proof that I should be eating like this.

Any opinions or proof that a reaction to wheat grass is indicative of a gluten sensitivity would be appreciated.

Thanks!

Share this post


Link to post
Share on other sites

Try a search of wheat grass on this site. I remember a thread a year or so ago, and everybody did say that wheat grass juice does contain gluten.

I had terrible diarrhea both times I had wheat grass juice--it started about half an hour after drinking it. And I didn't have obvious intestinal reactions to gluten at the time.

Share this post


Link to post
Share on other sites
Hi,

But, my real question is this...I was just thinking about a time a few years ago that I tried a shot of wheat grass juice at a health food store. I got almost instantaneously nauseas & my head felt real dizzy. They told me that that happens to people sometimes.

Do you guys think that that could have been an indication that I really do have a problem with gluten?? Does wheat grass have gluten in it?

.

Thanks!

Did the same thing to me when I accidentally got a drink with it in it.

One valid way of diagnosing a problem with gluten is dietary challenge. Have you tried being strictly gluten free for a couple of months and then doing a deliberate challenge with a gluten only food like cream of wheat or triscuits? You would eat it three times a day for up to a week and watch for any reaction. Gluten reactions are often delayed and may not show until 3 to 5 days after the start of the challenge. When you react you have had a positve and can drop the gluten.

Also many of us have problems with soy and dairy, both of which can cause C and both intolerances are common with gluten intolerant folks.

Share this post


Link to post
Share on other sites

Thanks for the responses! I did look around here for threads on this...the debate is strong. Seems like companies that make wheatgrass are adamant (of course!) that there's no gluten in the juices because gluten lives in the wheat berry. But, others (myself included) are suspicious that it would be difficult to ensure that no wheat berries make it into the juice. I think I'll steer clear of the wheatgrass juice no matter what.

I have not done a gluten challenge...yet. I have been considering it to just confirm what I believe is true. But, I am a little nervous to possibly intentionally make myself sick - especially right now (holidays, lots of work deadlines, etc). Maybe sometime when I know that I have a few days without any real pressing issues.

I know that I can't have soy milk - it gives me horrible gas. I've thought that I am lactose intolerant since I was a child. I used to use Lactaid milk, but changed to rice milk this year. I did slip up & have a bowl of ice cream last week...and had horrible gas. But, I don't know if I have a problem with casein. Does anyone know if dairy intolerance can be delayed? Could the C that I'm experiencing really be related to the ice cream I ate days ago?

Share this post


Link to post
Share on other sites

Yes dairy can be a delayed effect if you are dealing with a casien (milk protein) rather than a lactose (milk sugar) intolerance. Also when looking at labels on dairy free items be sure to look for casein as many times unfortunately dairy just means lactose free. I have found this to be particularly true while looking for a soy free and casein free cheese sub. I haven't yet found one without casien.

Share this post


Link to post
Share on other sites

There is also a huge debate about Rice Dream Rice Milk, which claims to be gluten-free, but uses barley enzymes in the processing, and is actually .02% gluten, which means it can legally call itself gluten-free, but it seems to cause bad reactions in those who are extremely sensitive to gluten (like, um, celiacs :rolleyes: ).

Share this post


Link to post
Share on other sites
There is also a huge debate about Rice Dream Rice Milk, which claims to be gluten-free, but uses barley enzymes in the processing, and is actually .02% gluten, which means it can legally call itself gluten-free, but it seems to cause bad reactions in those who are extremely sensitive to gluten (like, um, celiacs :rolleyes: ).

I use West Soy milk for that very reason.

Share this post


Link to post
Share on other sites
There is also a huge debate about Rice Dream Rice Milk, which claims to be gluten-free, but uses barley enzymes in the processing, and is actually .02% gluten, which means it can legally call itself gluten-free, but it seems to cause bad reactions in those who are extremely sensitive to gluten (like, um, celiacs :rolleyes: ).

Ya gotta love a government which tells us how much poison we can have. This makes me angrier than anything else at this point. Nothing like an FDA that cares more about big business than about the people they are supposed to protect. They did this regulation specifically so that companies can keep a gluten free label on food that is not so they can..........sell more of it. Too bad the practice can also make us very sick and leave doctors thinking we have other problems or refactory sprue because we are 'only eating gluten-free food' and still symptomatic.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
https://www.celiac.com/blogs/blog/1202-gluten-free-and-specialty-diet-recipes/
  • Blog Entries

  • ×
    ×
    • Create New...