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SuperBeck

Igf-1 And celiac disease Question

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Does anyone have any info on IGF-1 deficiency and celiac disease and kids? (I did a search here and couldn't find any.) My 5yo daughter has been dxed with IGF-1 deficiency/growth hormone resistance and I'm am reconsidering celiac disease. Other than poor growth, she also has very large hard bowel movements, and a distended tummy.

She was blood-tested for celiac disease a while back. She's being followed for very poor growth. Here are her numbers. Her doctor said she's not worried about the positive result, but I want to understand the antigliadin Abs numbers ... why is that high and what does that mean exactly? I know she still might have celiac disease and we will be doing the GC, but wondered if ya'll could comment on this.

Antigliadin Abs, IgG 18 (Neg 1-9 Pos >9)

t-Transglutaminase (tTG) IgG 1 (edited) (Neg 0-5 Weak Pos 6-9 Pos >9)

Immunoglobulin A, Qn, Serum 46 (mg/DL 20-100)

Thanks so much for your help.

Beck

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Guest elysealec
Does anyone have any info on IGF-1 deficiency and celiac disease and kids? (I did a search here and couldn't find any.) My 5yo daughter has been dxed with IGF-1 deficiency/growth hormone resistance and I'm am reconsidering celiac disease. Other than poor growth, she also has very large hard bowel movements, and a distended tummy.

She was blood-tested for celiac disease a while back. She's being followed for very poor growth. Here are her numbers. Her doctor said she's not worried about the positive result, but I want to understand the antigliadin Abs numbers ... why is that high and what does that mean exactly? I know she still might have celiac disease and we will be doing the GC, but wondered if ya'll could comment on this.

Antigliadin Abs, IgG 18 (Neg 1-9 Pos >9)

t-Transglutaminase (tTG) IgG 18 (Neg 0-5 Weak Pos 6-9 Pos >9)

Immunoglobulin A, Qn, Serum 46 (mg/DL 20-100)

Thanks so much for your help.

Beck

Beck,

Sorry, your daughter is feeling poorly. I don't understand how your doctor is not concerned about the positive result. Your ttg is positive and there are few things other than celiac disease that make the ttg high. You need to have another doctor review that bloodwork. Good luck.

Vicki

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Beck,

Sorry, your daughter is feeling poorly. I don't understand how your doctor is not concerned about the positive result. Your ttg is positive and there are few things other than celiac disease that make the ttg high. You need to have another doctor review that bloodwork. Good luck.

Vicki

Hi Vicki, Thanks for the reply. Can you tell me other things that we should investigate? I just realized, the numbers I posted were incorrect. The only thing that was positive is the Antigliadin Abs, IgG , NOT the ttg. (My mistake--I'll edit for accuracy.) Is there anything to worry about with a positive igg?

Beck

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Guest elysealec
Hi Vicki, Thanks for the reply. Can you tell me other things that we should investigate? I just realized, the numbers I posted were incorrect. The only thing that was positive is the Antigliadin Abs, IgG , NOT the ttg. (My mistake--I'll edit for accuracy.) Is there anything to worry about with a positive igg?

Beck

I believe the Igg can be postive for many reasons. I have a daughter with celiac and two other children who carry the gene , but have not tested positive. My one son's Igg is always positive and my doctor(he is a pediatric celiac specialist) is also not concerned with that number being positive. He told me it could just be his body fighting off a virus. You don't say how old your daughter is, but bloodwork can be a mysterious thing. It is not very accurate in youngetr children and some people who are affected by gluten can test negative in their ttg levels, but react positvely to a diet. Some doctors also really get it and some don't. I can't tell you how many people have been misdiagnosed. Good luck.

Vicki

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I believe the Igg can be postive for many reasons. I have a daughter with celiac and two other children who carry the gene , but have not tested positive. My one son's Igg is always positive and my doctor(he is a pediatric celiac specialist) is also not concerned with that number being positive. He told me it could just be his body fighting off a virus. You don't say how old your daughter is, but bloodwork can be a mysterious thing. It is not very accurate in youngetr children and some people who are affected by gluten can test negative in their ttg levels, but react positvely to a diet. Some doctors also really get it and some don't. I can't tell you how many people have been misdiagnosed. Good luck.

Vicki

My dd is 5 (she was 4 at time of blood test). Do you happen to know when they do a genetic work up to investigate "failure to thrive" would they look at her genetically for celiac disease? Her ped endo is really good and has been responsive to my inquiries and requests for tests. I plan to ask her to do an updated panel on her and include celiac disease blood testing, although I suspect there won't be any changes. Other than endoscopy, are there any other tests that could assess her for celiac disease. I am willing to do the GFC, but I fear my family (and DH) won't buy into it unless a doctor "dictates" the dietary measure.

Beck

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My son also had high IgG results too and infact that was the only thing that came back positive on his celiac pannel. His GI doc called it inconclusive for celiac and our allergist told us no it was positive for celiac. So I can share your confusion, I had my son's run again the the IgG was + again with almost the same # about 6 weeks later. All of this was before going on the diet.

Just recently the GI doc told us maybe he is celiac....but we will never know because we did not do biopsy back then and we are not putting him back on gluten.

However, he still has constipation and ab destention nearly 9 months on the allergen free diet. So we are doing biopsy this month to figure out why?

I too have had no luck finding out more info on high IgG's either.

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What did you find out about your daughter ? My son is 6 and has used the exact same sentence!! He feels like there is a bubble in his throat. He has been complaining on and off for the last year and recently it seems he complains more Ans Wants me to make a doctor appt. he had reflux bad as a baby until about 2.5 and allergies to fomula Ans my milk but since then I thought that all went away. 
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