Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Joe Hoffman

Questions For Experienced Celiac Veterans

Rate this topic

Recommended Posts

As you know from my other posts I am newly diagnosed with Celiac. I have found the feedback on this forum phenomenal, so I have some more questions:

1. Does high doses of sugar (Gluten free xmas cookies) increase the diarrhea.

I ate about nine big cookies last night and I suffered severely for the next eleven hours. I spent six of the eleven on the toilet and the other five curled up in a ball shaking from the abdominal pain.

2. My wife said she checked the ingrediants on the sprinkles and topping and said they were all OK. Have any of you had cookies with sprinkles etc., and had a similar attack?

3. I have been very light headed, sometimes really disoriented, almost like I have been drinking. Is this a part of the Celiac or do I have something else going on now too?

4. I have been itching for five months now, mostly at night, and some nights a lot worse than others. Is that another side effect of Celiac?

5. I am also getting little marks on my arms and legs, more so on my arms. Not scavies, or insect bites. Kind of like bites, only a little bigger, but smaller and less rough than warts. Are they another side effect from Celiac?

6. Last question. The diarrhea has gone from heavy straight fluid to a heavier oatmeal like substance. Every day now it was getting thicker. Then Monday morning I stopped having bowel movements until last night. I don't even want to describe what happened last night, but at the end I was back to real loose oatmeal type diarrhea again. My question is "Is it common to go from diarrhea to constipation and then back and forth"? If so how long does this part of the recovery last? and is this the last step in the recovery process regarding controlling your bowels?

Thanks for your input. It is sincerely appreciated.

Joe

Share this post


Link to post
Share on other sites

Joe, I'm off to work, so excuse this brief reply.

Until you intestines begin to heal, you will have symptoms such as a reaction to gluten whenever you eat ANYTHING. Your system is damages and it will take some time to recover. Gradually, with diligence, it will improve.

Don't know about the sugar and diarrhea and sprinkles.

Your itchiness and sores may be signs of DH (Dermatitus Herperiformis) Having it is alone is a diagnosis of Celiac.

Yes, you can typically swing from diarrhea and constipation. It is not uncommon.

Keep the faith, you will improve!!!!

Share this post


Link to post
Share on other sites

Hi. Since you are new to this whole thing, you might not have figured out which non-wheat flours work well for you. Lots of folks have trouble with tapioca, for example. It does look like high concentrations of sugar can increase diarrhea, though perhaps no cause it, I only researched that for a minute.

AS to the itching at night -- I had this VERY badly before getting diagnosed, and it got better once I went gluten free. However, now that it is winter, I have it again, though more mildly. If my partner rubs my back, which should feel good, right, I end up amazingly itchy afterward. Of course, I take amazingly lot hot showers in the wintertime, and our water is heavily chlorinated (or so it smells). This one should get better. What helped me too was using heavy lotion, the kind you find in tubs not bottles, though you have to be sure it is gluten free.

As to light-headedness/spaciness: are you sure you're not getting some gluten someplace? To be honest, this is one of the ways I can tell if I've been accidentally dosed, if you add anxiety to it as well. I typically only get this anymore if I eat out. If it makes you really tense when this happens, drink some peppermint tea. If it is happening all the time, I'd definitely try to figure out if your kitchen is contanimated or if you're missing smething. Of course, it could be nutrient deficiencies of all kinds, which will clear up as you start to digest better.

A couple questions to you/considerations:

1) are you taking digestive enzymes? This might help you digest your food until you get back on track.

2) are you taking probiotics of any kind? florastor is good if you're not allergic to yeast; acidophilous, those things...

3) consider Betaine HCI - it supposedly increases stomach acid, to help digest food.

The Betaine only worked for me for a while, or if I eat protein rich foods. When I just eat salad, I can't have it or I end up getting acidy. But my nutritionist put me on it when I was first diagnosed, and I took it again for a month or so recently when I stopped digesting my food very well (or so I'm guessing by the contents of the bowl, if you catch my drift).

Good luck. Keep asking questions - folks on the board are great. There's lots to learn. Take care.

Share this post


Link to post
Share on other sites

Hi Joe,

I have the same problem if I get too much sugar -- just goes though me. I was told it will take about 2 years for my small intestines to heal. Thanks to people on the form I learned to cut back on lettuce and other abrasive foods and am doing much better.

Could be the cookies were not totally gluten-free or had something in the sprinkles or had some sort of cross contamination.

My wife cannot bake at our house at all anymore, other than gluten-free foods which she does weekly for the farmers market.

SHe has to bake other things at her friends house. You have to be really careful of cross contamination. The pain you felt had to come from something as does the dh caused itching. Something else I have trouble with. Even walking into a kitchen where there my be flour in the air can cause me to break out.

In short you really have to be very diligent in avoiding any possible causes until you start to heal and even then you have to be very very careful as any accidental glutening can cause a setback. If your not, the itching and dh gets worse and it takes longer to heal.

Good luck

Ken

As you know from my other posts I am newly diagnosed with Celiac. I have found the feedback on this forum phenomenal, so I have some more questions:

1. Does high doses of sugar (Gluten free xmas cookies) increase the diarrhea.

I ate about nine big cookies last night and I suffered severely for the next eleven hours. I spent six of the eleven on the toilet and the other five curled up in a ball shaking from the abdominal pain.

2. My wife said she checked the ingrediants on the sprinkles and topping and said they were all OK. Have any of you had cookies with sprinkles etc., and had a similar attack?

3. I have been very light headed, sometimes really disoriented, almost like I have been drinking. Is this a part of the Celiac or do I have something else going on now too?

4. I have been itching for five months now, mostly at night, and some nights a lot worse than others. Is that another side effect of Celiac?

5. I am also getting little marks on my arms and legs, more so on my arms. Not scavies, or insect bites. Kind of like bites, only a little bigger, but smaller and less rough than warts. Are they another side effect from Celiac?

6. Last question. The diarrhea has gone from heavy straight fluid to a heavier oatmeal like substance. Every day now it was getting thicker. Then Monday morning I stopped having bowel movements until last night. I don't even want to describe what happened last night, but at the end I was back to real loose oatmeal type diarrhea again. My question is "Is it common to go from diarrhea to constipation and then back and forth"? If so how long does this part of the recovery last? and is this the last step in the recovery process regarding controlling your bowels?

Thanks for your input. It is sincerely appreciated.

Joe

Share this post


Link to post
Share on other sites

Well, I am not so much a "veteran" but here goes anyways.....

I am just under 1 year 100% gluten-free (not including a couple accidentals every so often)

I found if the food I was eating was high in "oil" I would get simular symptoms as if I were glutened

As for the "sprinkles" almost any I looked at this year had the words "natural flavorings" thats one of those things in the list of ingredients that scares the bejesus outta me... rates right up there with "spices" I passed on sprinkles all year, while my ice cream doesn't quite taste the same without them I will live without them until I find out what "natural flavorings" are actually made from.

Share this post


Link to post
Share on other sites
Well, I am not so much a "veteran" but here goes anyways.....

I am just under 1 year 100% gluten-free (not including a couple accidentals every so often)

I found if the food I was eating was high in "oil" I would get simular symptoms as if I were glutened

As for the "sprinkles" almost any I looked at this year had the words "natural flavorings" thats one of those things in the list of ingredients that scares the bejesus outta me... rates right up there with "spices" I passed on sprinkles all year, while my ice cream doesn't quite taste the same without them I will live without them until I find out what "natural flavorings" are actually made from.

You mentioned Ice Cream,,,,, what kind of Ice Cream can we eat?

Thanks,

Joe

Share this post


Link to post
Share on other sites

The best thing I can say is that it takes time to heal. How you feel and how your body behaves will change over time as you heal. Don't get us started on poop stories here, this place is legendary for it, but suffice to say I've been through every possible, eh, consistency and frequency since I was diagnosed this time last year. Things are more or less consistent now.

You might also consider that there could be other allergies at work. I had intense itching that was not DH. DH from what I understand is a visible rash. Itching can be a sign of an allergic reaction to something. In my case it was Sunflower oil which is used in a lot of things these days. Once I started carefully avoiding Sunflower oil and seed, most of the itching stopped. Have you tried using an anti-histamine to see if it effects the itching? There are also capsicum creams out there if it is really hard to live with the itch. Capsicum lotions have their own side effects so do some research and be very careful with them, but they are very good at numbing the surface nerves and stopping the itch.

I also am allergic to potatoes which means I can't use flour mixes with potato flour or starch in them. That is another thing to consider about the gluten free cookies you ate. What flours were used, could you be allergic to one of them or to some other ingredient in them?

I get the lightheadedness sometimes too. It usually doesn't last long and it's an odd feeling. I've chalked it up to nerve damage. I used to fall down a lot for no reason and slam body parts into things without meaning to. I rarely have those issues anymore so there has been some healing in the last year. Nerve damage can heal but it takes time. Our nervous system plays a big part in out ability to walk and move around and know where our body is. Nerve damage can short circuit some of the connections between the brain and the body and lead to some odd feelings of displacement or disorientation. Then there's just the infamous brain fog that a lot of us feel when glutened, or felt when we were eating gluten. That too usually gets better with time and a gluten free diet. It varies in intensity from person to person.

Good luck Joe. It really does get better.

Violet

Share this post


Link to post
Share on other sites
You mentioned Ice Cream,,,,, what kind of Ice Cream can we eat?

Thanks,

Joe

Joe,

If you check out Edy's website, they list each flavor with ingredients and if it is gluten-free. I know there are plenty of other brands (Blue Bunny for example) that are gluten-free, but we stick with Edy's in my house just because we don't like to switch around once we find something.

Share this post


Link to post
Share on other sites

Hi Joe.....When is the last time you had your blood sugar checked? You list a lot of symptoms of diabetes. Especially the itchy skin and sores.

However, I can't eat a lot of baked goods. I don't know what it is but they do disagree with me. You'd think I'd eaten gluten or something. lol. I need to eat pure fresh foods to feel my best.

I'm a 20 yr. vetern to celiac disease. When I was diagnosed my GI told me I was only the fourth real and true celiac he had ever encountered in his career. And then he said and one died. Because of that statement, I have always been careful about my diet. I don't ever want to get that sick and run down again!

neesee

Share this post


Link to post
Share on other sites

I added my thoughts into the quote, after your questions. :)

As you know from my other posts I am newly diagnosed with Celiac. I have found the feedback on this forum phenomenal, so I have some more questions:

1. Does high doses of sugar (Gluten free xmas cookies) increase the diarrhea. For some people, yes.

I ate about nine big cookies last night and I suffered severely for the next eleven hours. I spent six of the eleven on the toilet and the other five curled up in a ball shaking from the abdominal pain.

2. My wife said she checked the ingrediants on the sprinkles and topping and said they were all OK. Have any of you had cookies with sprinkles etc., and had a similar attack? Not when I check them and they were gluten-free.

3. I have been very light headed, sometimes really disoriented, almost like I have been drinking. Is this a part of the Celiac or do I have something else going on now too? I have passed out before, from a bad bought of diarrhea. Was this after being glutened?

4. I have been itching for five months now, mostly at night, and some nights a lot worse than others. Is that another side effect of Celiac? I have heard about it in other Celiacs, but not experienced it myself....

5. I am also getting little marks on my arms and legs, more so on my arms. Not scavies, or insect bites. Kind of like bites, only a little bigger, but smaller and less rough than warts. Are they another side effect from Celiac? Sounds like DH, but it would go away if you were following a gluten-free diet. Check into a Dermatologist in your area, one that knows about Celiac and Dermatitis Herpetaformis

6. Last question. The diarrhea has gone from heavy straight fluid to a heavier oatmeal like substance. Every day now it was getting thicker. Then Monday morning I stopped having bowel movements until last night. I don't even want to describe what happened last night, but at the end I was back to real loose oatmeal type diarrhea again. My question is "Is it common to go from diarrhea to constipation and then back and forth"? If so how long does this part of the recovery last? and is this the last step in the recovery process regarding controlling your bowels? Sounds to me like you are getting some cross-contact or cross-contamination somewhere in your diet. Are you in a gluten-free household? Are you being really careful? I get constipated sometimes now, because I am so used to diarrhea, but I don't really go back and forth....

Thanks for your input. It is sincerely appreciated.

Joe

Share this post


Link to post
Share on other sites

I don't know about the sugar causing diarrhea, but I do know that I have to limit even the gluten free baked items, no matter which flour I use. I feel glutened even though I know the item is gluten free if I over indulge. My symptoms will last a few days or more, just like a cross contamination.

My itching did not go away until I changed all my personal care products to gluten free.

Share this post


Link to post
Share on other sites
I don't know about the sugar causing diarrhea, but I do know that I have to limit even the gluten free baked items, no matter which flour I use. I feel glutened even though I know the item is gluten free if I over indulge. My symptoms will last a few days or more, just like a cross contamination.

My itching did not go away until I changed all my personal care products to gluten free.

High blood sugar definately does cause diarrhea. Dh had the big D all day last friday, I finally convinced him to check his sugar and it was 279. He can also get D when his sugar comes down fast.

My mom was a type 1 diabetic. She had what the drs called diabetic diarrhea. Actually it was diabetic digestive neuropathy.

neesee

Share this post


Link to post
Share on other sites

Your itchiness could be eczema-- or what my doctor is 95% sure is eczema. Because celiac is an allergy-based disorder (sort of-- not in the traditional sense, but in the doctor sense) and eczema is an allergy-based disorder, they run in backs.

As far as the cookies... did you use the same pan as wheat cookies are made on? same spatula? in the oven at the same time? same knife for the frosting?

As far as ice cream, I have never found an ice cream that contained gluten, there have been some mix-ins that are off limits, but ice cream is almost always fine. But you should always double check. Google is wonderful in that sense.

Finally, constipation-diarrhea-constipation is my world. I find that when I start down that trail, plain rice, bananas, and apple sauce help.

Share this post


Link to post
Share on other sites

Hi Joe

It could be simple gluten contamination, as others have said. It could also be too much food: Especially when I was newly diagnosed and healing, eating too much would cause me pain for hours and symptoms for a day or so. Nine cookies would kill my stomach. Even now, I have to watch that I don't eat too much in one sitting. You should also eliminate dairy or at least only eat small amounts. And too much fat and/or oil in cooked things also may cause problems.

Eating gluten free flours when you are healing is not a good idea, unfortunately. Ice cream might be bad based on both the dairy and the fat content. For gluten free treats, try chocolate, fruit sorbet (dairy-free), dried fruit (plain or dipped in chocolate), apple sauce or fruit cobbler without the bread, peanut butter with apple slices. There's a flour-less peanut butter cookie on the recipe board that might be good. Popcorn is also good.

~Laura

Share this post


Link to post
Share on other sites
Hi Joe

It could be simple gluten contamination, as others have said. It could also be too much food: Especially when I was newly diagnosed and healing, eating too much would cause me pain for hours and symptoms for a day or so. Nine cookies would kill my stomach. Even now, I have to watch that I don't eat too much in one sitting. You should also eliminate dairy or at least only eat small amounts. And too much fat and/or oil in cooked things also may cause problems.

Eating gluten free flours when you are healing is not a good idea, unfortunately. Ice cream might be bad based on both the dairy and the fat content. For gluten free treats, try chocolate, fruit sorbet (dairy-free), dried fruit (plain or dipped in chocolate), apple sauce or fruit cobbler without the bread, peanut butter with apple slices. There's a flour-less peanut butter cookie on the recipe board that might be good. Popcorn is also good.

~Laura

Laura,

Hi, and thanks for your valued input.

I'm a big guy. A year ago I was 308 lbs. At the beginning of August I was 294 lbs and in just my first three weeks of chronic diarrhea I was down to 255. It wasn't that I was losing weight so fast,,,,, it was I was losing muscle mass. My face, arms and legs were getting really skinny but my stomach was bloating to double the size when I was 308. I was always dehydrated and weak as could be.

I made myself keep eating and drinking. I ate and replenished fluids 24/7. As fast as I put it in me,,,,, the faster it came out. Now that I am on the Gluten Free Diet, I have toned the input down, but I still eat and drink enough for large men and small cattle. Although I am starting to see some progress from the diet, I am still struggling with the diarrhea, nausea and abdominal pains and cramping.

I'm really scared to stop eating all day,,,,, but if you believe "over eating" may be contributing to my problemsI certainly feel like it would be worth the try. I nibble all day and all night and I eat a big lunch and a big dinner. What do you suggest I change my eating schedule to? and what amounts?

Thanks,

Joe

Share this post


Link to post
Share on other sites
Laura,

Hi, and thanks for your valued input.

I'm a big guy. A year ago I was 308 lbs. At the beginning of August I was 294 lbs and in just my first three weeks of chronic diarrhea I was down to 255. It wasn't that I was losing weight so fast,,,,, it was I was losing muscle mass. My face, arms and legs were getting really skinny but my stomach was bloating to double the size when I was 308. I was always dehydrated and weak as could be.

I made myself keep eating and drinking. I ate and replenished fluids 24/7. As fast as I put it in me,,,,, the faster it came out. Now that I am on the Gluten Free Diet, I have toned the input down, but I still eat and drink enough for large men and small cattle. Although I am starting to see some progress from the diet, I am still struggling with the diarrhea, nausea and abdominal pains and cramping.

I'm really scared to stop eating all day,,,,, but if you believe "over eating" may be contributing to my problemsI certainly feel like it would be worth the try. I nibble all day and all night and I eat a big lunch and a big dinner. What do you suggest I change my eating schedule to? and what amounts?

Thanks,

Joe

Gosh, you are a big guy. ;) I only know that when I overeat "for me" in one sitting then I get bad stomach pain. This did not happen before. I also get the big stomach when I overeat and also when I get gluten.

I'm not sure if you should eat less-- I'm just not knowledgeable enough and of course I'm not a doctor and I don't know you. A lot of kind people here gave good advice when I was just starting so I'll repeat it. Try whole foods, low in fat and avoid replacement flours/treats and avoid dairy. So that would be rice, potatoes, sweet potatoes, veggies (cooked are usually easier than uncooked), lean meats, fruits (also cooked). You could also try quinoa which does seem to be easily tolerated. Avoid eating out, eating anything cooked for you who doesn't understand cross-contamination and celiac needs until you feel better for a few weeks.

So to summarize, your pain could have been from (1) gluten contamination and/or cross-contamination (2) eating too much at one sitting (3) eating gluten-free foods that don't agree with you (4) you have other food intolerances (sorry!) that are showing up (eggs, dairy, corn, potatoes, soy are possibilities) (5) or just that your digestive system is healing and is still very sensitive.

You could try an elimination diet. Here's a quote that I saved (sorry, I don't know the author...)

If it was me, I would first do an elimination by food group. First dairy, if no relief then eliminate all grains, if no relief eliminate all legumes, if no relief eliminate all nightshades (potatoes, tomatoes). The other food I would check is eggs. This approach would cover the most common food intolerances. If this doesn't bring any relief, you could consider additives, colorings, etc. Try only organic whole foods for 10 days and see if that makes a difference.

When you eliminate, make sure you have absolutely none for 5-10 days. If you clear up, add an item one at a time and watch for symptoms (a cautious approach would be to add one item every 4 days). If you don't clear up, start eating the food group again for a week and see if you have any worsening of symptoms. If no change go to the next food group. "End quote"

Also, I'm trying to lose weight. There is a weight-gain-wanted thread on the Weight section of this forum. Maybe read there if you don't want to lose more weight. Losing weight when you don't want to is as bad as not being able to lose weight.

It's late and I worked 10 hours today so I hope I'm making sense. Best wishes.

Share this post


Link to post
Share on other sites

Joe

My husband lost his muscle mass (from the weight loss over the years +) and never regained it. So I understand what you are saying. Don't let the weight loss worry you unless it becomes anexoric proportions. You could also be overeating for your condition (digestion is taxing on guts when there's intestinal issues). Also, as I got older I realized that the less I ate, the better my guts felt and I don't even have celiac, my husband does).

A trigger for diarrhea could be not only sugar, but high fat content - fat is in gluten free or regular cookies and baked goods like cakes, or in candy. Sometimes dairy can be an irritant: as in lactose intolerance or too high in fat or milk/casein allergy.

My advice: go low fat and semi bland, incorporating plain white rice, bananas, and applesauce in your diet. Some people keep a notebook and jot down what they eat and how much of it so they can see the next day what may have bothered them. Others do the elimination diet and keep the notebok. It's a good suggestion to do both for about two months and see if there is an improvement.

Something is irritating your guts...sounds simple but it could be a variety of a few ordinary foods. It can run from fat to roughage to hidden gluten or you have celiac AND a colits or irritable bowel disease lurking in the background.

My husband also has allergies to soy...soy gets him in the gut too, as well as fruit and vegetables, beans, nuts, and spices such as onion/garlic. We were stunned when we realized he reacted to soy and he had to cut soy out. Soy is in mayonnaise, which is almost 100% fat, like butter and margarine. Many gluten free cookies use soy in the ingredients in place of wheat. You may have other food allergies and/or intolerances. Such as corn allergy, yeast allergy, egg allergy, milk allergy, etc, (myself I am allergic to flavored teas and get stomach aches & diarrhea from these teas). Food allergies will give stomach upset and diarrea and possible skin erruptions.

Cross contamination is still possible if your utensils and bakeware are used for making stuff with gluten in it. I don't keep white wheat flour in the house anymore for fear that it'll fly all over the kitchen should I use it. I had to get rid of the utensils that I used for years that had possible gluten hiding in the crevaces. Can't mix and match this stuff...need new stuff or keep your utensils and pans separate. Need new toaster and cast iron skillets as stuff like that can't be cleaned to the extend which is needed to be gluten free.

Lastly, are you currently under the care of a doctor, such as a gastroenterologist and what does he/she say about all of this? I'm going to throw something else at you to investigate: do you have gallbladder disease issues? Reason I ask is that this past year I did and my major symptom was weeks of upper abdomen pain and never-ending diarrhea and mal-digestion with gas/bloating, nausea --- I lost nearly 20 lbs. (about 15% of my overall body weight). I had to have my gallbladder removed and now high fat and dairy foods bother me (diarrhea and mal-digestion).

Deb

Share this post


Link to post
Share on other sites

Not much to add, but I did want to say some sprinkles have gluten. I had to throw mine out when I went gluten-free. Can't remember the brand, but it was a pretty common one, but it did say wheat right on the label so it was easy to pick out.

Ice cream: most ice creams are gluten-free. Obviously ones like cookie dough aren't, but I've never seen an ice cream with gluten. Not to say they're not out there, but it should be easy for you to find one you can eat. Kemps has a gluten-free list on their website.

Share this post


Link to post
Share on other sites

Joe,

I also lost most of my muscle -- so much so that I couldn't walk for a week and spent 2 months where I could only walk with a cane. They found that I had lost almost all of the testosterone and many other hormones. Once they figured that out I had a few injects over 2 weeks and feeling better although it wasn't till I was totally gluten-free that things started getting back to normal. Even after almost 2 years my legs and hormone levels are back to normal but my stomach is bloated.

You have to watch the diet. You might want to get the hormones checked too.

ken

Share this post


Link to post
Share on other sites

Hey Joe.....This is the last time i'm going to try this!

What is your blood sugar? My dh lost a tremendous amount of muscle mass before his diabetes was diagnosed! His wrists even got small. He went from 250 down to 180 in about 3 mos. He was severely dehydrated and hungry and thirsty. He did a lot of sleeping, he acted drunk, he couldn't think anymore! His blood sugar was over 400. The dr didn't catch it. I did. I made him get a blood test at work.

He does get diarrhea with high blood sugar. You sound more diabetic than celiac, however, I'm sure it's possible to have both.

Good luck to you.

neesee

Share this post


Link to post
Share on other sites
Hey Joe.....This is the last time i'm going to try this!

What is your blood sugar? My dh lost a tremendous amount of muscle mass before his diabetes was diagnosed! His wrists even got small. He went from 250 down to 180 in about 3 mos. He was severely dehydrated and hungry and thirsty. He did a lot of sleeping, he acted drunk, he couldn't think anymore! His blood sugar was over 400. The dr didn't catch it. I did. I made him get a blood test at work.

He does get diarrhea with high blood sugar. You sound more diabetic than celiac, however, I'm sure it's possible to have both.

Good luck to you.

neesee

Gluten reactions can also raise your blood sugar and it can have autoimmune impact on the pancreas just like it can impact almost any other organ we have. There are also a lot of celiacs who are diabetic or prediabetic. You probably have already had him evaluated for celiac but just in case you haven't I thought I should mention the need for him to be tested or to do diet trial.

Share this post


Link to post
Share on other sites
Gluten reactions can also raise your blood sugar and it can have autoimmune impact on the pancreas just like it can impact almost any other organ we have. There are also a lot of celiacs who are diabetic or prediabetic. You probably have already had him evaluated for celiac but just in case you haven't I thought I should mention the need for him to be tested or to do diet trial.

Hi Raven....My husband absolutely does not have celiac. He is a type 2 diabetic who cheats his diet. He just plain eats too much! He's too chubby right now. When he's thinner his blood sugar is way better. He has high cholesterol and high blood pressure. I, on the other hand have low cholesterol. 96 total at celiac diagnosis and 20 yrs later 150.

Not every case of diarrhea is celiac.

As far as diabetes goes, I have a strong family history of it. Mom, dad, grandfather, and brother all diabetics. Mom was a severe type 1 diabetic. She died from all the complications a diabetic can have. The rest were type 2s. My brother is the only one still living.

Type 2 has no connection to celiac.

neesee

Share this post


Link to post
Share on other sites
Hey Joe.....This is the last time i'm going to try this!

What is your blood sugar? My dh lost a tremendous amount of muscle mass before his diabetes was diagnosed! His wrists even got small. He went from 250 down to 180 in about 3 mos. He was severely dehydrated and hungry and thirsty. He did a lot of sleeping, he acted drunk, he couldn't think anymore! His blood sugar was over 400. The dr didn't catch it. I did. I made him get a blood test at work.

He does get diarrhea with high blood sugar. You sound more diabetic than celiac, however, I'm sure it's possible to have both.

Good luck to you.

neesee

Hi, and thanks for helping. My dad died from diabetes. They checked my sugar while I was in the hospital in early October and they said it was negative. I believe the number was between 160 and 170.

I'm definitely Celiac. I am going bland and cutting down on the amount I eat for ten days and then I will evaluate where I'm at and ask you guys for further guidance.

Thanks again everyone for all you help. You guys are great.

Joe

Share this post


Link to post
Share on other sites
When you eliminate, make sure you have absolutely none for 5-10 days.

(I know you were quoting someone else, cyberprof :) )

I had done elimination tests for soy twice and thought them inconclusive.

Then, somehow, last June, I did another but let it go longer.

It wasn't until day TWELVE that I knew I'd found my answer.

I got my life back. :)

(I'd been gluten-free 3.5 yrs, dairy-free 3yrs, etc etc)

Soooooooooo .. . . .. I highly recommend 2 weeks for an elimination test. :)

Share this post


Link to post
Share on other sites
(I know you were quoting someone else, cyberprof :) )

I had done elimination tests for soy twice and thought them inconclusive.

Then, somehow, last June, I did another but let it go longer.

It wasn't until day TWELVE that I knew I'd found my answer.

I got my life back. :)

(I'd been gluten-free 3.5 yrs, dairy-free 3yrs, etc etc)

Soooooooooo .. . . .. I highly recommend 2 weeks for an elimination test. :)

Good advice from someone who knows more than I and has experience too.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,780
    • Most Online
      4,125

    Newest Member
    Starets
    Joined
  • Forum Statistics

    • Total Topics
      112,054
    • Total Posts
      956,606
  • Who's Online (See full list)

  • Forum Discussions

    The EMA test is the most expensive of the celiac blood tests because it is not machine run, but done by humans.  A lab mistake could have been made.  With negative genes, the rest of the panel and symptoms eliminated, chances are you do not have celiac disease, but you can always get retested in six months, if you have symptoms or think celiac disease could be an issue.   Making dietary changes can have adverse reactions to anyone.  Consuming too much of a good thing can easily make you sic
    Hey there ! hope all is well for you.  I’ve been struggling with all sorts of tenidinitis and vertigo issues so I haven’t been on the computer much, but I would love any advice if possible. I have been on a very strict gluten free diet for 6 or 7 months. Still have low iron and just got results back. Would love your opinion. I prepare all food myself except once where I was likely glutened. I am seeing haematologist next week, but I was wondering what you think. Parasites have been eliminat
I found this on celery allergy: https://www.mayoclinic.org/diseases-conditions/food-allergy/symptoms-causes/syc-20355095  
  • Blog Entries

  • ×
    ×
    • Create New...